Life on Pause

Full Cup: How Eliot Dean Fought Leukemia Twice and Learned Not to Wait

Tue, 21 Apr 2026 05:00:00 -0400

At twenty years old, Eliot Dean was diagnosed with acute lymphoblastic leukemia. For weeks, his world shrank to a single hospital floor he couldn't leave — a window with a good view, a lot of sunsets, and the slow, difficult work of getting through treatment.

Five years later, in remission, Eliot thought the worst was behind him. Then routine blood work came back suspicious. Same markers. Same diagnosis. A different kind of fear.

In this episode of Life on Pause, Eliot shares what no one tells you about facing leukemia twice — and what it means to fight it the second time, when you already know how hard it is. He talks about the stem cell transplant that saved his life, the brother who made it possible, the bell he rang on the other side, and the trip to Costa Rica he'd been putting off for too long.

Eliot speaks honestly about the "not knowing" — the statistics, the survival rates, the questions he demanded answers to because he wasn't willing to be a passive patient. He talks about THON, Four Diamonds, and the full-circle moment of realizing the organization his sister fundraised for as a student became his lifeline as a patient. And he shares the philosophy he's carried out of the other side: don't wait. Don't be scared.

His story isn't about one diagnosis. It's about two — and everything that changed between them.

Thank you, Eliot, for sharing your story and your strength.

Topics Covered:

• Being diagnosed with acute lymphoblastic leukemia at age 20

• Life on a single hospital floor — confinement, coping, and small freedoms

• The relapse — facing the same diagnosis five years later

• The stem cell transplant and his brother Collin as the donor

• Self-advocacy and demanding to understand your own treatment

• THON and Four Diamonds — a full-circle community story

• Ringing the bell — the second time

• Life after cancer: Costa Rica, not waiting, taking it day by day

• What he'd tell the version of himself who was twenty and newly diagnosed

About Life on Pause:

Life on Pause is a podcast for and by young adults with cancer. Produced by Penn State Health's AYA Oncology Program, each episode is rooted in honest storytelling and community connection. Our content is reviewed by medical and psychosocial experts to ensure accuracy and care.

Join Our Community:

💻 Website: https://www.lifeonpausepodcast.com/

🎧 Subscribe on Spotify & Apple Podcasts

Content Warning: This episode contains discussions of cancer diagnosis, relapse, stem cell transplant, and the emotional weight of facing a life-threatening illness more than once.

THON 2025: Inside Penn State's 46-Hour Stand for Kids with Cancer

Tue, 03 Feb 2026 05:00:00 -0400

🎥 VIDEO EPISODE NOTE: This story was created for video and includes incredible visual moments from THON Weekend — from walking through Penn State's player cheer tunnel to experiencing the energy of 16,500 students in the Bryce Jordan Center. For the full experience, watch on YouTube: [LINK]

When Grace Schneider was diagnosed with B-cell leukemia in 2020, her family discovered something unexpected: Penn State's THON — the largest student-run philanthropy in the world, where students stand for 46 hours straight to support children fighting pediatric cancer.

This is their third year experiencing THON Weekend, and in this episode, we follow Grace's family through an incredible weekend of Family Explorers programs. Her father Ben reflects on how the compassion and caring of college students humbles him every year. Her brother Brooks shares what it means to "beat cancer along with my sister, even though I didn't have it." And young adult cancer survivor Eliot Dean describes the energy that feeds him each time he returns.

From touring Penn State's football facility and meeting players like Nicholas Singleton, to walking through the player cheer tunnel, to experiencing the 46-hour dance marathon at the Bryce Jordan Center — THON Weekend creates connections that last far beyond one weekend. Ben shares how both his kids now dream of attending Penn State and playing sports here, inspired by the college students who showed up for them.

Brooks talks about what it meant to support his sister through treatment — sending cards, texts saying "get well soon, keep fighting" — and how THON volunteers became his connection too. Eliot, who has been attending since 2016 despite his diagnosis at age 20 and relapse five years later, explains what "taking the long way around" really means when you're living with cancer.

Behind it all is Four Diamonds at Penn State Health Children's Hospital, which ensures families never receive a single bill for their child's cancer treatment. Since 1977, THON has raised over $254 million to cover every cost not paid by insurance — and the support extends far beyond finances.

This isn't just a story about a dance marathon. It's about community, hope, and what happens when 16,500 students decide to stand up for kids who can't.

Topics Covered:

What THON is and how the 46-hour dance marathon works
Family Explorers programs across Penn State's campus
The sibling perspective on childhood cancer ("I beat cancer too")
How THON inspires kids fighting cancer to dream bigger
Walking through Penn State football's player cheer tunnel
Meeting Penn State athletes and building lasting connections
What Four Diamonds covers beyond medical bills
How college students create community for cancer families
Living as a young adult cancer survivor and returning to THON year after year
Grace's journey from leukemia diagnosis to thriving today

About Life on Pause: Life on Pause is a podcast for and by young adults with cancer. Produced by Penn State Health's AYA Oncology Program and Four Diamonds, each episode is rooted in honest storytelling and community connection. Our content is reviewed by medical and psychosocial experts to ensure accuracy and care.

Join Our Community:

Website: https://www.lifeonpausepodcast.com/

Subscribe on Spotify & Apple Podcasts

Learn more about THON: https://thon.org

Four Diamonds: https://fourdiamonds.org

Featured Voices:

Ben Schneider - Father of Grace, diagnosed with B-cell leukemia in 2020
Brooks Schneider - Grace's brother, age 12
Eliot Dean - Young adult cancer survivor, THON attendee since 2016

Finding Your Voice After the Bell: A PhotoVoice Journey of Young Adult Cancer Survivors

Tue, 13 Jan 2026 05:00:00 -0400

What happens when treatment ends but the journey continues? For young adult cancer survivors, the ringing of the bell marks not an ending, but the beginning of something more complex — survivorship.

In this powerful episode of Life on Pause, five young women who participated in Penn State Health Children's Hospital's inaugural PhotoVoice project come together to share their experiences using photography to tell the stories they struggled to put into words. Facilitated by social worker Meredith Noel and art therapist Alexis Steefel, this program gave childhood cancer survivors a space to explore themes of impact, visibility, loss and found, time, and "here."

Monica Henderson (rhabdomyosarcoma, 20+ years post-treatment) shares how PhotoVoice helped her break decades of silence and honor "little Monica" who never got to share her story. Gabriela (Hodgkin's lymphoma, 4 years post-treatment) describes finding community after feeling isolated as the first in her family diagnosed with cancer. Shelly Bliss (Ewing's sarcoma, 11 years post-treatment) reflects on photographing her prosthetics as a powerful measure of time and healing.

From Monica's dish soap bubbles representing "visibly invisible" survivorship to Lily's peeling paint symbolizing layers of untold stories, each photograph became a window into experiences that too often go unspoken. The participants discuss the pressure to package their stories with "a pretty little bow," the struggle to own the term "survivor," and the transformative power of finally being heard and understood.

This isn't just a story about cancer — it's about sisterhood formed through shared truth, the courage to be vulnerable, and the healing that happens when survivors can tell their whole story, not just the inspirational parts.

Topics Covered:

The PhotoVoice methodology and five weekly themes (Impact, Visibility, Lost & Found, Time, Here)
Why survivors struggle to own their narratives and the term "survivor"
The gallery exhibition at Penn State Health and family reactions
Sibling dynamics, twin relationships, and invisible trauma
Survivor's guilt and the pressure to be grateful
Living with late effects and ongoing health challenges
The moment they decided to ring the bell together — on their own terms
How photography gave voice to what words couldn't express
Building a survivorship community for the future

Featured Participants:

Lily Montgomery (Host) - Acute lymphoblastic leukemia survivor
Monica Henderson - Rhabdomyosarcoma survivor, 26 years old
Gabriela (Gabby) - Hodgkin's lymphoma survivor, 21 years old
Shelly Bliss - Ewing's sarcoma survivor, 20 years old
Meredith Noel - Social Worker and PhotoVoice Program Facilitator

About Life on Pause: Life on Pause is a podcast for and by young adults with cancer. Produced by Penn State Health's AYA Oncology Program, each episode is rooted in honest storytelling and community connection. Our content is reviewed by medical and psychosocial experts to ensure accuracy and care.

Join Our Community:

💻 Website: https://www.lifeonpausepodcast.com/

🎧 Subscribe on Spotify & Apple Podcasts

Mind Over Matter: Health Maintenance After Cancer

Tue, 23 Dec 2025 05:00:00 -0400

What does health maintenance really mean when you're a young adult cancer survivor? Eliot and Hailey—both acute lymphoblastic leukemia (ALL) survivors—share the reality of life after treatment: checkups every six months, school accommodations for brain damage, mental health boundaries that weren't optional before, and learning which exercises won't break bones weakened by chemotherapy.

Recorded at Life Lion Emergency Services in Hershey, Pennsylvania, this episode draws a powerful parallel between maintaining emergency helicopters and maintaining your own health after cancer. Just like mechanics check every system before a helicopter flies, young adult survivors must maintain their mental health, physical health, reproductive health, and everything in between.

In this honest conversation, Eliot opens up about his journey through diagnosis at age 20, achieving remission, experiencing relapse, and receiving a life-saving bone marrow transplant from his brother. He shares how cancer taught him to "cut out the BS," pace himself, and recognize that slow and steady wins the race.

Hailey, diagnosed at 12 in February 2020 right before COVID lockdown, discusses living with brain damage from treatment—dead brain cells in two lobes that affect her memory, dexterity, and processing speed. Despite doctors telling her she's "performing too well for how damaged her brain is," she thrives using accommodations like dictation software and extended time. She shares the painful moment someone called her cancer diagnosis "just a break" from field hockey, and how she learned to set boundaries to protect her mental health.

Topics Covered:

• Redefining health maintenance after cancer (mental + physical)

• Setting boundaries to protect mental health post-treatment

• Living with treatment-related brain damage and school accommodations

• The "gray area" of young adult cancer—too old for pediatric, too young for adult care

• Cancer imposter syndrome: not looking "sick enough"

• Physical fitness adaptations (bad bones, limited dexterity, ongoing symptoms)

• Reproductive health challenges and Four Diamonds support

• Family support for ongoing medical appointments

• Finding community in the AYA cancer space

• How cancer sparked curiosity about oncology and neuroscience

About Life on Pause: Life on Pause is a podcast for and by young adults with cancer. Produced by Penn State Health's AYA Oncology Program, each episode is rooted in honest storytelling and community connection. Our content is reviewed by medical and psychosocial experts to ensure accuracy and care.

Join Our Community:

💻 Website: https://www.lifeonpausepodcast.com/

🎧 Subscribe on Spotify & Apple Podcasts

When Heroes Meet Heroes: Life Lion's Impact on Cancer Families

Thu, 11 Dec 2025 05:00:00 -0400

When a Life Lion flight nurse saves a teenager's life, he never expects to meet him again. Ten years later, that young man returns—not as a patient, but as a father—to say thank you.

Ten-year-old William, a leukemia survivor, discovers a new dream while exploring a Life Lion helicopter: "I may want to be a helicopter mechanic." Maria, a Wilms tumor survivor, remembers the kindness of her transport crew. And Lisa Kreider shares a stunning revelation: Life Lion saved her life sixteen years ago after a car accident—then saved her daughter Maria during cancer treatment.

But the emotional center belongs to Dan Schaeffer, Life Lion's Chief Flight Nurse. At a recent fundraiser, a young man approached him: "Thank you for taking care of me." Dan didn't recognize the face. Then came the moment: "I want to introduce you to my family and kids."

Ten years ago, Dan transported a seventeen-year-old with a traumatic brain injury. Today, that teenager is a father.

"You don't think about those things in the moment," Dan reflects. "That hit really home to me. This is what I do. This is why I do it."

This episode follows Four Diamonds families to Life Lion EMS Day, where the people doing the rescuing get to see what happened next. From Dexter McConnell, a pilot who flies in weather others turn down, to Matt Baily, who treats "the sickest of the sick"—this is a story about profound connections and the impact that ripples out in ways we can't imagine.

Topics Covered:

William's journey from leukemia patient to aspiring helicopter mechanic
Maria's Wilms tumor treatment and Life Lion transport
Lisa's revelation: two generations saved by the same team
Dan Shcaeffer's emotional reunion with a patient ten years later
The challenges of flying Life Lion: weather, training, and split-second decisions
Life Lion EMS Day: teaching kids that aircraft maintenance parallels their own healthcare
The "Life Lion Family" culture of support and camaraderie
Matt Baily's story of the Lancaster infant in cardiac arrest
Four Diamonds' role in removing financial burden for cancer families
How life-saving work ripples out in ways we can't imagine

Join Our Community: 💻 Website: https://www.lifeonpausepodcast.com/ 🎧 Subscribe on Spotify & Apple Podcasts

The Tape Job: How Cancer Taught Tony Campisi to Redefine Heaven

Fri, 28 Nov 2025 05:00:00 -0400

Tony Campisi, a two-time cancer survivor, shares a story about hockey, resilience, and discovering that heaven doesn't have to look the same to still be heaven.

Diagnosed with an astrocytoma tumor on his spinal cord at age four, Tony lost the use of his left side and had to learn to walk — and skate — all over again. Through what he thought was "just playing games" in physical therapy, Tony fought his way back to the ice. With the support of a coach who believed in him when others doubted, telling parents "Tony's the toughest kid out there," he returned to competitive hockey.

For seven years, Tony played. Then came senior year, 2021. As an eighteen-year-old high school senior, Tony started losing grip strength in his left hand. His coach began taping his hockey stick into his hand just so he could play — not too tight, not too loose, just enough to keep him in the game. A routine MRI revealed the devastating news: cancer had returned, with fluid compressing his cervical spine.

In this episode of Life on Pause, Tony reflects on facing treatment the second time with full awareness, using humor to get through six weeks of proton radiation at CHOP, and playing his final game of hockey with his stick literally taped to his hand. Four years cancer-free, Tony shares how he's finding new ways to stay close to his heaven — whether skating, driving the Zamboni, or dreaming of coaching the next kid who needs someone to believe in them.

From the profound wisdom of his Make-A-Wish revelation — that he would choose his cancer journey again because of who it made him — to the powerful metaphor of "the tape job," Tony's story reminds us that adaptation isn't defeat. It's strength.

Thank you, Tony, for sharing your story and your voice.

Topics Covered:

Tony's diagnosis with spinal cord astrocytoma at age four
Learning to walk and skate again through physical therapy
The power of mentorship and believing in young cancer survivors
Cancer recurrence during senior year of high school
The literal "tape job" that kept him playing
Treatment with humor: Austin Powers and laser beams
Playing his final hockey game
Finding new ways to stay connected to the game
The Make-A-Wish revelation: "I would still have it happen to me"
Redefining heaven when everything changes

Join Our Community: 💻 Website: https://www.lifeonpausepodcast.com/ 🎧 Subscribe on Spotify & Apple Podcasts

The Long Way Around: Living With Osteosarcoma at Age 12

Tue, 18 Nov 2025 05:00:00 -0400

At twelve years old, Ariana was living for sports — two softball teams, church basketball, and constant motion. Then her knees started hurting. What seemed like a sports injury turned into an osteosarcoma diagnosis that would change everything: her body, her childhood, and her understanding of what it means to advocate for yourself.

In this powerful episode of Life on Pause, Ariana shares what no one tells you about being diagnosed with cancer as a preteen. From losing her leg to amputation, to learning to walk again with a prosthetic, to navigating nine chest tubes and countless chemotherapy regimens — her story reveals the hidden costs of childhood cancer that go far beyond treatment.

Ariana speaks candidly about the things that disappeared: school days, sports, the simple freedom of going to the mall. She describes what she calls "taking the long way around" — renting out entire movie theaters, waiting four months for a prosthetic leg, canceling Make-A-Wish trips twice. But through it all, she discovered something powerful: her own voice.

Now living with ongoing tumors and daily pain, Ariana shares hard-won wisdom about speaking up for yourself in the medical system, the importance of support systems, and why she tells herself "I'm not sick" to keep going. Her story isn't about beating cancer — it's about living with it, honestly and bravely, one day at a time.

Thank you, Ariana, for sharing your story and your strength.

Topics Covered:

Being diagnosed with osteosarcoma at age 12
The immediate impact on school, sports, and childhood
Amputation and learning to walk with a prosthetic leg
Navigating multiple surgeries and chemotherapy regimens
Finding your voice and advocating for yourself as a young patient
Living with metastatic disease and chronic pain
The unpredictability of cancer treatment and planning for the future
Coping strategies and maintaining hope
What "taking the long way around" really means

Join Our Community: 💻 Website: https://www.lifeonpausepodcast.com/ 🎧 Subscribe on Spotify & Apple Podcasts

Content Warning: This episode contains discussions of surgery, amputation, cancer treatment, and chronic pain.

From Provider to Patient, Part 2: Karen Powell on Early Detection, Tough Choices, and Self-Advocacy

Wed, 29 Oct 2025 05:00:00 -0400

Karen Powell, a nurse practitioner at Memorial Sloan Kettering who specializes in breast cancer care, returns for Part 2 to share the night everything changed: her own diagnosis at age 39. A lifelong runner, healthy eater, and non-smoker with negative genetic testing, Karen was months away from her first routine mammogram when a quiet July evening—and a simple itch—led to a life-altering discovery.

In this episode of Life on Pause, Karen reflects on what it meant to go from provider to patient overnight, how she navigated treatment decisions with insider knowledge, and the choices that led her to a double mastectomy. She also explains the surprise of finding additional invasive lobular carcinoma on final pathology, why early detection matters, and how financial and systemic barriers make diagnostic care harder for many women. Finally, she shares how her diagnosis deepens her work with patients, her approach to reconstruction and nipple tattooing access, and her message about self-advocacy: listen to your body, and keep asking until you’re heard.

Topics Covered:

The July 29th discovery and immediate clinical next steps
Hearing “you have breast cancer” while in clinic
When and why she shares her story with patients
Choosing surgery: lumpectomy vs mastectomy vs bilateral mastectomy
Final pathology: invasive ductal + invasive lobular carcinoma
Support systems that actually help (and how friends can show up)
Boundaries at work: being a patient vs being a provider
Early detection, fear, and cost barriers (screening vs diagnostic)
Reconstruction and expanding access to nipple tattooing in-house
“Still the same mom”: confronting stigma and redefining survivorship

About Life on Pause:

Life on Pause is a podcast for and by young adults with cancer. Produced by Penn State Health’s AYA Oncology Program, each episode is rooted in honest storytelling and community connection. Content is reviewed by medical and psychosocial experts for accuracy and care.

Join Our Community:

💻 Website: https://www.lifeonpausepodcast.com/

🎧 Subscribe on Spotify & Apple Podcasts

Three Generations of Strength, Part 1: How Family Legacy Shaped a Nurse’s Journey

Fri, 24 Oct 2025 05:00:00 -0400

Karen Powell, a Penn State graduate and nurse practitioner at Memorial Sloan Kettering, shares a deeply personal story that spans three generations of women affected by breast cancer. Diagnosed herself at age 39, Karen’s path toward oncology began long before her own diagnosis — in the living rooms and hospital rooms of her childhood.

In this episode of Life on Pause, Karen reflects on how her grandmothers’ experiences with breast cancer shaped her sense of purpose, empathy, and resilience. One grandmother faced her diagnosis in the 1960s — a time when women couldn’t even sign their own surgical consent. The other delayed treatment to care for her husband, a choice that ended her life too soon but left Karen with a lifelong commitment to caring for others.

From growing up in a close-knit Philadelphia family to finding her calling in oncology nursing, Karen’s story reminds us that strength can be inherited — not just through DNA, but through love, courage, and compassion.

Thank you, Karen, for sharing your story and your voice.

Topics Covered:

Karen’s upbringing and education at Penn State
The legacy of her two grandmothers’ breast cancer experiences
How witnessing hospice care at age four inspired her calling
The emotional impact of caregiving and generational strength
Learning that cancer is a chapter — not the whole story

About Life on Pause:

Life on Pause is a podcast for and by young adults with cancer. Produced by Penn State Health’s AYA Oncology Program, each episode is rooted in honest storytelling and community connection. Our content is reviewed by medical and psychosocial experts to ensure accuracy and care.

Join Our Community:

💻 Website: https://www.lifeonpausepodcast.com/

🎧 Subscribe on Spotify & Apple Podcasts

Brave, Bold, Gold: Ariana & Tony Share Their Childhood Cancer Awareness Designs

Fri, 03 Oct 2025 05:00:00 -0400

Ariana McDonell and Tony Campisi share how they turned their childhood cancer journeys into powerful designs for Childhood Cancer Awareness Month.

At just 12 years old, Ariana entered a t-shirt design contest that became much more than an art project. Her design, chosen two years in a row, carries deep meaning: symbols of art and music therapy, friendships made in the hospital, and memories of Riley and Josh—friends she lost along the way.

Tony, diagnosed at age 4 and relapsing as a teenager, found his creative outlet in a sticker. Inspired by the gold ribbon and the phrase “Fight Like a Kid,” his design included a heart to symbolize the weight childhood cancer leaves on survivors and their families. Handing out his stickers at the clinic, Tony discovered how a small design could start meaningful conversations about awareness and survivorship.

Together, Ariana and Tony show us that Childhood Cancer Awareness Month is about more than ribbons—it’s about resilience, creativity, and carrying stories forward.

Topics Covered:

Ariana’s diagnosis and first design contest experience
The meaning behind Ariana’s ribbon symbols and honoring lost friends
Tony’s survivorship story and inspiration for his sticker design
How simple designs spark conversations and spread awareness
The reality of life after childhood cancer
Creativity as a form of healing and resilience

About Life on Pause:

Life on Pause is a podcast for and by young adults with cancer. Produced by Penn State Health’s AYA Oncology Program, each episode is rooted in honest storytelling and community connection. Our content is reviewed by medical and psychosocial experts to ensure accuracy and care.

Join Our Community:

💻 Website: https://www.lifeonpausepodcast.com/

🎧 Subscribe on Spotify & Apple Podcasts

A Taste of Independence: Cooking Up Confidence After Cancer

Tue, 16 Sep 2025 05:00:00 -0400

Taylor, Eliot, Shelly, and Tony share how something as simple as a cooking class can spark confidence, connection, and independence after cancer. Hosted at Zest! Cooking School in Lititz, Pennsylvania, this Life on Pause event brought young adult cancer survivors together to learn new skills, share a meal, and reflect on how small steps can lead to big empowerment.

For Taylor, cooking became a pathway to independence, showing how even intimidating tasks like making pasta from scratch can be broken down into manageable steps. Eliot discovered the comfort of connecting with peers who truly understand the cancer journey. Shelly shared how food was a lifeline during hospital stays, and how tonight’s class brought her full circle into healing and joy. And for Tony, it was about fun, friendship, and the satisfaction of creating something rewarding with his own hands.

This is a story of resilience, self-discovery, and the simple yet powerful ways young adults living with cancer reclaim their independence.

Topics Covered:

Taylor on finding confidence through cooking and independence
Eliot on the comfort of sharing experiences with peers
Shelly on food as both a hospital lifeline and a healing joy
Tony on fun, empowerment, and new friendships
How small skills can build independence after cancer
The role of community in young adult survivorship

About Life on Pause:

Life on Pause is a podcast for and by young adults with cancer. Produced by Penn State Health’s AYA Oncology Program, each episode is rooted in honest storytelling and community connection. Our content is reviewed by medical and psychosocial experts to ensure accuracy and care.

Join Our Community:

💻 Website: https://www.lifeonpausepodcast.com/

🎧 Subscribe on Spotify & Apple Podcasts

💙 Learn more about Four Diamonds: https://www.fourdiamonds.org

God Didn’t Give Me Cancer—But He Didn’t Stop It Either: Robyn’s Story

Tue, 12 Aug 2025 05:00:00 -0400

Robyn, a 21-year-old from Lancaster County, was diagnosed with T-cell acute lymphoblastic leukemia during her second year of college. What started as what she thought were boils and cold symptoms quickly turned into a life-changing diagnosis—and a moment of decision.

In this episode of Life on Pause, Robyn reflects on her experience as a young adult caught between pediatric and adult care systems. After choosing to be treated in the pediatric oncology unit—supported by the Four Diamonds program—she found more than medical treatment. She found spiritual resilience, emotional healing, and a deeper trust in her faith.

Robyn shares how she wrestled with anger, questioned God’s role in her suffering, and eventually came to see her diagnosis as preparation—not punishment. Her story is honest, hopeful, and rooted in her belief that even the darkest moments can be used for something greater.

Topics Covered:

Robyn’s diagnosis with T-cell acute lymphoblastic leukemia
Choosing between pediatric and adult cancer care
The emotional impact of a sudden life interruption in college
How Four Diamonds support influenced her decision
Processing anger, control, and spiritual doubt
The power of prayer and divine timing in her treatment journey
Navigating fertility conversations at age 20
Robyn’s return to ministry, family, and planning for the future
Sharing her story to help others find purpose in pain

About Life on Pause:

Join Our Community:

💻 Website: https://www.lifeonpausepodcast.com/

🎧 Subscribe on Spotify & Apple Podcasts

💙 Learn more about Hoofbeat Haven: https://www.fourdiamonds.org

Healing Through Hoofbeats: Paige’s Story of Strength and Therapeutic Horsemanship

Tue, 22 Jul 2025 05:00:00 -0400

Paige, a 15-year-old from Pennsylvania, was diagnosed with Burkitt’s leukemia at stage 3. After spending seven months in the hospital undergoing intensive treatment, she found herself withdrawn and unsure—until she met a horse named Tank.

In this episode of Life on Pause, we follow Paige’s six-week journey through Hoofbeat Haven, a therapeutic horsemanship program at Bridlepath Equine Center created in partnership with Four Diamonds. Designed specifically for childhood cancer survivors, the program offers more than just riding—it’s a full-body and emotional healing experience rooted in teamwork, trust, and the powerful connection between horse and human.

With the support of her peers, volunteers, and the Bridlepath team, Paige transitions from participant to leader, and eventually, to volunteer. Her story is one of rebuilding—confidence, connection, and joy—in the most unexpected place: a barn.

Topics Covered:

Paige’s diagnosis of stage 3 Burkitt’s leukemia
Emotional recovery after a seven-month hospital stay
The healing power of therapeutic horsemanship
Bridlepath Equine Center and the Hoofbeat Haven program
Reconnecting with animals, peers, and purpose
Paige’s transformation from quiet participant to confident leader
How equine care and riding build emotional and physical strength
The impact of support from Four Diamonds and Danielle’s team

About Life on Pause:

Join Our Community:

💻 Website: https://www.lifeonpausepodcast.com/

🎧 Subscribe on Spotify & Apple Podcasts

💙 Learn more about Hoofbeat Haven: https://www.fourdiamonds.org

🌐 Visit Bridlepath Equine Center: https://www.bridlepathequinecenter.org/

Cancer Camp Changed My Life: AYA Survivors Share the Power of Connection

Tue, 01 Jul 2025 05:00:00 -0400

Emma, Lucas, Ariana, and Casey open up about what it’s really like to attend a cancer camp as a young adult. From fears about fitting in to late-night laughs and life-changing conversations, they share the moments that made them feel seen, safe, and supported.

In this episode of Life on Pause, our guests reflect on their camp experiences—from nervous airport goodbyes to karaoke nights that ran long into the evening. These oncology camps, designed specifically for adolescents and young adults, offer more than just fun—they provide a rare space for healing, connection, and joy after cancer.

For anyone wondering if camp is worth it, this episode says: absolutely. Because sometimes the most meaningful healing happens outside the hospital, around a campfire.

Topics Covered:

First impressions: fear, nerves, and leaving home
How camps break the ice and build instant bonds
Transformative moments like skits, boat rides, and fireside chats
Deep conversations and emotional breakthroughs
Lasting friendships and group chats that live on
Advice for anyone nervous about going
Why camp felt like getting “life back” after treatment

About Life on Pause:

Join Our Community:

💻 Website: https://www.lifeonpausepodcast.com/

🎧 Subscribe on Spotify & Apple Podcasts

Mason’s Mission: Fighting Cancer Across Continents

Tue, 10 Jun 2025 05:00:00 -0400

Mason, a 21-year-old from Iran, shares his remarkable story of fighting neuroblastoma for more than a decade. Diagnosed at age 7, Mason has faced multiple relapses, treatment resistance, and devastating setbacks—including the moment his doctors told him they could do no more.

In this episode of Life on Pause, Mason reflects on his decision to take his story global, sending his case to over 100 cancer centers in search of a second chance. That chance came through Dr. Giselle Sholler and a new treatment called DFMO. Mason traveled alone to the U.S. for care, where he found not only hope, but a home at the Ronald McDonald House in Hershey, Pennsylvania.

This is a story of persistence, global courage, and doing everything you can—especially when the odds are stacked against you. Thank you, Mason, for sharing your voice and your strength.

Topics Covered:

Diagnosis at age 7 and multiple relapses
The emotional weight of being told "there’s nothing more we can do"
How he sent his story to over 100 cancer centers
Discovering DFMO and connecting with Dr. Giselle Sholler
Receiving treatment far from home, alone
Life at Ronald McDonald House and finding a support system
What it means to “do your best” when facing uncertainty

About Life on Pause:

Join Our Community:

💻 Website: https://www.lifeonpausepodcast.com/

🎧 Subscribe on Spotify & Apple Podcasts

Drawing Through the Darkness: Maya’s Story of Art & Healing

Fri, 30 May 2025 05:00:00 -0400

Maya, a young cancer patient and gifted artist, shares how drawing became her outlet during treatment for acute myeloid leukemia. Inspired by animator Vivienne Medrano, Maya dove into digital art to escape the fear and isolation of hospital life. Now, she's setting her sights on SVA in NYC with hopes of turning her pain into powerful animation.

In this episode of Life on Pause, Maya discusses:

🎨 Learning to draw from YouTube & Reels

🧠 How art helped her through depression

💻 Her go-to tools for digital creativity

💫 Her dreams of becoming an animator

This episode is a reminder that art can be a lifeline, even in the darkest moments.

About Life on Pause:

Join Our Community:

💻 Website: https://www.lifeonpausepodcast.com/

🎧 Subscribe on Spotify & Apple Podcasts

“I Thought I Was Dying” – Maya on Cancer, Panic Attacks, and Finding Hope

Fri, 09 May 2025 05:00:00 -0400

Maya, a 15-year-old high school student, shares the deeply personal story of how her childhood fear of getting cancer became real. Diagnosed with acute myeloid leukemia (AML), she takes us through the moment she first felt symptoms, her terrifying ER experience, and how the diagnosis changed everything.

In this episode of Life on Pause, Maya also opens up about her lifelong struggle with anxiety and depression, how cancer affected her entire family—including her dog—and why mental health care has been just as important as physical treatment. Her honesty, resilience, and wit shine through, even as she prepares for a bone marrow transplant and a long recovery ahead.

This is a story of vulnerability, survival, and strength. Thank you, Maya, for sharing your truth.

Topics Covered:

First symptoms & the misdiagnosis that delayed her care
What it feels like to be told you have leukemia at 15
Struggles with panic attacks and mental health
Navigating family stress during treatment
Living in isolation and the healing power of pets
Rebuilding strength while preparing for transplant

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Preserving Parenthood: Fertility Options for Young Cancer Patients

Tue, 06 May 2025 05:00:00 -0400

In this episode of Life on Pause, we explore a critical—but often overlooked—aspect of cancer care: fertility preservation. Joined by Dr. Mindy Christianson, a national expert in reproductive endocrinology from the Cleveland Clinic, and Shanan Vanatta, the Fertility Preservation Coordinator at Penn State Health, we take a closer look at the options available to preserve fertility before cancer treatment begins.

You’ll hear honest conversations about:

Freezing eggs, sperm, or reproductive tissue before treatment
The emotional role parents often play in fertility decisions
Common barriers like treatment delays and financial costs
Fertility preservation options for prepubescent children
Long-term outcomes and evolving family-building paths

Whether you’re a patient, parent, or provider, this conversation offers clarity, compassion, and critical insights to help make informed decisions during an overwhelming time.

💬 Join us as we bring awareness to fertility preservation during National Infertility Awareness Week—and give voice to the future families made possible through early intervention.

Finding Strength in Support: Young Adults on Cancer, Community, and Coming Back Stronger

Tue, 01 Apr 2025 05:00:00 -0400

In this episode of Life on Pause, young adult cancer survivors open up about the incredible power of support systems. From family and friends to classmates, coworkers, and even strangers, our guests share how they leaned on their communities—both online and offline—through diagnosis, treatment, and survivorship.

You’ll hear honest stories of:

Facing cancer far from home
Learning to ask for help
Navigating work and education post-treatment
Discovering unexpected empathy from roommates, bosses, and even neighbors
Advocating for others after remission

Whether you're in treatment, supporting someone who is, or just seeking real stories of resilience, this conversation is for you.

💬 Join us as we explore what it means to find strength in vulnerability and redefine support on your own terms.

Navigating Cancer’s Impact on Education & Career Paths

Tue, 18 Mar 2025 05:00:00 -0400

How does a cancer diagnosis impact education and career aspirations? In this episode of Life on Pause, seven young adult cancer survivors share their personal experiences of having their lives disrupted by cancer during pivotal academic and professional moments. From reimagining career paths to navigating education with ongoing treatment, their stories highlight resilience, adaptation, and newfound purpose.

Join us as we discuss the challenges of pausing life for treatment, the uncertainty of returning to school and work, and the surprising ways survivorship reshapes ambitions. Whether you’re a student, professional, or caregiver, this candid conversation offers invaluable insights into the intersection of cancer, education, and vocation.

Tune in and subscribe to Life on Pause for more real stories from young adult cancer survivors.

🎧 Available on Spotify, Apple Podcasts, and wherever you listen to podcasts.

Educational and occupational aspirations of adolescent and young adult cancer survivors: a qualitative analysis:

https://pubmed.ncbi.nlm.nih.gov/39105828/

Participants:

USC - Olivia Brown, diagnosed at 25

USC – Jared Lipscomb, diagnosed at 31

USC – Quincy Wallen, diagnosed at 31

USC – Xixi Hu, diagnosed at 34

PSH – Taylor Mahoney, diagnosed at 12

PSH – Bailey Unterkofler, diagnosed at 17

PSH – Shelly Bliss, diagnosed at 9

Cancer, Weight Changes, and Self-Image: A Survivor’s Perspective

Tue, 26 Nov 2024 05:00:00 -0400

In this candid bonus episode of Life on Pause, young adults share their personal experiences with body image during and after cancer treatment. Through heartfelt stories, they explore the challenges of rapid weight changes, self-perception, and the emotional impact of visible scars. As they recount experiences with weight loss, steroids, and the constant battle with self-image, they reveal how cancer affects not only health but also one's sense of identity. Join us as we discuss the nuances of body image issues, the struggles for control, and the societal pressures that survivors often face in remission.

Unforgettable Smells: Cancer Survivors Share Sensory Triggers

Tue, 19 Nov 2024 05:00:00 -0400

In this bonus episode of Life on Pause, young adult cancer survivors open up about the powerful sensory triggers that bring back memories of their cancer treatment. From the sharp scent of hand sanitizer to the saline flushes that evoke a distinct taste, these triggers linger long after treatment. Hosted by Corene Parrish, the conversation delves into how specific smells, sounds, and tastes impact each person’s experience and recovery journey. Tune in to hear how these sensory memories shape their lives and learn why something as simple as a scent can be so evocative for those touched by cancer.

Sweet and Salty: How Cancer Changes Your Relationship with Food

Tue, 12 Nov 2024 05:00:00 -0400

In this heartfelt episode of Life on Pause, Corene Parrish and a group of young adult cancer survivors gather to explore the complex relationship between food and cancer. Reflecting on life before, during, and after treatment, they discuss the surprising ways cancer impacted their cravings, taste preferences, and emotional connections with food. From cravings for indulgent foods to the bittersweet memories linked to specific dishes, the group shares personal stories, struggles with food aversions, and the comfort they found in certain meals. They also discuss the challenges of dietary restrictions during treatment and the importance of savoring life’s flavors post-cancer. Whether you’re a survivor or someone looking to understand the cancer journey better, join us for a conversation that’s equal parts sweet, salty, and empowering.

Survivorship Clinics: Facing the Long-Term Side Effects of Cancer

Tue, 29 Oct 2024 05:00:00 -0400

Surviving cancer is only the beginning of the journey. In this episode of Life on Pause, Nathan Smelser, Corene Parrish, and Sammy Szurkowski dive into the emotional and practical challenges of navigating life after cancer. From the overwhelming amount of medical information shared during survivorship clinics to the long-term side effects that surface years later, they reflect on the ups and downs of post-cancer care. Whether it's about learning to manage lingering health risks or finding support in unexpected places, this episode highlights the importance of survivorship programs and shared experiences. Join us for an honest conversation about what it means to be responsible for your own care long after the battle with cancer is over.

Don't forget to like, subscribe, and follow us on YouTube, Spotify, or wherever you get your podcasts!

0:00 - Survivorship Clinic: First Impressions

0:35 - Understanding Long-Term Side Effects

1:19 - Emotional Transition Post-Cancer

2:04 - The Value of Survivorship Resources

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The Real and Raw Side of Friendships During Cancer

Tue, 22 Oct 2024 05:00:00 -0400

Navigating a cancer diagnosis as a teenager is challenging, but the support of friends can make a world of difference. In this episode of Life on Pause, we hear personal stories from Corene Parrish, Nathan Smelsar, and Sammy Szurkowski, who share how their friend groups responded during their cancer journeys. From high school drama to unwavering support, they reflect on the powerful role that community played in their lives. Tune in to hear about moments of strength, friendship, and resilience, as well as the challenges of coping with illness at a young age.

Don't forget to like, subscribe, and follow us on YouTube, Spotify, or wherever you get your podcasts!

0:00 - How Friends Supported Me Through Cancer

1:45 - Dealing with High School Drama During Treatment

3:00 - Hospital Stays and Finding Comfort in Small Things

4:24 - Losing a Friend to Cancer Before My Diagnosis

5:29 - Community and Friends Rallying Around Me

7:03 - Fundraisers and Overwhelming Support

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Real Stories of Young Cancer Survivors: Balancing School and Treatment

Tue, 15 Oct 2024 05:00:00 -0400

Returning to school after a cancer diagnosis can be an overwhelming challenge, filled with unique hurdles and unexpected moments. In this episode of Life On Pause, young adult cancer survivors Sammy, Nathan, and Corene share their personal stories of navigating the educational landscape during and after their treatments. From missed school days to balancing social lives, these survivors open up about the emotional and physical obstacles they faced, and how cancer shaped their academic paths. Tune in to hear their candid reflections on dealing with teachers, peers, and the unexpected lessons that come with a life-changing diagnosis. Whether you're a student, educator, or cancer survivor, this episode offers heartfelt insights into the realities of balancing school and survivorship.

Don't forget to like, subscribe, and follow us on YouTube, Spotify, or wherever you get your podcasts!

00:00 - Introduction: Cancer and School Challenges

01:16 - Diagnosed with Cancer in High School and College

06:11 - Telling Friends and Teachers About Cancer

15:06 - Navigating College During Cancer Treatment

17:45 - Career and Life Changes After Cancer

31:41 - Emotional and Physical Challenges After Cancer

52:53 - Changed Perspectives After Surviving Cancer

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Exploring Family Planning After Cancer: Joe Apgar’s Adoption Journey

Fri, 30 Aug 2024 05:00:00 -0400

In this compelling episode of "Life on Pause," host Jill Robertson sits down with Joe Apgar, a cancer survivor and CEO of Pelotonia, to explore the deeply personal journey of family planning after a cancer diagnosis. Joe shares his and his wife’s decision to pursue adoption following his battle with testicular cancer and the challenges they faced along the way. From discussing the emotional complexities of adoption to the importance of open communication with birth parents, Joe offers invaluable insights for anyone navigating the delicate balance of building a family after a life-altering health experience. Whether you're considering adoption or simply seeking inspiration, this episode is a powerful testament to resilience, love, and the many ways families are created.

Don't forget to like, subscribe, and follow us on YouTube, Spotify, or wherever you get your podcasts!

0:00 - Introduction to Joe Apgar

2:03 - Joe’s Journey to Fatherhood

5:13 - Choosing Adoption

9:59 - Adoption Process: Challenges and Insights

14:34 - Navigating the Adoption Paperwork

17:24 - Financial Considerations and Support

22:43 - Building Relationships Through Open Adoption

26:06 - Parenting After Cancer

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#cancerandfertility #adoptionaftercancer #adoptionresourcesforcancersurvivors

Infertility After Cancer: Reflections on Parenthood and Life

Thu, 29 Aug 2024 05:00:00 -0400

In this poignant episode of Life on Pause, hosts Corene Parrish and Jill Robertson dive into the complex and emotional journey of navigating infertility, especially in the wake of a cancer diagnosis. Corene shares her personal experiences as both a cancer survivor and someone facing infertility, reflecting on how these challenges have shaped her perspectives on parenthood and life. The conversation touches on the biological drive to become a parent, the impact of early life experiences on future parenting, and the delicate balance of nature versus nurture. They also explore how life-altering experiences like cancer can influence one's approach to raising children, whether through biological means, adoption, or simply nurturing the lives of others in meaningful ways.

Tune in to hear a candid discussion that offers comfort, insight, and hope to anyone grappling with infertility or the aftermath of a serious illness. Whether you’re a cancer survivor, dealing with infertility, or simply interested in understanding these sensitive issues, this episode provides valuable perspectives and a sense of community.

Watch now and don't forget to like, subscribe, and share this video to help others who may benefit from this conversation.

0:00 - Discussing Infertility and Cancer

1:20 - Corene's Childhood Dreams of Motherhood

2:16 - Impact of Infertility on the Desire to Parent

3:30 - Nature vs. Nurture in Parenting

4:28 - Cancer's Influence on Parenting Philosophy

6:02 - The Unpredictable Journey of Parenthood

7:27 - Reflections on Life Beyond Parenthood

______________________________________________________________

#cancerandfertility #cancerreoveryandfertility #Cancerpatientfertilityadvice

Dealing with Infertility & Cancer: A Survivor’s Perspective

Wed, 28 Aug 2024 05:00:00 -0400

In this heartfelt episode of Life on Pause, Corene Parrish shares her personal journey of managing life after being diagnosed with Hodgkin's Lymphoma at the age of 16. Join Corene and Jill Robertson as they discuss the emotional challenges of dealing with cancer, infertility, and the struggle to maintain control in the face of overwhelming circumstances. Corene offers deep insights into how her experiences have shaped her self-perception, the importance of self-compassion, and the ways she finds strength through her support system, music, and fitness. This episode is a must-watch for anyone facing similar challenges or seeking inspiration on how to cope with life’s unexpected hurdles.

0:00 - Corene’s Cancer Diagnosis and Webinar Recap

1:11 - Impact of Cancer on Self-Identity

2:03 - Struggles with Control and Infertility

3:28 - Support Systems and Coping Mechanisms

5:04 - Body Image and Exercise Post-Diagnosis

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#fertilityaftercancertreatment #livingwithcancer #cancerandfertility

Exploring Fertility Preservation During Cancer Treatment: Expert Insights from Penn State Health

Tue, 27 Aug 2024 05:00:00 -0400

In this episode of "Life on Pause," host Jill Robertson sits down with Dr. Stephanie Estes, a fertility specialist at Penn State Health, to explore the complex intersection of cancer treatment and fertility preservation. Building on the recent webinar "Cancer and Blood Disorders: When Disease Treatment Pushes Fertility and Family Planning Decisions to the Forefront in Adolescents and Young Adults," this discussion provides valuable information for those facing infertility due to cancer or other blood disorders.

Dr. Estes explains the options available for both males and females, covering sperm and egg freezing, genetic testing, and innovative procedures like ovarian tissue preservation. Whether you are a patient, caregiver, or healthcare professional, this conversation sheds light on the importance of early fertility discussions and the options available to ensure future family planning possibilities.

Don't forget to subscribe to "Life on Pause" for more episodes that address the unique challenges faced by adolescents and young adults dealing with serious health conditions.

0:00 - Introduction and Webinar Overview

0:53 - Fertility Preservation Options Explained

4:58 - Sperm and Egg Freezing Processes

9:28 - Genetic Testing and Sickle Cell Considerations

13:35 - Post-Cancer Fertility and Insurance Coverage

18:23 - Advances in Fertility Medicine and Future Options

20:01 - Final Thoughts and Advocacy Tips

_______________________________________________________________

#cancerandfertility #fertilitypreservation #optionsforfertilityaftercancer

Rising Above: Stories of Resilience from Young Cancer Survivors

Tue, 02 Jul 2024 05:00:00 -0400

In this inspiring episode of Life On Pause, join host Emma G as she celebrates the resilience and triumphs of young cancer survivors at the Four Diamond Graduation Party. Hear from Tucker Haas, a four-time cancer survivor turned motivational speaker; Juval Green, a high school student and aspiring college athlete; and Carmen Guzman, a recent Penn State graduate and childhood cancer survivor. Each guest shares their unique journey of overcoming medical trauma, navigating educational challenges, and finding purpose beyond their cancer diagnoses. Discover the power of resilience, the importance of community, and the strength found in self-belief as these remarkable individuals reflect on their past and envision their future.

Lessons Learned

Tue, 18 Apr 2023 00:15:00 -0400

People experience many impactful lessons throughout young adulthood. Although a cancer diagnosis can change a young adult's life trajectory, it also provides learning opportunities and influential experiences. These lessons learned throughout a young adult's cancer experience can contribute to shaping their life journey and forming the person they become.

Life on Pause is a podcast created by and for young adults living with cancer. In this episode, our speakers discuss the lessons learned from their cancer experience and their experiences as members of the Life on Pause community. Together, they share their thoughts and memories about the lessons learned from having cancer and the lessons they continue to learn today.

Lessons Learned from Life On Pause (0:08)

On this episode of Life On Pause, our hosts and guest speakers share their thoughts regarding lessons learned from participating in the podcast and experiencing the cancer journey as a whole. The show begins with an email written by recurring guest Taylor sharing her experience with the podcast, followed by the episode’s present speakers introducing themselves and weighing in with their thoughts about how the series has impacted them.

First lessons from a cancer diagnosis (10:08)

The cancer journey begins with a diagnosis, followed by many different experiences of cancer treatments, symptoms, and other health events. From coping with humor to expecting the unexpected, today's guest speakers share the first lessons they learned as their cancer stories began and how they carried it with them throughout their treatment and until now.

Learning, Kicking, and Screaming (16:35)

The next theme of the episode surrounds the cancer lessons our guests learned while kicking and screaming. Today's speakers share the tough lessons that made them miserable -- but were a necessary or unavoidable part of their cancer journeys. Listen as they describe experiences that taught them appreciation, humility, and patience during difficult hours.

Constant Journeys and Lessons (19:04)

Even when treatment is over, cancer can continue to teach lessons. Today's speakers share the cancer lessons that they are still learning today. Together they share some of their own stories about the lessons learned and relearned regarding themes like accepting things they cannot change, relinquishing control, and pondering the universal meaning of life.

The Social Strangeness of Cancer (26:04)

Cancer becomes a regular part of life for those who experience it. But for others, the topic of cancer can still be a touchy one. Throughout both childhood and adulthood, conversations about cancer still carry heaviness and can be challenging to handle. The episode's speakers share their thoughts on the social awkwardness surrounding the subject of cancer and how they navigate conversations and interactions where cancer is discussed.

The Life On Pause Community (34:03)

Life On Pause started as a project to help young adults with cancer interact, share their stories, and form impactful memories. Although the podcast's speakers came together throughout different stages of their cancer journeys, the show became a helpful resource to those experiencing cancer and everything that comes with it. The show concludes with guests sharing their appreciation for the Life On Pause hosts as well as the podcast's community as a whole.

Forced Realities and Choices

Tue, 21 Mar 2023 00:15:00 -0400

Experiencing a serious health event, like a cancer diagnosis, can change a person's priorities, decisions, and overall life path. Young adults with cancer experience different obstacles as they undergo uncontrollable life changes due to their diagnosis and treatment. So how can young adults continue to move forward with cancer influencing their decisions and life trajectory?

Life on Pause is a podcast created by and for young adults living with cancer. In this episode, our speakers discuss the forced realities and changes that come with cancer. Together, they speak on their encounters dealing with the inevitable aspects of their cancer experiences and how those factors continue to influence them today. Listen in to hear these young adults share stories about living and coping with the parts of the cancer journey that were beyond their control.

The forced realities of cancer treatment (0:08)

When people are diagnosed with cancer, their lives can change significantly. Suddenly health becomes your top priority above all else, and you must live your life around the purpose of getting better. This episode of Life on Pause begins with a discussion of the forced realities that cancer patients must accept when in treatment. The special guests introduce themselves and share their experiences with the forced realities of cancer treatment and the things they have lost control over due to their cancer diagnosis.

Advice vs. Choice (9:42)

Young adulthood can be an exciting time for people to venture out into the world and take the reins of life into their own hands. But, of course, this can mean choosing not to listen to or follow guidance from authority figures. Within this segment of the show, our speakers share their examples and insight on how this applies to their lives as young adults with cancer.

Privacy and treatment (14:47)

Cancer can bring many changes to people's physical appearance that are hard to ignore. While some friends and relatives may wish to ask about these health changes out of concern, it can feel like a loss of privacy for cancer treatment patients. Handling unsolicited comments and questions about personal health matters can be uncomfortable, but for our guest speakers, it is just another part of life brought on by their diagnosis. Listen as they share their thoughts on how the loss of privacy is a new forced feature of their lives throughout their cancer journey.

Feeling obligated to share your story (24:57)

Experiencing a significant health event can attract attention and curiosity from others. But with health being such a personal subject, questions and discussions surrounding a cancer diagnosis can feel uncomfortable and disrespectful to the patient's privacy. Guest speakers discuss their experiences with the societal pressures of feeling obligated to be open about their experiences. They also discuss how they navigate tough subjects and honesty when speaking about their health to others and the responsibility of "putting on a brave face" for other people's comfort.

How Cancer Experience Shapes Decisions (32:43)

When experiencing cancer treatments, patients dedicate their focus and actions toward their health recovery. But after the treatments end, how do patients move forward when their health is no longer in critical condition? When the fear for their health no longer dictates their decisions, young adults with cancer must relearn how to function and make choices for their personal life progression. Our speakers discuss how the choices that they made during and after treatment were influenced by their cancer diagnosis. They also discuss how their cancer experience has shaped the choices that they make now and how they push themselves to make choices and pursue the right path for their well-being.

Working With the Nervous System (42:11)

A person's nervous system functions to support and protect them. However, the nervous systems of young adults with cancer may react differently as a result of their treatments. And while these people may recognize that they have choices, their cancer experience still informs their decisions. As a result, they may feel uncomfortable taking even smaller risks and approach situations from a place of caution. Today's speakers discuss how their cancer experience has influenced their life choices and stepping outside their comfort zones.

Life After Treatment (47:41)

Once cancer treatment ends, the cancer journey continues. For people who have experienced it, cancer becomes an ongoing consideration even after their recovery. Their health thought processes, and overall lives have been flavored by your cancer experience. The podcast guests discuss their views on how cancer "never ends" and what this continuation means concerning how they will continue to live their lives moving forward. Finally, they discuss how their cancer has impacted their ability to relate to others and feel understood.

The Many Sides of Fear

Tue, 21 Feb 2023 00:15:00 -0400

Everyone has fears that develop and change throughout their life. However, significant health events like a cancer diagnosis can simultaneously alter many aspects of life as they reveal a new set of potential outcomes - and concerns. So how do young people impacted by cancer cope with the fears brought on by their diagnosis?

Life on Pause is a podcast created by and for young adults living with cancer. In this episode, our speakers explore the fears experienced by young adults with cancer. Together, they cover how their fears have transformed due to their cancer and reflect on the differences in their concerns before, during, and after treatment. Listen as these young adults open up about the feelings of struggle and triumph brought on by their health journeys and the emotional experience of living with cancer.

How Do We Rationalize Our Fears? (00:30)

This episode begins with host Corrine discussing fear and its purpose as a defense mechanism to protect us from danger. Our speakers share how they rationalize their fears as young adults with cancer. Listen as speakers introduce themselves and share their personal stories regarding the concern they have experienced throughout their diagnosis.

Fears Then and Now (4:15)

The time before and after experiencing a cancer diagnosis can feel like two separate lives, as cancer changes people's lives to reveal new circumstances, anxieties, and fears. Corrine and the guest speakers discuss their most significant concerns before their diagnoses and what they think about these fears as they look back on them today.

Facing Fears After Diagnosis (11:13)

A cancer diagnosis can conjure fears of the unknown as new patients consider the long and risky health journeys ahead. Our podcast speakers discuss the thoughts that came to mind when they first received their cancer diagnosis and how they coped with the fears surrounding this significant life event.

Fears Moving Forward (21:08)

After discussing the fears that our speakers experienced before and during their cancer diagnosis, they now look toward the future. Corrine and the speakers discuss what they fear now moving forward, including future failure, how cancer has impacted their lives, cancer relapses, and other concerns.

Courage Through Cancer (36:35)

Susan David said, “Courage is not the absence of fear, but fear walking.” To be able to progress, people must be brave and continue moving forward regardless of their fears. Our podcast guests discuss how their fear has given them courage and how they persist through their fears to continue living their lives one day at a time.

Looking Back To Look Forward

Tue, 24 Jan 2023 00:15:00 -0400

Those impacted by cancer gain strength and resiliency from their experiences, which carry them from year to year and remain present throughout their lifetimes. As we enter a new year, reflecting on the past can help us recognize and appreciate the lessons that will stick with us and guide us in the future.

Life on Pause is a podcast created by and for young adults living with cancer. In this end-of-the-year podcast episode, our speakers welcome 2023 by taking a look back on 2023. Part of knowing where you are going is knowing where you are coming from, so listen as our guest speakers share the impactful and transformative experiences from their past years. Thank you for tuning into our last podcast of the year, and we look forward to you joining us as we release new episodes in 2023.

Introductions and Reflections (0:26)

Our host Corene kicks off this episode by asking the guest speakers about the most significant lesson they learned in 2022. Guests Taylor, Kasara, Corene, Tony, and Hailey each reflect on their experiences over the previous year regarding their health, growing up, life with cancer, and the wisdom they gained along the way.

A Message in Hindsight (5:07)

While the new year brings promises of change and transformation, for young adults with cancer, their health journey will always remain a present theme throughout their lives. Corene asks guests to describe the one thing they would choose to tell themselves at the beginning of their cancer experiences. From words of reassurance to advice and encouragement, our speakers discuss the messages they would give their past selves, knowing all they know now.

2022 Highs and Lows (8:59)

Throughout the course of a year, everyone has their hits and misses. This is a part of life, and the positive and negative experiences we face help us grow along the way. Our guest speakers discuss their own highs and lows from 2022, sharing transformative stories surrounding cancer journeys, moments of realization, and personal life experiences.

Resolutions and Goals for 2023 (16:16)

Looking toward the future can allow us to form positive resolutions and changes to strive for. Our guests discuss what they expect of their upcoming years and the things they hope to improve on and accomplish going forward. Additionally, they discuss life milestones, the personal pressures and fears that come with aging, and the misconceptions surrounding entering your thirties.

Not Forgotten (21:26)

For young adults with cancer, the ever-present aspect of their diagnosis eventually becomes a normalized part of their life. Corene discusses how cancer has become such a consistent theme in her life that she sometimes forgets she has it, whereas other times, it is at the forefront of her mind. She and the guest speakers discuss the experiences and lessons they will never forget regarding their cancer journeys.

Lifelong Mantras (36:09)

Regardless of how someone is impacted by cancer or how they live their lives, everyone has their own guiding principles that help them navigate through life. To wrap up the episode, Corene and the guests share their personal mantras that they say year after year. Our speakers provide their impactful sayings and beliefs that have been influential within their lives.

Cancer in a Strange Land

Tue, 10 Jan 2023 00:15:00 -0400

As a part of life, people often face new situations that take them out of their comfort zones. A unique experience like traveling to a foreign country can be exciting, but unfamiliar circumstances can also cause significant unease, especially when they are due to health complications. And while a first-time cancer diagnosis may feel like uncharted territory, experiencing cancer treatments in an unfamiliar country can bring on even more challenges.

Life on Pause is a podcast created by and for young adults living with cancer. In this episode, guest speaker Cecilia Kanga shares her experience receiving treatment for her cancer diagnosis in the United States and how she maintains positivity far away from her home in Zambia. As a traveler with a love of new experiences, Cecilia explains how her mindset and background have affected how she is experiencing her cancer journey in an unfamiliar land.

Introducing Cecilia (0:30)

The podcast begins with host Casey introducing the episode’s special guest speaker, Cecilia Kanga, who shares a bit of information about her background, her love of traveling, and her diagnosis. Cecilia is originally from Zambia, and since receiving her cancer diagnosis last year, she has experienced various challenges with her health and undergoing treatments in a new environment.

The Challenge of Change (3:52)

Battling cancer is already extremely challenging. But for Cecilia, being in a different country and experiencing her treatment in an entirely new environment added a new level of difficulty to her cancer journey. Cecilia describes the challenges of her treatment situation, like communication, and how that transpired with her care professionals.

The Hardest Challenges (5:54)

Cecilia cites that the most difficult part about her cancer journey was accepting her health condition. Being in a foreign land away from her loved ones and lacking control and knowledge about her diagnosis made it hard for her to wrap her mind around it. Her cancer also caused physical setbacks, as she experienced bodily changes and fatigue from chemo. Cecilia explains how she worked through these issues by gaining knowledge and receiving help from her community.

Seeking Treatment in a Faraway Land (11:14)

Cecilia has been receiving treatment for her cancer within the United States which, to her, is a foreign territory. While learning the terms and details behind a cancer diagnosis can feel like learning a new language altogether, Cecilia had to experience life as a patient far from her home. Being an avid traveler, she explains how she received treatment in the U.S. and how her family came together to support her throughout her health battle.

Hope and Motivation Through Cancer (18:39)

Cancer comes with challenges, both physical and mental. For Cecilia, hope and faith helped motivate and inspire her throughout her treatment and health difficulties. She describes how connections with other patients within the cancer community and her religion enabled her to gain perspective and feel supported throughout the physical changes and mental obstacles.

Comfort Foods (23:14)

Medication, treatments, and physical changes can all affect how a cancer patient feels. But seeking out comfort foods and other small pleasures can help patients experience positivity throughout their days in treatment. Cecilia describes the comfort foods she enjoys from home and how she has been adjusting to their absence during her time in America.

Losing Count (26:27)

Going through treatment for cancer can mean spending some time admitted to hospitals and other times doing outpatient treatments. Cecilia tells listeners how her chemotherapy programs and treatment plans change based on how she feels. She explains the difficulties of scheduling and rescheduling appointments and experiencing a constantly changing schedule.

Fear and Hope (27:43)

Health complications like cancer force patients to face the unknown, which can cause significant discomfort and fear. For Cecilia, her fear of death has caused her to consider the dreams she holds for her future and the aspirations that she still wishes to experience. Rather than avoiding the thought of her mortality, Cecilia explains that holding on to hope and faith has enabled her to maintain a semblance of positivity throughout her darkest times.

Finding Meaning in Challenges (31:09)

The podcast concludes with host Shelly asking Cecilia about what advice she would give to another young person experiencing a cancer diagnosis and the fears and uncertainties that come with it. Cecilia explains how taking life one day at a time, accepting their diagnosis, and seeking out a personal meaning toward the challenges they face can help people feel more in control of their health situation.

Toxic Positivity and Grief Tourism

Tue, 08 Nov 2022 00:15:00 -0400

Society generally expects people to maintain behaviors and attitudes considered "appropriate" for the situations they face. But when a person is experiencing cancer, acting according to other people's expectations can be incredibly detrimental to their mental health. Toxic positivity is the belief that people should maintain a positive mindset across all situations and that, regardless of a situation's difficulty, people are expected to dismiss their negative emotions brought on by their distress. This belief is often pushed upon people experiencing difficult health journeys like cancer. However, toxic positivity is a belief that causes more harm than good.

Life on Pause is a podcast created by and for young adults living with cancer. In this episode, guest speakers share their experiences with cancer and how they handled the expectations that others had of them due to their diagnosis. Additionally, they discuss how others reacted to their condition and the effects of grief tourism and society's glamorization of cancer. Young adults with cancer can undergo transformative experiences throughout their health journeys, and this episode dives into how these situations can have a lasting impact on their lives.

Introducing Chelsea (0:30)

Our host Corene starts the episode with an introduction for a special guest speaker, Chelsea Gomez. Chelsea is a two-time Hodgkin's lymphoma survivor, crazy, talented artist, and founder of #OhYoureSoTough. She hosts a youtube channel where she discusses her cancer experience and her Etsy shop where she creates gifts for cancer patients. She has also authored two books, "Cancer is an A*Hole" and "Stickers On A Bald Head."

How Do You Deal with Toxic Positivity? (1:56)

There cannot be light without dark, and negative emotions are necessary for people to experience positive emotions. Cancer survivors know this well, as they have had to deal with the ups and downs of their diagnosis. However, some people like to push the unhealthy idea of toxic positivity and insist that people maintain a positive mindset while rejecting negative emotions. Today's speakers discuss their encounters with toxic positivity and how they have dealt with people who push this inauthentic optimism.

What Do You Say? (10:11)

It can be challenging to navigate relationships when diagnosed with cancer. Many people don't know what to say when faced with the reality of knowing someone with this diagnosis. Our guests discuss how their experiences with other people changed as a result of their cancer. Additionally, they discuss the difficulty and emotional exhaustion that comes with sharing their authentic selves with others while they are experiencing cancer.

Handling People and Personal Growth (18:55)

Young adults with cancer carry a heavy burden, and many others their age fail to comprehend the concept of experiencing such a life-altering diagnosis. As such, dealing with others can come with unique challenges for people impacted by cancer. Our speakers discussed times when they noticed their differences in perspective compared to their peers and how cancer led to their personal changes and growth.

Putting on a Facade and the Grief Timeline (28:30)

Toxic positivity can be viewed as putting on a facade to lead others into believing you are happy. This show of happiness is especially expected in cancer survivors. But even after someone is in remission, they can still be experiencing grief and other negative emotions brought on by their cancer journey. From near-death experiences to traumatic formative years, our guests share how their cancer effects have had long-lasting impacts on their lives and outlooks.

Therapy and Advice (33:50)

Therapy and other helpful resources can provide support for young adults undergoing cancer. But while organizations that raise money for cancer can have good intentions, they often fall into the traps of toxic positivity or grief tourism. Within this part of the episode, our speakers share the pieces of advice that they would offer to groups and individuals trying to support people impacted by cancer.

Grief Tourism for Breast Cancer (40:35)

Breast cancer is a diagnosis that society often glamorizes. However, the races and pink ribbons do not portray the actual experiences of breast cancer patients and can be viewed as performative. Guest Shana shares her thoughts on supporting the right organizations and ensuring that your donated money goes to the right cause. Our speakers discuss the subject of glamorization in cancer fundraising.

The Ripples of Cancer (44:47)

There is more to cancer than the treatment, as it can impact various areas of a patient's life, even after remission. The authentic cancer experience includes the many ripple effects of the diagnosis that affect their personal lives. We end this episode with a discussion on the ripple effects of cancer and how unapologetically being your authentic self can help young people and persist throughout these experiences.

Challenges vs. Comfort

Tue, 25 Oct 2022 00:15:00 -0400

Life constantly presents people with new scenarios that can be challenging, causing them to seek the security of their comfort zones. Young adults who experience cancer often face significant challenges regarding their treatments and health. Yet, it is common for people to find solace in the things that bring them comfort through difficult times. So how should young adults impacted by cancer manage their desires to seek safety in their comfort zones and still remain open to the challenges of taking on new experiences?

Life on Pause is a podcast created by and for young adults living with cancer. In this episode, guest speakers talk about their experiences at their annual retreat for young adult cancer survivors at Gretna Glen. Throughout the retreat, participants experienced activities that made them look inward at how they approach the world and how their cancer experience has affected their willingness to take on new challenges. Speakers discuss the theme of comforts vs. challenges and share their thoughts on the lessons they learned from the retreat and throughout their lives.

Comfort vs. Challenge (0:30)

The episode begins with each speaker introducing themselves and discussing their preferred settings on the continuum from comfort to challenge. Each speaker shares their own comfort zones and challenges and how these themes show up in their lives.

Bringing Comfort and Grounding (4:38)

Cancer treatment can be a challenging and emotional experience, and it is essential to find things in life to bring peace during this time. Next, speakers discuss what they consider to be things that bring them comfort and ground them within their lives.

Silence of Meditation (8:59)

The Gretna Glen retreat involves various activities for young adults impacted by cancer to pull them from their comfort zones and enable them to take on new experiences. One of these activities was meditation, but for some, being silent in your thoughts can be an uncomfortable experience. Our speakers share their thoughts on the discomfort of silence and being in your own head.

Dragons in Uncharted Territory (15:27)

In folklore, dragons are a threat often found in uncharted territory. Our speakers talk about the “dragons” they have come face to face with recently and have had to tackle and conquer. This includes tough challenges and obstacles relating to their cancer and other factors in their personal lives.

Getting Yourself Safe (21:39)

While stepping out of your comfort zone can allow you to expand your abilities and experience new situations, our minds and bodies sometimes tell us to seek safety instead. The speakers share their personal experiences of times when they extended themselves grace and allowed themselves to enjoy the safety of their comforts rather than take on new challenges.

Moving Forward (23:23)

The retreat provided many eye-opening experiences for our speakers who participated regarding fears of what-ifs, comfort zones, and themselves. In concluding this podcast episode, they discuss the lessons they learned during their time at Gretna Glen and how they plan to carry this knowledge forward and apply it to their lives.

Dating After Cancer

Tue, 04 Oct 2022 00:15:00 -0400

As if dating as a young adult wasn’t complicated enough, cancer survivors must navigate additional circumstances surrounding their past and current health. Unfortunately, this can make several aspects of the dating process tricky, like disclosing your past diagnosis to potential partners, determining the qualities you look for in a partner, and overcoming anxieties involved with dating as a survivor. As a young person who has experienced cancer, what is the best way to navigate the dating world?

Life on Pause is a podcast created by and for young adults living with cancer. In this episode, guest speakers talk about their experiences dating after experiencing cancer. They share their perspectives and personal stories about dating as cancer survivors and discuss topics like seeking romantic partners and entering new relationships. Finally, they provide their dating advice to young adults who have had cancer to help them approach this important area of life.

Introducing Our Speakers (0:31)

Today on Life on Pause, we are joined by cancer survivors Corene, Bradley, Valarie, Diana, and Elizabeth. To begin the episode, each speaker introduces themselves and shares a bit about their lives and where they are in their cancer journey.

Disclosing Your Diagnosis (2:22)

Dating new people means opening up your life to them, which includes your past. For cancer survivors, it can be challenging to determine the best way to inform new or potential partners about your previous experience with a cancer diagnosis and cancer treatments. Our guests share their own stories and advice about disclosing this sensitive subject.

Selectiveness in Partners (4:44)

As Elizabeth speaks about her experiences with sharing her cancer diagnosis with potential partners, she introduces the idea of selectiveness in dating. She and the other speakers talk about how they determine whether a partner is worthy of pursuing a relationship for the long haul, considering the circumstances surrounding their health.

Concerns with Post-Cancer Dating (11:20)

Our speakers discuss their personal concerns with dating post-cancer, like poor self-confidence due to hair loss from cancer, the stress of creating dating profiles, pressure on specific age groups to find partners, and the fear of dating with cancer if they experience a relapse.

Does Cancer Change the Qualities You Look for in Partners? (17:55)

Experiencing cancer can change your perspectives on relationships and life in general. As a result, some cancer survivors have found that they seek out new qualities in their potential partners than they did before. Our guests discuss this idea and share their experiences in finding partners post-cancer and the qualities they look for in a partner.

Dating Advice for Young Cancer Survivors (25:31)

Speakers bring their perspectives to the table to share with listeners their own advice for dating as cancer survivors. They also discuss the things they try to remind themselves of when they experience difficult days to brighten their spirits.

Radiation Therapy

Tue, 20 Sep 2022 00:15:00 -0400

For those who have not gone through cancer treatments before, many aspects of experience may be unknown. This can mean that new cancer patients feel surprised and caught off guard by the processes and side effects of various cancer treatments, especially in the case of radiation therapy. So what should new radiation therapy patients be aware of to prepare them for their treatment?

Life on Pause is a podcast created by and for young adults living with cancer. In this episode, guest speakers talk about their experiences with radiation therapy to treat their cancer. Together our speakers reveal the less-commonly-discussed aspects and effects of what it is like to undergo radiation therapy for cancer and share their personal stories regarding their treatments. Listen in to hear first-hand experiences regarding the radiation therapy process for cancer, so new patients can learn what to expect from their treatments.

Listen to our guest speakers discuss the cancer treatment experience for patients going through radiation therapy:

Introducing Our Speakers (00:30)

We begin today’s podcast by letting the guest speakers introduce themselves and share a bit about their experiences with cancer and radiation treatments.

Unknown Aspects of the Radiation Experience (3:19)

Going into radiation therapy for the first time can be scary and nerve-wracking and may involve unexpected experiences and previously unknown aspects. The podcast guests describe some of the aspects of radiation treatments that intimidated them when they began their treatments and break down some of the physical effects and medical processes that they underwent as a part of their radiation and following their treatments.

Symptoms From Radiation (9:18)

People can have various symptoms from radiation treatments, including food sensitivity, hair loss, and even experiencing particular smells. The speakers in this part of the episode discuss the unique symptoms that they went through as a result of their radiation and describe the things they did to cope.

Taking Preventative Measures (14:56)

While radiation cancer treatments can be uncomfortable for patients, our speakers share tips and tricks for taking preventative measures to help them avoid the unfortunate effects of radiation. This includes physical protective actions and suggestions for keeping spirits high.

“Sleeping” Tumors and Radiation Cancer Timelines (16:57)

Treatments during and after radiation are individualized for the patient’s particular needs, with some radiation cancer treatments spanning more extended periods than others and affecting patients of different ages. Listen as our speakers discuss their timelines for their cancer treatments.

Anxiety and After Effects (23:58)

Even after radiation treatments have ended, it is normal for patients to experience some physical and psychological after-effects. Our speakers share their own stories about their radiation-induced effects, including pulmonary fibrosis, hypothyroidism, occasional short-term memory loss, anxiety, and more.

Memory Triggers (29:05)

Sometimes a particular sound, scent, or taste can bring us back to a time in our life when those triggers were present. Our speakers share the reminders they experience in their daily lives that remind them of their time undergoing radiation therapy, like the music they listened to, the smells they experienced, and the tastes they frequented throughout their treatments.

What I Wish I Knew (32:12)

To conclude today’s episode, our podcast guest speakers provide listeners with suggestions and final thoughts. They share what they want listeners to know about the cancer radiation experience and what they wished they knew before their own treatments.

Survivors In Healthcare

Tue, 06 Sep 2022 00:15:00 -0400

The cancer experience can be challenging, painful, and even traumatic. Still, there are healthcare professionals who have experienced cancer themselves and make it their mission to help other patients overcome their health battles. So what makes someone want to work in the healthcare field after surviving cancer, and in what ways does their own past health experience affect their professions?

Today's episode of Life On Pause is about the experience of being both a cancer survivor and a health care worker. These individuals choose to care for patients despite their own complex past health issues and cancer treatments. But in this work, they gain the opportunity to help others and provide first-hand insights from their health journeys. Listen to this episode as four speakers discuss their thoughts on working in healthcare as cancer survivors.

Listen to former cancer patients speak about their experiences as healthcare professionals:

Introductions (00:30)

To begin this episode of Life On Pause, our guest speakers introduce themselves and provide listeners with a bit of background about their experiences with their cancer diagnosis and their current profession in the healthcare field. Our episode features four speakers, including Abby, Ali, Corene, and Kasara, who have taken the time to discuss their experiences as cancer patients in healthcare professions.

Careers in Healthcare (1:43)

There are many reasons for deciding to pursue a career in the healthcare sector, which can be influenced by past experiences interacting with healthcare professionals as a patient. Host Ali asks our guest speakers whether their cancer diagnosis influenced their decisions to go into the healthcare field and what led them to choose their healthcare careers.

How Cancer Impacted Your Profession (8:58)

A cancer diagnosis can significantly impact people's lives, and their cancer journey often leaves them with lasting insights and lessons gained throughout their experience. Our speakers discuss whether they believe that their past experiences with cancer positively affected their ability to perform as healthcare professionals.

Fulfillment and Making a Difference (13:59)

As former patients, our guest speakers share their thoughts on whether they find their healthcare professions to bring them a sense of personal fulfillment after having had their own cancer histories. Our speakers discuss whether their experiences with a cancer diagnosis make their career feel more or less empowering.

Disclosing Your Cancer History at Work (19:14)

One's medical history is a personal aspect of their life, and people often choose not to disclose details about their medical past in their work settings. But having careers in the healthcare field, our speakers discuss whether they have had experiences discussing their cancer histories with coworkers, patients, or other people in the workplace.

Managing Work Trauma Triggers (23:45)

Experiencing a cancer diagnosis and treatments can be emotionally challenging. But working in the healthcare field can bring up many reminders of this time. Our guests speak about their thoughts on coming into contact with cancer reminders and triggers in their healthcare professions.

Helping Others Understand (28:54)

As individuals who have experienced cancer, our guests have personal insights into the cancer experience, unlike other health care professionals who may not have experienced a chronic illness or a severe health problem first-hand. Together, they share the wisdom they would like to provide other healthcare workers they gained throughout the cancer journey.

Parenting During A Bone Marrow Transplant

Tue, 23 Aug 2022 00:15:00 -0400

Cancer can come in many forms and may involve different patient treatments. There is no typical cancer journey, and factors like interpersonal relationships, treatment methods, and individual coping strategies can influence a patient’s experience. Young adults with cancer may have to learn to address challenging situations like maintaining parental responsibilities through treatments and waiting for medical transplant opportunities.

Life on Pause is a podcast created by and for young adults living with cancer. Within this episode, host Bradley Lucas is joined by guest speaker Cameron Benjamin, a cancer patient battling myelodysplastic syndrome. Cameron has recently undergone a bone marrow transplant and has had to find ways to cope with his diagnosis and navigate treatments with his family. Together Bradley and Cameron discuss his journey with cancer, including how he communicated about his treatments with his young son, his ways of coping with his diagnosis, and his experience with receiving a bone marrow transplant.

Listen to Brady and Cameron discuss the cancer experience for patients with myelodysplastic syndrome:

Introducing Cameron (0:30)

Host Brady Lucas introduces Cameron Benjamin, a patient at Penn State Health Cancer Institute receiving treatment for myelodysplastic syndrome. Cameron shares a bit about his diagnosis, treatment milestones, and current situation having received a bone marrow transplant 51 days prior to this interview.

The Bone Marrow Transplant Process (2:13)

The process of receiving a transplant from a donor can be lengthy, and challenging, and Cameron experienced this first hand as a result of his diagnosis. Cameron walks listeners through the process of a bone marrow transplant procedure from the perspective of a patient with myelodysplastic syndrome.

Family Feelings and Cancer Treatment (7:31)

As a brother, husband and father, Cameron had to learn to navigate his cancer treatment while still maintaining healthy relationships with his family. Cameron describes how his family members reacted to his diagnosis, and how he helped them to understand his treatment process.

Parenting Young Children through the Treatment Process (12:36)

Children are intuitive, and it can be challenging to know how much to share with young children when battling health factors like cancer and making treatment plans. Cameron explains how he made the decision to include his son in care decisions and treatment planning in a way that would help him feel involved and stay informed.

Coping Methods for Children of Cancer Patients (16:53)

Coping methods and resources can offer much help to parents and child caregivers battling diseases like cancer. Cameron and his wife turned to the help of a child life specialist to explain the cancer diagnosis and disease to their son in a way that he would be able to comprehend.

Looking Toward the Future (20:13)

Cameron is making a conscious effort to maintain optimism when considering the future for the sake of his family and mental health. He shares a resource that has helped him update his loved ones on his medical journey, and explains how writing about his illness has helped him cope. He is currently writing a book about his experience with cancer, and he hopes to educate others on bone marrow transplants and expand the National Bone Marrow Registry and to help people of color and minorities.

How Donors Can Help Cancer Patients (24:55)

Bone marrow donors can make contributions to save the lives of individuals battling cancer. Cameron explains the process to become a bone marrow donor including submitting specimens for approval, and how the bone marrow registry connects donors to potential recipients.

Advice for Young Adults in Cancer Treatment (26:11)

To conclude this episode, Cameron shares the biggest piece of advice he would give to a young adult going through cancer treatment or battling cancer. He highlights the importance of mental health and seeking help from others when you need it. He also shares his biggest piece of advice as a parent with cancer, and how to address and demystify the cancer process for children.

Survivorship Day Exploration Part 1

Tue, 09 Aug 2022 00:15:00 -0400

Cancer affects many lives in different ways, leaving survivors and their loved ones with unique experiences and stories. And while it is essential to support cancer patients currently battling cancer, recognizing the effort and strength of cancer survivors is deeply important. For this reason, Penn State Children's Hospital hosts Survivorship Day each year in June to commemorate National Cancer Survivor Month and honor recent graduates.

Today's episode of Life On Pause is part one of our two-part series featuring recordings from the 2022 Survivorship Day event. Host Elizabeth is joined at Survivorship Day by her mother, father, and event attendee Timmy Ward where they share their stories and converse about the cancer journey. Together they discuss cancer support, the caregiver experience, and the important lessons they learned along the way.

Listen to Survivorship Day event attendees speak on the cancer experience:

Survivorship Day (0:33)

Host Elizabeth joins us on this episode to speak about her experience at Survivorship Day 2022, hosted by Penn State Children's Hospital as a commemoration of National Cancer Survivor Month. The event honors cancer survivors and provides them with the opportunity to gather together, share their stories, and discuss topics surrounding cancer survivorship .

Introducing the Speakers (1:42)

Elizabeth and several other attendees gather at Survivorship Day to share their thoughts and cancer experiences. Elizabeth is 18 and recently finished treatment for Hodgkin's lymphoma, and she shares her plans to attend Fairfield University to study nursing this fall. Elizabeth participated in the event with her mother, Kim Zachary, a Hodgkin's lymphoma survivor, and her father, Chris Zachary. She is also joined by another event attendee, Timmy Ward, a Rutgers University student who also experienced Hodgkin's lymphoma.

Timmy's Story (2:52)

After experiencing a range of symptoms, Timmy Ward was diagnosed with cancer as a junior in high school. He shares his personal experiences with cancer and how the physical effects of his illness changed his life. He explains that while he received support throughout his journey, the treatment process still significantly impacted him in a short amount of time.

Different Perspectives (4:43)

Elizabeth's mother, Kim, had experienced cancer herself and acted as a caregiver when her daughter was diagnosed. Kim discusses each of these experiences and how important it is to have a strong support system throughout the cancer journey.

A Caregiver's Role (6:12)

Survivorship Day welcomes cancer survivors and those who supported them throughout their journeys. Chris takes the stand to speak about what it was like to act as a support system for both his wife and later his daughter.

Mental Health and Cancer (9:05)

Cancer can impact a patient's physical health and mental wellbeing. Elizabeth, Chris, and Timmy speak about the importance of maintaining focus and positivity and how continuing to stay active and seek joy in life have helped them throughout their treatments.

Part One Conclusion (11:53)

Elizabeth concludes this episode of Life on Pause and part one of the Survivorship Day Exploration series. Be sure to check back in for the next segment featuring speakers and stories from the Survivorship Day event.

Changes and Fitting In

Tue, 19 Jul 2022 00:15:00 -0400

As if young adulthood wasn’t challenging enough, experiencing cancer at this stage of life can cause one to feel disconnected from their peers. It is common for cancer patients to lack a sense of belonging with others, especially in settings like school or work. So how can young adults with cancer cope with feeling out of place and like they don’t fit in due to their diagnosis?

Life on Pause is a podcast created by and for young adults living with cancer. Within this episode, host Kayla is joined by guest Allison to discuss the idea of not “fitting in” with others while having cancer. Allison describes her own experience with cancer and how the changes brought on by her diagnosis affected her relationships with others. She also shares her advice to young adult listeners as someone who has gone through the cancer journey as a teenager in college and came out the other side.

Listen to Kayla and Allison discuss the cancer experience:

Introducing Allison (0:30)

Allison, also known as Ally, was diagnosed with stage two cancer at just 18, at the start of her college experience. Now at 22, she is finishing nursing school and plans to become an emergency room RN this fall.

Taking on New Roles (1:17)

Being diagnosed and going through treatment can make you feel out of place or like you don't necessarily belong. Allison shares her story of adjusting to the changes that came with her diagnosis and taking her place in her new role as a college student with cancer. She explains how her diagnosis made her reevaluate and rethink her relationships and time.

Relationship Changes (3:46)

Throughout her cancer journey, Allison experienced changes in her relationships. While she felt encouraged and supported by some people in her life, her diagnosis brought unexpected developments to her relationships with her boyfriend and her parents. She explains how cancer forced her to reevaluate her values, rekindle value relationships that were important to her, and let go of those that weren't.

Cancer as a Teen (6:16)

Experiencing cancer as a teen wasn't easy for Allison, especially as she compared her life to those of her peers in college. But, constantly aware of the differences between herself and her seemingly carefree classmates, she eventually learned to place less focus on these thoughts. Instead, she highlights the importance of discovering who you are under the surface rather than who you think you should be.

Getting Through It (10:17)

Coming to terms with a cancer diagnosis can be challenging, especially considering all the adjustments involved with the cancer journey. For Allison, sharing her story through the podcast was one way to cope with her situation and connect with others. She also reflects on her past choices regarding honesty and openness with others about her diagnosis and treatment.

Allison’s Advice (12:55)

Life is ever-changing, and according to Allison, you must be comfortable and ready to change your life. Allison shares her advice for young adults experiencing change due to a cancer diagnosis and speaks on the importance of finding positivity throughout the cancer journey.

Exercise with Treatment

Tue, 05 Jul 2022 00:15:00 -0400

Exercise plays a vital role in our quality of life. But for cancer patients focused on recovery, many are uninformed on healthy exercise practices for people in treatment. Unfortunately, exercise oncology is still an underserved area in medical science, and while recent progress has been made in the field, we still have a long way to go. So what should cancer patients know about exercise and treatment?

Life on Pause is a podcast created by and for young adults living with cancer. Within this episode, hosts Casey and Abbey are joined by guest speakers Dr. Mizrahi and Dr. Caru, two specialists working in the field of exercise oncology. Together they discuss the importance of proper exercise during treatment and encourage patients to participate in healthy activities to maintain their physical function. Additionally, our guests discuss the physical and mental benefits of physical activity throughout treatments and the many ways that exercise oncology research can help patients throughout their cancer journeys.

Listen to Casey, Abbey, Dr. Mizrahi and Dr. Caru discuss exercise and the cancer experience:

Guest Introductions (0:30)

Who better to talk about exercise and cancer than specialists in the fields of exercise oncology? Hosts Casey and Abby introduce their guest speakers, Dr. Mizrahi and Dr. Caru, who each provide a bit of background regarding their profession.

Dr. David Mizrahi is from Sydney, Australia. He is currently a research fellow at the Daffodil Center at the University of Sydney, living in the US during a Fulbright Future Fellowship at the St. Jude's Children's Research Hospital.

Dr. Maxime Caru is an exercise physiologist and a psychologist in pediatric oncology who works primarily with children, adolescents, and young graduate patients with cancer and survivors.

Exercise During Treatment (4:07)

To begin this episode's discussion, Casey introduces the topic of physical exercise during cancer treatment. Unfortunately, cancer treatments may cause physical conditions and ailments that discourage patients from exercising. However, Dr. Mizrahi and Dr. Caru share their thoughts on finding the right exercise plan that will be physically achievable for a patient in treatment without being too challenging. They also discuss how patients of different ages may find gamified physical activities more motivational.

Clinical Intervention and Motivation (8:30)

Clinical interventions can encourage cancer patients to exercise. Dr. Caru discusses the importance of motivating cancer patients to exercise and move past their fear of experiencing pain as a result of participating in physical activity. Additionally, Dr. Mizrahi explains why proper exercise education is critical for youths and can help them maintain a higher quality of life throughout adulthood.

Inpatient - Not Inactive (12:52)

Abbey spent many months throughout her inpatient cancer experience, which led to her becoming deconditioned. She asks guests what kind of resources they are planning for patients experiencing deconditioning. The guest specialists speak about their need for support from medical teams and for more centers to encourage exercise during treatment

Adherence and the Pandemic (14:33)

Any activity that involves physical exercise can help cancer patients to maintain their physical health and can even provide benefits to mitigate the side effects of their treatment. Dr. Mizrahi and Dr. Caru share some of their preferred exercise activities and highlight how adherence is key to maintaining a healthy exercise regime. The hosts and specialists also touch on the pandemic's effect on exercise and its growing popularity.

Best Exercises for Cancer Patients? (22:04)

No one exercise plan will work for every person, especially when you consider their differing ages, body types, health status, and more. But with the pandemic making it more difficult for immunocompromised patients to exercise in gyms safely, what do exercise oncology specialists recommend they do to stay active and improve their physical function? As Dr. Mizrahi and Dr. Caru explain, finding an exercise that patients enjoy and can do is a key part of the process, along with maintaining a slow and patient transition into starting physical activity.

Exercise Expectations (28:10)

Cancer patients' primary concern should be recovery, and cancer treatments can often cause side effects that make physical activity difficult. Rather than be discouraged, our guests explain that patients should adjust their expectations and try to enjoy their exercise activities instead of feeling burdened by them.

Misconceptions and Advice (32:58)

Finally, Casey and Abbey ask our guests about the biggest misconceptions and misunderstandings regarding exercise for cancer patients. Additionally, our guests share the tips they recommend to cancer patients interested in incorporating exercise into their lives, and speak on the mental health benefits of exercise throughout the cancer experience.

Not Dead Yet

Tue, 21 Jun 2022 00:15:00 -0400

The cancer journey can introduce many changes into a patient's life, creating new obstacles and challenges for them to endure. But taking on a new life philosophy may be able to support patients in managing these difficulties and gaining a healthy perspective on the life that they have.

Life on Pause is a podcast created by and for young adults living with cancer. Within this episode, host Brady Lucas is joined by guest Cayla Conover. Cayla is a trauma surgical ICU nurse who is experiencing stage four colon cancer. As an individual who has experience with caregiving and receiving cancer treatments, Cayla shares her perspective on how to navigate these challenging positions and how to maintain a celebratory mindset throughout the cancer journey.

Listen to Brady and Cayla discuss the cancer experience:

Past and Present (0:30)

Medicine has always been part of Cayla's life as a trauma surgical ICU who was raised by parents in the medical field. She shares what inspired her to become a nurse after studying for a bachelor's degree in public health. Cayla describes how her experience doing research with trauma patients and nurses in action influenced her decision to go into nursing. Additionally, she shares her medical history before receiving her stage four colon cancer diagnosis in July of 2021.

Symptoms to a Diagnosis (2:59)

Symptoms should always be taken seriously and addressed as soon as possible. Cayla shares the symptoms she experienced leading up to her cancer diagnosis, including persistent abdominal pain in her late 20s. By sharing this information with listeners, she hopes to raise awareness about her condition and inspire others to advocate for themselves and their medical needs.

In the Family (8:17)

Cayla has her own medical knowledge and experience throughout her career and comes from a family with a medical background as well. She explains how her experience may have differed from other patients due to her background in medicine when understanding her initial diagnosis and comprehending the severity of her illness. Cayla also expresses her desire for improvement within the healthcare system and the struggles of trying to advocate for yourself when the healthcare system often fails to take symptoms seriously.

Using Humor (10:23)

"Moby Debt" is the name that Cayla gave to her tumor, and she often uses humor as a coping method through her cancer experience and to help her process her illness. Additionally, she explains how she used humor to cope as a nurse to handle uncomfortable situations within her experience as a healthcare professional. She and Bradley also bond on the idea of humor as a protective mechanism for cancer patients, enabling them to make jokes about themselves as a way to control the narrative and conversation surrounding their diagnosis.

"Not Dead Yet" (12:41)

Throughout the interview, Cayla often uses the phrase "not dead yet," which represents how she lives her life. She shares with listeners how the phrase originated as a reason to celebrate life and life's good days while you have them. Cayla says that she feels like she has embraced this idea of not being dead yet, and wishes to live as much life as possible and celebrate every good day she has.

Cayla's Life Philosophy (14:49)

Cayla believes that listeners, whether they're cancer patients or not, can benefit by adopting her life philosophy of "not dead yet." She shares her thoughts on the importance of getting out of your head, taking life's unexpected events into perspective, and trying to live and experience your life fully when you have it. She urges listeners to appreciate life, finds the little things that bring joy, be with the ones you love, and make memories.

Staying In Tune (16:27)

Before her diagnosis, Cayla was passionate about fitness. But now, her relationship with fitness and wellness has changed. She explains that the progression of her disease and recovery from surgery has made her feel less inclined to work out. Rather than let this disappoint her, it gave her a new perspective on trying to honor what her body wants and needs. She has also changed her relationship with food, now eating what feels good. She emphasizes the importance of staying in tune with your body, listening to its needs, and taking each day as it comes.

Stage Four (20:11)

Cayla is at a stage of her cancer diagnosis where it has progressed, requiring her to receive palliative chemo and move in the direction of indirectly planning the end of her life. She takes this opportunity within the podcast to share her thoughts on this stage in her life and things that she would like the world to know about her, her life, and her story.

Advice (21:49)

Cayla provides her advice for young adults diagnosed with metastatic disease, including seeking second opinions, handling loneliness throughout the cancer experience, maintaining the perspective that each type of cancer is different, and stage four is not a death sentence. She also urges young adults with cancer to bond and speak with other young adults who have shared and understand the cancer experience.

Realistic and Hopeful (23:56)

Caregiving is a challenging job, and caregivers need just as much support as the cancer patients that they assist. Cayla shares her advice for caregivers and care providers working with patients diagnosed with severe illnesses as someone who has experienced both roles as a caregiver and patient. She speaks about the difficulty for caregivers to stay realistic about the patient's health while maintaining hope and positivity. She also suggests that caregivers find helpful resources, share their feelings and needs with others, and maintain a good support system.

Cancer Resources (28:03)

Cayla has utilized several resources throughout her colon cancer journey to gain support. She shares resources that have been most valuable to her through her cancer experience and how other organizations and people have helped her each step of the way. Additionally, Cayla provides suggestions for other patients and caregivers looking for cancer resources.

Advocacy (31:01)

Cayla wishes to continue to advocate with her time left. She shares her next steps within the advocacy space, like raising cancer awareness through social media. She also hopes to support the development of the adolescent and young adult program at Penn State and create outreach to serve this community and help other young adults living with cancer.

A Fork In The Road

Tue, 07 Jun 2022 00:15:00 -0400

Experiencing an unforeseen circumstance like cancer can cause your life to deviate from the path you had initially set out upon. This episode of Life on Pause discusses cancer's impact as a "fork in the road" and how it can significantly alter the lives of those who experience it.

Life on Pause is a podcast created by and for young adults living with cancer. Within this episode, Penn State Medical Center's young adults are joined by young adults from UT Southwestern Medical Center whose lives have been impacted by cancer. They have come together to discuss the deeply personal ways that cancer has changed their life paths and their processes of coping with these events.

Listen to young adults impacted by cancer discuss their "fork in the road" experiences:

Topic and Guest Introduction (0:30)

Our hosts introduce listeners to our guests, young adults from UT Southwestern Medical Center whose lives have been altered due to a cancer diagnosis. Each speaker shares their personal stories, thoughts, and experiences regarding their cancer journey.

Silver Linings (12:59)

While deviations from your intended life path can be challenging, they can sometimes provide benefits. Our hosts ask guest speakers about what positive differences they can identify when comparing their old routes to their new life courses after experiencing their cancer diagnosis. Some of the speaker's examples involve mended relationships, increased empathy, and new outlooks on life.

Coming to Terms (21:52)

When you experience an impactful event like cancer, it can take time to recognize and come to terms with the ways your life has changed. Guest speakers share their timelines of how long it took to reach the understanding that their life was significantly altered due to their cancer experience. This grieving process can be unique for everyone, and guest speakers share their own stories of how they reached this stage of their health journey.

Closing Thoughts (31:40)

Everyone's experience with cancer is personal, and it can be tough to share these experiences, as our guest speakers have done in this episode. However, hearing these stories can be impactful for others experiencing cancer. This final portion of the episode recognizes this episode's speakers for their vulnerability and bravery in exploring these topics on the Life on Pause podcast.

Palliative Care

Tue, 31 May 2022 00:15:00 -0400

The role of healthcare professionals is to support the health and comfort of patients through each phase of their treatment. This episode of Life on Pause discusses the sensitive topic of palliative care, and listeners are encouraged to use their best judgment and discretion.

Life on Pause is a podcast created by and for young adults living with cancer. Within this episode, host Brady Lucas is joined by Gina Klein, a social worker in palliative care at Penn State Hershey Medical Center. Together, they speak about how caretakers in her profession support cancer patients' autonomy and quality of life through palliative care and advanced care planning.

Listen to Brady and Gina discuss palliative care:

Topic and Guest Introduction (0:30)

Our host Brady introduces listeners to this episode's topic: palliative care. He also introduces his guest Gina Klein, a social worker in palliative care at Penn State Hershey Med Center. Together Gina and Brady discuss the meaning of palliative care and the role of palliative care professionals.

The Role of a Palliative Care Worker (2:04)

Brady asks Gina to go into detail about what her job as a palliative care social worker entails. Gina talks about the duties of her role and informs listeners of what advanced care planning means within her profession. In this explanation, she introduces the legal procedures involved in palliative care work, including the "Five Wishes" document.

The Five Wishes (4:37)

The Five Wishes is an important document for cancer patients in palliative care. Gina and Brady discuss the document and how it addresses serious questions to help care providers ensure that patient's wishes are respected. Gina also shares her thoughts on the emotional and spiritual barriers that often occur while arranging end-of-life care.

Penn State Advanced Care Planning (10:04)

Gina shares with listeners how Penn State Health has progressed with their advanced care planning and how they are working to help individuals with advanced care plans in palliative care. She explains their advancement in supporting patients' autonomy and ensuring their wishes are respected and understood.

What Keeps You Going (14:35)

Working as a professional in the palliative care field can be difficult, however, Gina is dedicated to supporting her patients. She describes the emotions involved in her job and what keeps her going. Additionally, Gina provides her words of wisdom to younger individuals who need to create an advanced care plan and may feel hesitant or fearful about the process.

A Team Approach (20:27)

When patients are in palliative care, many individuals are often involved, including their personal loved ones and their medical support teams. Brady and Gina discuss the importance of each individual involved in a collaborative approach to supporting the patient's wishes.

Helpful Resources (24:14)

Penn State Health provides helpful resources to support individuals in palliative care, including advanced care plan techniques and information. In addition, Gina provides additional methods that people can take to access advanced care resources.

Advice on Palliative Care (25:50)

In conclusion to the episode, Gina shares her final advice on palliative care for the Live on Pause community.

Chemotherapy: What to Expect

Tue, 10 May 2022 00:15:00 -0400

Chemotherapy involves so much more than just treating cancer. Chemotherapy treatments involve various side effects that can challenge patients mentally, physically, and emotionally. On this episode of Life on Pause, our host Kasara talks with guest speakers to discuss their experiences receiving chemotherapy treatments for their cancer diagnoses. Together they share their stories to provide insight to listeners and help other cancer patients know that they aren’t alone.

Life on Pause is a podcast created by and for young adults living with cancer. Within this episode, listeners can hear real experiences cancer patients have had with chemotherapy treatments.

Listen to Kasara and guest speakers discuss their journeys with cancer treatments:

Topic and Guest Introduction (0:30)

Our host Kasara introduces listeners to this episode’s topic: chemotherapy. She also introduces herself and provides background about her life before allowing the other guests to introduce themselves. Today’s guests have all undergone a cancer diagnosis and include Brady Lucas, Ali Schneider, Kayla Brown, Elizabeth, Abby, Bailey, Cameron Benjamin, Jasmine, and Gene Banks.

Diagnosis and Beginning Treatment (2:47)

Kasara asks listeners how long after their diagnosis they began treatment for their cancer. Then, she and the guests share their stories of diagnosis and speak about the different experiences that they each had upon beginning their cancer treatment journeys.

The Reality of Cancer Treatments (11:46)

The way cancer is depicted in movies and television shows often does a poor job of accurately representing the real-life experience of having cancer and its challenges. Kasara brings this up and asks the guest speakers to talk about their physical experiences and difficulties brought on by their cancer treatments. Speakers share their stories regarding topics like appetite changes, nausea, memory issues, and hair loss.

Cancer, Chemotherapy, and COVID (25:28)

Kasara describes the mental wall she hit emotionally as she was experiencing her third and fourth cycles of cancer treatments and the difficulty of having to extend her time between treatments due to a COVID diagnosis. She has the special guests speak about their own mental and emotional battles throughout their experiences with cancer, and COVID’s effects on their cancer treatments.

Not Defined by a Diagnosis (37:43)

The speakers share their thoughts and feelings about how they are affected by having had cancer and how they choose not to let it define them. Additionally, they speak about overcoming the side effects of their diagnosis, like hair loss and weight loss, and moving past other people's perceptions of them.

Hardship on Treatment

Tue, 26 Apr 2022 00:15:00 -0400

Life with cancer looks different for everyone, and for young people especially, it can be challenging to manage a diagnosis while still moving forward with life's other experiences. On this episode of Life on Pause, our host Brady Lucus chats with guest speaker Colton Cook, a college student who has been in treatment for his cancer diagnosis. Together they discuss what it's like to have cancer while trying to maintain normalcy in life as a young adult.

Life on Pause is a podcast created by and for young adults living with cancer. Within this episode, listeners can gain insight into one person's real-life journey navigating life and treatments as a young adult with cancer.

Listen to Brady and special guest Colton discuss the cancer treatment experience:

Guest Introduction (0:30)

Our host Brady Lucus introduces listeners to guest speaker Colton Cook. Colton is a creative writing student at Susquehanna University. He is also currently a patient at Hershey Penn State Hospital, where he received treatment for his cancer diagnosis.

Coping with Creativity (0:57)

Colton speaks about his decision to pursue a college education in creative writing while being treated for cancer. He explains how his creative writing and mindset have contributed to his coping with having cancer. Additionally, he speaks about his experiences being treated during COVID-19 and coming to terms with not having control.

Adjusting to Life With Cancer (3:30)

After being diagnosed with cancer in 11th grade, with the help of medical technology, Colton finished high school and began college while still receiving treatment. He provides listeners a glimpse into what it was like moving forward during such turbulent times regarding his health and the state of the world during COVID-19.

Treatment and Coping Methods (8:17)

Colton tells listeners about his clinic experiences and his methods for coping throughout this time, like using his pets as a form of animal-assisted therapy. He also speaks about his family's experiences coping with his illness.

Life on Pause and Looking Ahead (11:57)

Colton plans to continue pursuing his education in creative writing in the future. He explains how his cancer diagnosis affected his life and caused setbacks. However, he has found his own ways to help establish normalcy in his life.

Fears and Effects (14:20)

Brady asks Colton about his fears regarding his cancer diagnosis and how his diagnosis has affected his future. Colton shares his thoughts and talks about cancer's effects on his creative writing and storytelling.

Listener Takeaways (18:33)

To conclude the episode, Colton provides his thoughts and suggestions for individuals going through college after being diagnosed with cancer. Additionally, he shares the one piece of information that he hopes listeners would take away from his story.

First Descents: The Therapeutic Effects of Adventure

Tue, 12 Apr 2022 00:15:00 -0400

Even after recovery, cancer can still leave challenging effects on those who have experienced it. However, taking part in a new adventure can be beneficial and healing for cancer survivors. First Descents is a program for young adults impacted by cancer that provides them with outdoor adventures and helps them heal through psychosocial support and rewarding experiences.

Life on Pause is a podcast created by and for young adults living with cancer. Within this episode, our hosts chat with guest speaker Mackenzie McGrath, Vice President of First Descents, about the program and its therapeutic effects on young adults influenced by cancer.

Listen to our hosts and special guest Mackenzie discuss the First Descents program:

Guest Introduction (0:30)

Our host Gus introduces the topic of this episode, and our special guest speaker, Mackenzie McGrath. Mackenzie is the Vice President of First Descents, a program that provides outdoor adventures for young adults impacted by cancer and other serious health conditions.

First Descents (1:30)

Mackenzie tells listeners about the First Descents program and inspiration behind its development. She and host Gus share their experiences traveling, meeting other young adults, and having new experiences during their First Descents trips.

Healing Effects (8:50)

Experiencing the great outdoors can have therapeutic effects for individuals impacted by cancer, and Mackenzie speaks about the benefits of setting the program within nature. She also discusses how the program supports young adults, providing developmentally appropriate psychosocial support and peer-to-peer connection for cancer survivors within this demographic.

Designed for Positive Opportunity (12:15)

The hosts and Mackenzie speak more on the program and its trained staff members and how attention to aspects like safety, outdoor activity, and nutrition education makes it a safe and positive experience for attendees.

Confidence and Body Positivity (18:15)

The cancer journey can leave people feeling physically fragile and limited. First Descents is designed to produce psychosocial outcomes, with outdoor adventures that strengthen attendees' body image and physical confidence. Our speakers share their thoughts on the program's psychosocial aspects and how they can benefit former cancer patients.

Safe Havens (23:14)

Cancer can have lasting mental and emotional effects on those who have had it, even after treatment ends. Our hosts and Mackenzie share their havens and practices for reaching inner peace and the activities that they find therapeutic.

New Perspectives (26:46)

Sometimes in life, we find ourselves in situations that can open our eyes to new perspectives. Mackenzie and our hosts share their moments that provided new perspectives on life and the cancer experience.

Challenges and Rewards (37:56)

Challenging oneself and stepping out of comfort zones can be difficult but rewarding. Our speakers discuss examples of being rewarded through challenges and how the First Descents outdoor adventures motivate people to take on new experiences.

Hershey’s First Bone Marrow Transplant: A Caregiver’s Journey

Tue, 22 Mar 2022 00:15:00 -0400

The cancer journey can have a profound impact on the patient and those close by providing support. Finding oneself in the role of caregiver for a cancer patient can be an emotionally exhausting experience for a young adult, as they try to maintain support and composure in times of worry and hurt.

Life on Pause is a podcast created by and for young adults living with cancer. Within this episode, our host Brady Lucus chats with guest speaker Krissy Hitz about the challenges and rewards of being a caregiver to a loved one with cancer.

Listen to Brady and Krissy as they discuss the caregiver experience:

Guest Introduction (0:30)

Our host Brady begins this episode by introducing this episode's guest, Krissy Pitts. Krissy provides a background of her history as a caregiver for her late husband, Todd, as he fought his battle against Hodgkin's disease. After learning of the diagnosis together when she was 18, she dedicated the next twenty years of her life by Todd's side, providing support and love through his cancer journey.

An Emotional Roller Coaster (6:11)

Looking back on her caregiver experience as a young adult, Krissy recalls its impacts on her life emotionally, financially, mentally, and physically. She credits her faith, her strong relationship with her husband, and her relationships with doctors, friends, and family as helpful for maintaining positivity.

Asking for Help (10:33)

Krissy goes into detail about her experience balancing her life as a young adult and her role as a caregiver. She discusses the impact of the cancer journey on caregivers and the difficulty of asking for help from others. Throughout the feelings of guilt and constant worry, Krissy describes the deep appreciation that she and her husband formed for each other during this time.

Taking Chances (15:07)

At the time of Todd's battle with Hodgkin's disease, medical science regarding bone marrow transplant operations was still in its earlier developmental stages. Krissy talks about her responsibility of supporting Todd and putting on a brave face as he underwent this unfamiliar process or receiving a bone marrow transplant.

Peace With No Control (24:20)

People often make preparations to seek stability and control during times of uncertainty. Patients and their caregivers must face the painful reality of having difficult conversations and preparing for worst-case scenarios through the cancer journey. After her husband's passing, Krissy experienced the difficulty of letting go and making peace with not being in control.

Thankfulness Throughout (31:07)

When Todd underwent his bone marrow transplant procedure, he helped pave the way for other cancer patients in need of transplants. Now twenty-five years later, Krissy expresses her gratitude for all of the ways she and Todd's experience helped to progress medical science and aid others in their fights against Hodgkin's disease.

Advice for Caregivers (33:01)

Krissy tells listeners the one piece of advice she would provide to young adult caregivers going through cancer treatments.

Brain Tumors

Tue, 08 Mar 2022 00:15:00 -0400

So many aspects of our lives rely on our brains’ health and proper functioning. For individuals who have been diagnosed with brain tumors at a young age, their cancer experiences have had lasting effects on them physically, as well as their views on life. On this episode of Life on Pause, our host and guest speakers speak on their experiences with this challenging diagnosis. Guests include young adults from the Penn State Hershey community, and this episode was recorded in collaboration with the Pediatric Brain Tumor Foundation.

Life on Pause is a podcast created by and for young adults living with cancer. Within this episode, listeners can hear brain cancer survivors who have had brain tumors share their experiences and the challenges they have faced along the way.

Listen to guests discuss experiences with cancer and brain tumors:

Guest Introductions (0:30)

This episode’s host speaks briefly on the topic of brain tumors and young adults and asks her seven guest speakers to introduce themselves. Each guest speaker provides their name and age, as well as a summary of their personal history with cancer and brain tumor symptoms.

Cancer Challenges (6:11)

The host introduces an additional guest and shares words that they wrote for their high school graduation relating to her personal battles and life challenges. Speakers then each discuss their own struggles that they have faced due to their brain tumor symptoms, diagnosis, and treatment.

Moving Forward (20:08)

Navigating challenges can be complex, especially as a young person with cancer. Guests speak about their methods for navigating challenges since their brain tumor diagnosis. Additionally, they talk about the adventures they have allowed themselves to stretch into or ones they dream of experiencing despite challenges that exist.

Practicing Positivity (31:34)

Maintaining optimism can be difficult in times of personal struggles. In this section, guests explain how they practice being grateful and having positivity when dealing with brain tumors or other negative aspects of their lives.

Words of Wisdom (35:55)

As a final question, guests are asked what they would tell their past selves if they could go back in time. Speakers discuss what advice they would give themselves, based on how their views on life have evolved as a result of their brain cancer experiences.

Links:

Pediatric Brain Tumor Foundation

Penn State Children's Hospital

Survivor’s Guilt

Tue, 22 Feb 2022 05:05:00 -0400

There are many complex emotions involved with the experience of having cancer. While people often want to view cancer as a victorious journey with positivity and hope, the reality of the fact is it can involve many emotionally taxing and negative feelings. On this episode of Life on Pause, our host Casey speaks with guest Kayla about the cancer experience and all of the negative emotions it can invoke that people often choose not to discuss.

Life on Pause is a podcast created by and for young adults living with cancer. Within this episode, listeners can hear cancer survivors speak on their first-hand experiences on the disease's emotional challenges, such as survivor's guilt, loneliness, and depression.

Listen to Casey and Kayla discuss the emotional challenges of having cancer:

Guest Introduction (1:00)

Host Casey introduces his guest Kayla, who provides a background of her experiences with having and surviving cancer from a young age.

Things Left Unsaid (2:44)

The emotional health challenges involved are often overlooked when discussing the cancer journey, both during and after treatment. The focus placed on the patient's physical health can often overshadow their emotional health needs. Kayla speaks on the emotional challenges she faced throughout her cancer journey, like loneliness, survivor's guilt, worry, and the lingering effects of a traumatic experience.

Survivor's Guilt and Questioning (7:21)

Cancer survivors can often question their reason for survival and their worthiness of living through the experience when so many others haven't. However, comparing cancer experiences and levels of suffering can lead to more emotional difficulties. Casey and Kayla discuss their methods and experiences of coping with the complex feelings that result as a side effect of cancer and linger long after.

Fixing the System (14:15)

Cancer patients often do not receive the emotional health support they need throughout their cancer journeys. Kayla provides her ideas for ways the system can be reformed to help patients with these negative sensations like depression, anxiety, and survivor's guilt. Additionally, Casey and Kayla speak on the positive impact of having open communication about these sensitive topics.

Family and Relationships (17:16)

For young people especially, having cancer can require loved ones and family members to make sacrifices. This can lead them to have negative emotions and feelings of burdening the people around them. Kayla describes her experiences with this during her treatment and her feelings of guilt, jealousy, and shame.

Advice About Emotions (23:01)

Emotional health can be especially challenging for people who are newly experiencing the negative feelings involved with cancer. Casey and Kayla discuss the advice they would give others for handling these negative emotions, as well as the communication surrounding cancer and its effect on those experiencing the disease.

Love Amidst Cancer

Tue, 08 Feb 2022 05:05:00 -0400

As young adults, handling relationships can be challenging, as we are often in transformative periods within our lives. But on top of managing schoolwork, careers, and life, experiencing a cancer diagnosis can lead to a whole new set of love life complications. On this episode of Life on Pause, our host Megan speaks with several guests who have experienced cancer diagnosis' about the challenges of navigating love and relationships throughout their cancer journey.

Life on Pause is a podcast created by and for young adults living with cancer. Within this episode, listeners can hear from individuals who have experienced cancer about how they handled their relationships along with their diagnosis and treatment experiences. Megan speaks with these guests and their partners about how the diagnosis affected them, their relationship issues, and the lessons they learned along the way.

Listen to Megan and her guests discuss cancer, relationships, and love:

Guest Introductions (1:39)

Megan Dressler introduces herself and her husband and speaks about their relationship and how her leukemia diagnosis in 2017 affected it. She then has her guest speakers introduce themselves. She asks them about their relationship status, how long they have been with their significant other if they have one, and what one thing would be that they are looking for in a relationship or love about their partners.

The guest speakers included within this episode feature young adults who have experienced cancer and its effects on their relationships. Guests speak about cancer's influence on their love life and past and current relationship issues.

Cancer and Relationships (8:47)

In this podcast segment, guest speakers provide their answers to the question, "How did your diagnosis affect your relationship? In what ways was it hard, and in what ways was it easier?"

From additional strains on already long-distance relationships to difficult talks about fertility to spending hours together in the hospital, speakers share their stories about how their cancer journeys affected their romantic partnerships and the relationship issues that they experienced.

Love Lessons (14:47)

Learning to communicate, practice self-love, and accept support are critical factors in resolving relationship issues. For young adults experiencing cancer, the effects of their diagnosis can cause them to learn these vital love lessons in unique and challenging ways.

Megan and her guests discuss the most significant things they learned through their experiences as cancer patients regarding their love life and what they wanted in their relationships. Guests share the lessons they and their significant others learned about commitment, partnerships, and love.

Loved Ones Speak Out (21:17)

During the final segment of this episode, Megan addresses her guest's significant others. She asks them to explain how their partner's cancer diagnosis affected them and their initial thoughts upon learning of the diagnosis.

Guest's partners discussed the lengths they had to go for love throughout the cancer experience, such as making life-altering decisions to be there for their significant others. Speakers described the fear they experienced regarding the possible loss of their loved ones and the difficulty of holding back emotions to stay strong for their partners.

The holiday season: sharing joy with loved ones

Tue, 04 Jan 2022 05:05:00 -0400

The holiday season holds a very special place in the hearts of many and is often symbolized by unique themes and activities that make a home feel more like home. For individuals who have experienced cancer, these unique traditions and practices can help them embrace the season's positivity and enjoyment. However, gathering with loved ones and navigating sensitive conversations can present challenges during what should be a celebratory time.

Life on Pause is a podcast created by and for young adults living with cancer. On this holiday edition of the show, guest speakers answer the question, “the holidays are not the holidays at my house without _____.” The episode provides cancer survivors with the opportunity to open up about the parts of their holiday season that they hold near and dear and explain their methods for sharing joy with loved ones.

Listen to cancer survivors discuss the unique ways that they experience the holiday season:

Guests describe what makes the holidays in their homes unique (0:54)

At the beginning of this episode, each guest speaker introduces themselves and tells listeners about the holiday traditions and experiences they hold dear.

Guest speakers include Lauren, a non-Hodgkin's lymphoma survivor; Sammy, a thyroid survivor; Chisara, a non-Hodgkin's lymphoma survivor; Abby, an acute lymphocytic leukemia survivor; and Emily, an ovarian cancer survivor.

Preparing to address sensitive subjects (3:34)

The host describes the anticipation of spending time with family and loved ones over the holidays this year and how cancer survivors and patients can prepare for difficult conversations. She encourages listeners to have a system for addressing topics they may not wish to discuss, like health, cancer symptoms, and COVID-19.

Communicating about health news and topics (4:43)

The guest speakers provide examples and anecdotes to describe the different situations they navigate in sharing sensitive information with their social circles. Each speaker reveals a brief glimpse into the unique social constructs within their lives as they explain their methods for sharing sensitive news and addressing uncomfortable topics.

In addition, each of their stories sheds light on the differences and similarities among people who all share this same health experience, the difficulty of disclosing this type of information during gatherings for “happy” holiday occasions, and the emotions involved with confronting sensitive topics.

Strategies for handling uncomfortable discussions (7:48)

While inquiries from loved ones may be out of concern, prioritizing your mental wellbeing is important. The host describes her strategies for confronting uncomfortable conversation topics during the holidays and diverting attention away from these subjects if need be. She asks her guests to share their tactics, and each speaker provides personal examples of how people experiencing cancer can handle these tricky situations.

Guests give thanks to their supporters and loved ones (9:44)

The support from others can be highly beneficial for people who have experienced a cancer diagnosis. The host provides the guest speakers with the opportunity to thank their cancer support community and the people in their lives who have provided them with assistance, companionship, and care. Each speaker takes the time to share appreciation and gratitude for the members in their lives.

Five Things to Say

Tue, 21 Dec 2021 05:05:00 -0400

The topic of cancer is sensitive, and because of this, people often face difficulty addressing it with cancer patients or people experiencing cancer symptoms. This episode provides listeners with a variety of responses to the question, "What are five things to say to a cancer patient?"

Life on Pause is a podcast created by and for young adults living with cancer. Within this episode, listeners can hear answers to the question "What are five things to say to a cancer patient?" as submitted by individuals who have experienced different types of cancer. The episode includes recorded responses as well as emailed responses based on first-person experiences.

Listen to experienced individuals answer the question, “What are five things to say to a cancer patient?”:

First Response (00:47)

The initial responder discusses what they would tell someone with cancer, based on their own experiences with the disease and its challenging nature.

The speaker explains that cancer patients should be encouraged to breathe and relax, as the uncertainty of the diagnosis can be stressful. They emphasize the importance of patients trusting their medical professionals and creating a cancer support community of people who will be positive and helpful while experiencing cancer symptoms and treatment.

Finally, the speaker says that cancer patients should prioritize their health, and supportive listeners should encourage them to enjoy their lives.

Second Response (4:24)

At age 21, Ally was diagnosed with Hodgkin's lymphoma. She responds to the question by expressing the importance of communicating support to cancer patients through their treatment and the decisions that they will need to make.

Ally speaks on the impact that open communication and positive encouragement can have on a cancer patient. Rather than focusing on the external physical changes that cancer patients may experience during their treatment, Ally suggests pointing out their internal qualities.

Cancer patients can experience feeling different or alienated due to their diagnosis and the changes that come with it. Therefore, she tells listeners to try to maintain normalcy in their relationships with cancer patients and their interactions.

Third Response (6:28)

Diana begins her response by first quoting a segment from the book "Pillow Thoughts'' by Courtney Pepperneil that she says inspired her during her experience with cancer.

She answers the question "What to say to a cancer patient" by addressing the listeners as cancer patients themselves and communicating what she believes they would want to hear. In addition, she provides positive wishes and words of encouragement to patients.

Diana discusses how cancer patients may experience fear and how they should avoid letting their fear consume or paralyze them. Focusing too much on the long path ahead can cause cancer patients to become discouraged. Instead, Diana tells patients to take it one step at a time and continue fighting.

She speaks on the changes that cancer patients may see within themselves due to their experience with the disease and tells patients that this is ok, and to take time to get to know the new versions of themselves.

Email Responses (9:48)

In this segment, the host provides additional responses to the question "What to say to a cancer patient?" that she received via email. Answers to this question include promises of support, following through on actions promised for helping cancer patients, and confirmation that it is alright to experience fears and sadness due to their cancer symptoms and diagnoses.

Sisters and Brothers Chime In On Cancer

Tue, 07 Dec 2021 10:00:00 -0400

When a young person has cancer, in reality, the whole family ‘has’ cancer. We invited siblings to share their experience when their sister or brother was diagnosed and underwent treatment. The siblings explore: Who does the extra work at home? Is it okay to be jealous of the time your parents are spending with your sibling (and the extra gifts they may be getting)? How do you advocate for your sibling? Listen in as the sibling pairs discuss cancer’s impact on the whole family.

First Cancer, Now Avascular Necrosis?!?

Tue, 16 Nov 2021 10:00:00 -0400

Avascular necrosis (AVN) causes pain in the joints (mainly the weigh-bearing joints of the legs) and is associated with chemotherapy and steroid use during cancer treatment. The chronic pain connected with AVN can greatly impact a young adult’s life. Listen to the stories of these four young women who live with AVN to get a glimpse into what it’s like to live with this chronic condition.

Diagnosis Stories

Tue, 02 Nov 2021 09:00:00 -0400

For each young adult diagnosed with cancer, a doctor speaks a few words and a new chapter in life begins. This collection of stories captures the similarities and differences in young adults’ experiences leading up to diagnosis and afterwards.

What’s Cancer Got To Do With Fertility and Fertility Preservation?

Tue, 19 Oct 2021 09:00:00 -0400

When faced with a cancer diagnosis as a young adult, the last thing you expect is to make a quick decision about sperm-banking or egg preservation. After treatment ends and the dust begins to settle, you’re faced with questions that your peers are likely not considering, ‘Am I still able to have kids naturally?’, ‘Will I pass on genes to my children that put them at risk for cancer’ or ‘How do I tell someone I’m dating that I’m infertile?’ In this episode, the young adults talk about fertility and fertility preservation and life afterwards.

Guys Respond: Hair

Tue, 05 Oct 2021 09:00:00 -0400

What is hair loss due to cancer treatment like for guys? Three guys weigh in about hair in response to the Women Talking Hair podcast episode. For two of these young men, their hair didn’t come back the same as before treatment. Listen in as they describe the impact on their identities and lives.

The Psychology of Survival with psychologist, Dr. George Blackall and survivorship social worker, Sara Merrill

Tue, 21 Sep 2021 09:00:00 -0400

The Life on Pause crew chats with Dr. Blackall and Sara about the emotional impact of a cancer diagnosis. How does a young adult navigate the emotional territory of mortality, fear, anxiety and survivor’s guilt? How do I do the ‘normal’ tasks of young adulthood with a cancer diagnosis?

Scar Stories: Markers of Cancer Survivors

Tue, 07 Sep 2021 09:00:00 -0400

Whether small or large, physical scars often mark the bodies of cancer survivors. In this episode, the Life on Pause crew shares stories of moving through the world with a body and spirit transformed by the experience of cancer.

Young Women Talking Hair

Tue, 24 Aug 2021 09:00:00 -0400

A group of young women discuss how hair loss as part of their cancer treatment affected their life and identity. The group ranges in age and experience from the early teenage years to the late twenties, middle and high school students through college graduates, and including a newlywed. These young women share their decision making about wig or no wig, self-esteem, how others were supportive (or not so much) and their journey to the knowledge that who they are on the inside is not changed when their outside appearance changes. If you or a young woman you love is facing hair loss, this is a must listen.

Milestones: Graduation

Tue, 10 Aug 2021 09:00:00 -0400

What happens to the usual milestones like graduation when you throw cancer into the mix? Seven 2021 graduates reflect on cancer’s impact on this milestone—some of the graduates were treated as young children and others more recently. No matter when their diagnosis, cancer played a role in shaping who they are today.

Ewings Sarcoma

Tue, 20 Jul 2021 09:00:00 -0400

What is Ewings Sarcoma? In this episode, three young adults describe it from the inside out while Dr. Joe Drabick provides the medical description. Special thanks to University of Florida for partnering with Penn State Health to make this episode possible.

You’re Stronger Than You Believe: Reflections on Limb Loss

Tue, 06 Jul 2021 09:00:00 -0400

Four young adults with amputations due to their cancer treatment reflect on their experience. They share what it was like to come to terms with the limb loss, adapting to the new reality, interacting with the public and much more. You won’t want to miss this episode of Life on Pause.

Between Two Kingdoms Discussion

Tue, 15 Jun 2021 09:00:00 -0400

You finish cancer treatment and then what? Suleika Jaouad's memoir, Between Two Kingdoms, beautifully captures the young adult cancer experience. Traveling through diagnosis to discovering and creating a life after treatment, her words provide the springboard for a rich discussion amongst the Life on Pause crew.

Twenty Years Later

Tue, 01 Jun 2021 09:00:00 -0400

What is life like twenty years after a cancer diagnosis? Does life ever return to ‘normal’? The Life on Pause crew talks with three different cancer survivors, who are twenty years post-diagnosis. Does scanxiety ever go away? How did treatment impact fertility? These questions and more are covered.

The Boot Camp of Bone Marrow Transplant

Tue, 18 May 2021 09:00:00 -0400

A bone marrow transplant can be life-saving and changing for some oncological and non-oncological conditions. Terry Shapiro, CRNP, with 30 plus years of experience, talks with four young adults about their experience with the ‘boot camp’ of bone marrow transplant. From a review of what the procedure is to its impact on daily life, this episode covers it all.

Social Media: The Public Side of Cancer

Tue, 04 May 2021 09:00:00 -0400

What to post? What to share? Social media can be tricky enough without a cancer diagnosis. Listen in as Sarah Daniels, AYA Child Life specialist and social media researcher from St. Jude Children's Research Hospital, facilitates a lively discussion with a group of young adults about the choices they made regarding social media and their cancer experience.

Through Cancer with Video Games

Tue, 20 Apr 2021 10:00:00 -0400

How do you continue to connect to friends, keep your mind engaged and yet distracted from dark thoughts and pass the time in the infusion room? Through video gaming, of course. Three teens share their cancer experience and how their video-gaming provided needed support through treatment.

Overcoming the impact of cancer treatment with exercise

Tue, 06 Apr 2021 11:00:00 -0400

Cancer treatment impacts greatly impacts the physical treatment. This podcast begins with young adults sharing their experiences of physical deconditioning, regaining strength and exercises role in helping cope with cancer.

(13:30) Natalie Burse, cancer exercise researcher and breast cancer survivor.

(18:40) Dr. Pooja Rao and Jared Heitzenrater discuss the AYA UNITE exercise and oncology study.

(25:58) Drs. Katie Schmitz and Maxime Caru outline exercise’s benefits for cancer patients and the upcoming PAPAYA studies.

(34:00) Questions and answers.

For more information about the ONE Group, visit www.research.med.psu.edu/oncology-nutrition-exercise or email ONEgroup@phs.psu.edu

Body image and how it is impacted during cancer treatment

Tue, 16 Mar 2021 11:00:00 -0400

Joined by Julie Larson, clinical social worker with a focus on cancer patients, the Life on Pause crew discusses cancer’s impact on body image. From the moon face from steroids, hair and limb loss to changes in body capabilities, the young adults review how they navigated their relationship to body image in the midst of the physical changes that cancer treatment brings.

To learn more about Julie, visit: https://www.julielarsonlcsw.com/

Pets as Medicine

Tue, 02 Mar 2021 12:00:00 -0400

Furry friends offer a lot in the way of medicine and therapy during cancer treatment. In this episode, young adults talk with Karen Casto of Canine Assistants about the role of animals as supports during cancer.

From pure entertainment to incentive to exercise to quiet, non-judgmental companionship, the young adults speak of their own pets and the Penn State Health therapy dog trained at Canine Assistants.

To learn more about Canine Assistants, visit https://www.canineassistants.org/

Emily's story from diagnosis to life afterwards

Tue, 16 Feb 2021 12:00:00 -0400

Listen in to Emily’s story as she walks us through her cancer diagnosis which isn’t a straightforward one and done diagnosis. She also describes her experience with anti-mnda receptor encephalitis, life in a rehab hospital as a young adult and shares what it’s like to re-enter life afterwards.

The Unmentionables

Tue, 02 Feb 2021 12:00:00 -0400

This episode, the young adults talk about some of the ‘unmentionable’ parts of the cancer experience. Join them as they discuss using a humor (including a dark sense of humor), pulling the cancer card, ‘cancer perks’, body functions, fears, ugly thoughts, survivor’s guilt and more.

College and Cancer

Tue, 19 Jan 2021 12:00:00 -0400

In this episode, Life on Pause talks with Marcus about his experience with cancer and college. How do you attend college with a compromised immune system? What is studying like with the effects of chemo? Should I use accommodations from the college for support? Marcus weighs in on these questions and more.

The Teen vs Young Adult Cancer Experience

Tue, 05 Jan 2021 12:00:00 -0400

This week the group discusses what parts of their lives were put on pause when they received their cancer diagnoses. From friendships, to college and careers, to the stepping stones of life, the group reflects on how they faced these rising obstacles and found a positive spin to life on pause. The group breaks down how they navigated having cancer as a part of their identities and how they dealt with the “hero” label and other inspirational identities that were pushed on them by the outside world. Afterwards, the group considers terms that they feel better define their battles and how they perceive cancer as part of their identities. Later, the group discusses what it was like being the focus of so many adults and experts, and the impact of spending so much extra time with their parents when receiving treatment. Finally, the group shares ways that their cancer diagnosis changed how they saw the world and what they wish the larger world knew about the cancer experience.

Tips & Tricks from Life on Pause

Mon, 21 Dec 2020 18:24:41 -0400

Life On Pause is a podcast for and by young adults living with cancer. Each month, young adult cancer patients from Penn State Health share honestly about their cancer diagnosis, treatment and life afterwards. As cancer causes the group to reflect on issues both large and small, surprisingly relatable stories and themes emerge. From relationships to body functions, nothing is off the table.