<![CDATA[Autoimmune Encephalitis]]>Mon, 16 Jan 2023 15:26:45 +0000Captivate.fmCarmel Sound Labhttps://artwork.captivate.fm/a443cb5a-345d-49f2-8bf1-fb0055be423c/mflPehXj1mzT9u_MEd68oeyv.pngAutoimmune EncephalitisCarmel Sound LabCarmel Sound Lab14 year old Jillian Cash was recently diagnosed with Autoimmune Encephalitis, a type of brain inflammation where the body's immune system attacks healthy cells and tissues in the brain or spinal cord. It is a rare, complex disease that can cause rapid changes in both physical and mental health. Sarah Cash is Jillian's mother, and with the help of host Jon Beerman, is here to tell her ongoing story.https://autoimmune-encephalitis.captivate.fmnoepisodicImmunoglobulin TreatmentsImmunoglobulin TreatmentsAfter receiving her official diagnosis for AE in July 2021, Jillian and her mom Sarah get us up to speed on her status after two immunoglobulin treatments.

For more information on the disease of AE (Autoimmune Encephalitis) please visit: https://autoimmune-encephalitis.org/

This podcast is produced by Carmel Sound Lab. For more information please visit: www.carmelsoundlab.com

Theme music "Juggling Mum" by Jon Beerman.

]]>After receiving her official diagnosis for AE in July 2021, Jillian and her mom Sarah get us up to speed on her status after two immunoglobulin treatments.

For more information on the disease of AE (Autoimmune Encephalitis) please visit: https://autoimmune-encephalitis.org/

This podcast is produced by Carmel Sound Lab. For more information please visit: www.carmelsoundlab.com

Theme music "Juggling Mum" by Jon Beerman.

]]>11da1b26-d28a-4677-8499-38426e3f58adThu, 28 Oct 2021 15:30:00 -050040:19nofull13Carmel Sound LabThe Confirmed Diagnosis, Initial Treatment, and PlanThe Confirmed Diagnosis, Initial Treatment, and PlanAutoimmune Encephalitis is a rare disease that has historically been very difficult to diagnose. It mostly affects young women and sometimes goes undiagnosed or misdiagnosed for years, often times being passed off as a psychological disorder or torrets syndrome. In Jillian's case, the doctors also had a hard time diagnosing her and it took about 6 months to get there. In this episode, host Jon Beerman is joined by Jillian Cash, Sarah Cash, and Jillian's grandfather Tom. They discuss the jounrey of getting to a fully confirmed diagnosis, her initial treatment plan, and the plan moving forward. Below are a few resources for additional information on Autoimmune Encephalitis:

International Autoimmune Encephalitis Society - https://autoimmune-encephalitis.org/

Brain On Fire (movie) - https://www.imdb.com/title/tt3704700/

Carmel Sound Lab (podcast production studio) - www.carmelsoundlab.com

If you have any questions or would like any additional information please email carmelsoundlab@gmail.com

]]>Autoimmune Encephalitis is a rare disease that has historically been very difficult to diagnose. It mostly affects young women and sometimes goes undiagnosed or misdiagnosed for years, often times being passed off as a psychological disorder or torrets syndrome. In Jillian's case, the doctors also had a hard time diagnosing her and it took about 6 months to get there. In this episode, host Jon Beerman is joined by Jillian Cash, Sarah Cash, and Jillian's grandfather Tom. They discuss the jounrey of getting to a fully confirmed diagnosis, her initial treatment plan, and the plan moving forward. Below are a few resources for additional information on Autoimmune Encephalitis:

International Autoimmune Encephalitis Society - https://autoimmune-encephalitis.org/

Brain On Fire (movie) - https://www.imdb.com/title/tt3704700/

Carmel Sound Lab (podcast production studio) - www.carmelsoundlab.com

If you have any questions or would like any additional information please email carmelsoundlab@gmail.com

]]>4a12ebe3-661b-4292-9fd7-8660735dc49bSat, 10 Jul 2021 09:00:00 -050047:11nofull12Jon BeermanThe DiagnosisThe DiagnosisWith the help of host Jon Beerman, Sarah Cash describes the very difficult process of getting an Autoimmune Encephalitis diagnosis for her 14-year old daughter, Jillian. The journey to get the diagnosis has been challenging to say the least and it is only the beginning. She was diagnosed in late March 2021 and is currently awaiting results of the spinal tap. For more info about this rare disease please go to https://autoimmune-encephalitis.org/

IMPORTANT NOTE: After the recording of this podcast, it was determined that Jillian was not officially diagnosed with AE as they needed to do more testing, but as of late June 2021 she was confirmed to have the disease. Episode 2 was recorded shortly after her official diagnosis and treatment.

]]>With the help of host Jon Beerman, Sarah Cash describes the very difficult process of getting an Autoimmune Encephalitis diagnosis for her 14-year old daughter, Jillian. The journey to get the diagnosis has been challenging to say the least and it is only the beginning. She was diagnosed in late March 2021 and is currently awaiting results of the spinal tap. For more info about this rare disease please go to https://autoimmune-encephalitis.org/

IMPORTANT NOTE: After the recording of this podcast, it was determined that Jillian was not officially diagnosed with AE as they needed to do more testing, but as of late June 2021 she was confirmed to have the disease. Episode 2 was recorded shortly after her official diagnosis and treatment.

]]>a8804a2b-14a0-47d5-96d1-f0bb23af8031Fri, 23 Apr 2021 09:00:00 -050049:42nofull11Jon Beerman