Care to Share

Elaine: Caring for two kids and running a support work business

Thu, 15 Aug 2024 06:03:38 -0500

Elaine is a carer for two of her three children. As a Malaysian Australian, Elaine experienced more nuanced difficulties as a carer, inspiring her to create her own support work business with her husband.

I pretty much burned out a long time ago and that's okay. I don't think it's resilience. It's just do it.

Care to Share is an Impact Studios podcast hosted by Prudence Granger, Carer-in-Residence for the Carer Knowledge Exchange.

It features open and honest conversations with carers discussing the challenges, roadblocks, and joys of caring.

Produced by Siobhan Moylan.
Sound Design by Melissa May.
Impact Studios Executive Producer is Sarah Gilbert.

The project is a partnership between Carers NSW and the Institute for Public Policy and Governance at the University of Technology Sydney, and is proudly funded by the NSW Government. Find out more at www.carerknowledgeexchange.com.au.  

Support for carers

https://www.carerknowledgeexchange.com.au/public/support-for-carers/

https://www.carergateway.gov.au/

You can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14.

Sibel: Caring for her adult son as a single parent and solo carer

Thu, 15 Aug 2024 06:01:08 -0500

Sibel's life took an unexpected turn when her son Ethan contracted pneumococcal meningitis at just two years old, leaving him with an acquired brain injury. Now twenty one years old, Ethan defies expectations and thrives despite his disabilities.

Sibel has faced challenges along the way from navigating the complexities of the NDIS to grappling with her own personal struggles.

As carers, we're seen as informal supports. Everything outside of that is a formal support which would be paid support workers. My mind still grapples with this.

It's very hard for somebody going through the day-to-day struggles of caring for someone with a disability to be considered 100% as an informal support.

Care to Share is an Impact Studios podcast hosted by Prudence Granger, Carer-in-Residence for the Carer Knowledge Exchange.

It features open and honest conversations with carers discussing the challenges, roadblocks, and joys of caring.

Produced by Siobhan Moylan.
Sound Design by Melissa May.
Impact Studios Executive Producer is Sarah Gilbert.

Support for carers

https://www.carerknowledgeexchange.com.au/public/support-for-carers/

https://www.carergateway.gov.au/

You can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14.

Kiara: Caring for her autistic son with global developmental delay

Wed, 31 Jul 2024 03:16:51 -0500

Kiara’s caring role started when she was eight years old. At twenty-four, Kiara is a devoted mother to Rider, her three-year-old autistic son with global developmental delay.

Rider's autism is characterized by severe sensory sensitivities and restrictive eating and other common symptoms she discusses in this episode.

Her son is Kiara’s inspiration and purpose and drives her determination.

When I have conversations with people outside of this world and I say ‘Carer’ they instantly think, ‘Support Worker, Nurse.’ Yeah, no.

Carers are hidden. We are hidden behind our roles. Everything we do is hidden.

Care to Share is an Impact Studios podcast hosted by Prudence Granger, Carer-in-Residence for the Carer Knowledge Exchange.

It features open and honest conversations with carers discussing the challenges, roadblocks, and joys of caring.

Produced by Siobhan Moylan.
Sound Design by Melissa May.
Impact Studios Executive Producer is Sarah Gilbert.

Support for carers

https://www.carerknowledgeexchange.com.au/public/support-for-carers/

https://www.carergateway.gov.au/

You can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14.

Najla: Caring for her husband with early onset dementia

Wed, 31 Jul 2024 03:16:07 -0500

Coming from a Middle Eastern Muslim background, Najla brings a unique perspective to the table. With decades of experience in vocational education and training, she's not just an expert in equity, diversity, and inclusion.

As a carer for her husband dealing with younger onset dementia, and a carer for her father with dementia, Najla reshapes the way we look at disability and the care experience.

My husband was diagnosed with dementia early onset, and my kids were devastated when I made the decision to continue to work.

I expected it from the community. I expected it from my parents. I did not expect it from my adult children. We then had this terrible conflict.

Care to Share is an Impact Studios podcast hosted by Prudence Granger, Carer-in-Residence for the Carer Knowledge Exchange.

It features open and honest conversations with carers discussing the challenges, roadblocks, and joys of caring.

Produced by Siobhan Moylan.
Sound Design by Melissa May.
Impact Studios Executive Producer is Sarah Gilbert.

Support for carers

https://www.carerknowledgeexchange.com.au/public/support-for-carers/

https://www.carergateway.gov.au/

You can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14.

Introducing... Series 2 with Najla, Kiara, Sibel and Elaine

Wed, 31 Jul 2024 03:15:32 -0500

Open and honest conversations with carers discussing the challenges, roadblocks, and joys of caring. Break down the stigmas around care by hearing the stories of people who live this experience every day.

In Series 2, you'll meet

Najla, a Middle Eastern Muslim Australian caring for her husband with early onset dementia.
Kiara, a young mum caring for her autistic toddler with global developmental delay.
Sibel, a single parent and solo carer of her adult son
Elaine, a Malaysian Australian caring for two of her three children and running her own support business

Host Prudence Granger, Carer-in-Residence for the Carer Knowledge Exchange, asks questions like:

How does caring impact your mental health?
How do you deal with stigma around disability, illness and care in your cultural community?

Care to Share is a UTS Impact Studios podcast.

Series 2 is produced by Siobhan Moylan. Sound Design by Melissa May and Impact Studios Executive Producer is Sarah Gilbert.

Support for carers

https://www.carerknowledgeexchange.com.au/public/support-for-carers/

https://www.carergateway.gov.au/

You can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14.

Peter & Keith: Friends and carers of their wives living with dementia

Tue, 07 Nov 2023 05:08:57 -0500

In this episode of Care to Share, Prue finds a story of friendship. She chats with Peter and Keith, who have both been carers for their wives living with dementia and became friends through their caring journeys.

They speak to the importance of community for wellbeing as a carer, the connection and support for one another that kept them going through the many ups and downs of care, and what they learnt from each other. Keith and Peter have big hearts and many stories to share of their journey through life and in care.

Care to Share hosted by Prudence Granger is in association with the Carer Knowledge Exchange.

Produced by Danni Stewart. Sound design is by Melissa May. Additional sound design is by Brittany Rourke. Supervising Producer is Britta Jorgensen. Impact Studios Executive Producer is Sarah Gilbert.

Imogen: Carer for her twin sister and other siblings amidst grief

Tue, 31 Oct 2023 22:10:35 -0500

In this episode of Care to Share, Prue chats with Imogen about growing up with a twin sister who requires care. Imogen has always been a carer for Jacinta in some capacity throughout her life, as family circumstances and schools changed.

But after a family tragedy, at just 21 years old, she became the primary carer for Jacinta as well has her two younger siblings. Imogen candidly discusses this huge responsibility shift amidst overwhelming grief.

This episode discusses difficult themes, including the loss of parents, please listen with care and if you’re feeling at all distressed by the themes of this episode, give it a skip or utilise the resources below for support.

Care to Share hosted by Prudence Granger is in association with the Carer Knowledge Exchange.

Produced by Danni Stewart. Sound design is by Melissa May. Additional sound design is by Brittany Rourke. Supervising Producer is Britta Jorgensen. Impact Studios Executive Producer is Sarah Gilbert.

Sebastian: Carer for his husband with early onset Alzheimer's

Tue, 24 Oct 2023 10:43:10 -0500

In this episode of Care to Share, Prue chats with Sebastian about his journey caring for his husband Jeff. Sebastian transitioned from partner to carer when Jeff was diagnosed with early-onset Alzheimer’s.

Seb honestly shares the trickiness of this relationship dynamic shift, while clearly expressing the long standing love and bond he has with his husband. He also highlights the nuanced challenge of care within a same sex relationship.

This episode is a candid look into an intimate and evolving relationship that is centred in love and care.

Care to Share hosted by Prudence Granger is in association with the Carer Knowledge Exchange.  

Produced by Danni Stewart. Sound design is by Melissa May. Additional sound design is by Brittany Rourke. Supervising Producer is Britta Jorgensen. Impact Studios Executive Producer is Sarah Gilbert.

The Carer Knowledge Exchange brings together carers, former carers, researchers, policy makers and practitioners to share their knowledge and learn from each other, improving outcomes for carers by connecting research to practice. The project is a partnership between Carers NSW and the Institute for Public Policy and Governance at the University of Technology Sydney, and is proudly funded by the NSW Government. Find out more at www.carerknowledgeexchange.com.au.   Support for carers: https://www.carerknowledgeexchange.com.au/public/support-for-carers/

If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14.

Julian & family

Tue, 17 Oct 2023 01:36:00 -0500

In this episode of Care to Share, Prue chats with Julian Maroun and his fiancée about their journey caring for Julian’s brother Luke. Julian grew up caring for Luke, alongside his family. He discusses the challenges of being a young carer and how that has moulded who he is today. Juliane's Fiancée now supports the Maroun family's care of Luke, who has Down Syndrome and Cerebral Palsy. She unpacks the challenges of navigating a relationship and care, as well as how Luke has evolved through a more dynamic care structure that includes the support of the whole family.

Care to Share is an Impact Studios production hosted by Prudence Granger in association with the Carer Knowledge Exchange.

Produced by Danni Stewart. Sound design is by Melissa May. Additional sound design is by Brittany Rourke. Supervising Producer is Britta Jorgensen. Impact Studios Executive Producer is Sarah Gilbert.

If you feel upset or are in distress, you can contact Lifeline, 24 hours a day, 7 days a week by phoning 13 11 14 or texting 0477 13 11 14.

TRAILER: Care to Share

Tue, 17 Oct 2023 01:33:55 -0500

Introducing Care to Share, a UTS Impact Studios podcast hosted by Prudence Granger, Carer-in-Residence for the Carer Knowledge Exchange. This podcast features open and honest conversations with carers discussing the challenges, roadblocks, and joys of caring.