<![CDATA[Roots Radio]]>c1eb2d37-14fd-5272-ab75-cebdb55b8618Wed, 25 Oct 2023 13:45:09 +0000Captivate.fmLenny and Jessiehttps://artwork.captivate.fm/9151b592-ea82-4e19-9cec-bc428648b260/d-ZPO0okD7wQQpYQ-cv8ON_i.jpgRoots RadioLenny and JessieLenny and JessieWelcome to Roots Radio...a podcast about sharing experiences with those battling ALS. The overarching goal of Roots Radio is to strengthen and comfort the ALS Community through the sharing of experiences lived by its members. On our podcast, we will hear from those diagnosed with ALS, as well as from caregivers, doctors, researchers, and more. Here at Roots Radio we believe that each of us are rooted in our core experiences and attributes from which we can gain strength to face adversity. We think about the roots of a tree as our grounding principals that symbolize those parts of our lives that are not touched or weakened by ALS. Lenny is a patient advocate for those patients and caregivers living with ALS. He was diagnosed with ALS in July of 2019. Jessie is a social worker who has the privilege of working with the ALS Community. Together we are Roots Radio. If you would like to participate in our project please reach out to us at rootsradioALS@gmail.comhttps://rootsradioals.captivate.fmnoepisodicnopodcastEpisode 13 - Mark & Winks Fly Fishing AdventureEpisode 13 - Mark & Winks Fly Fishing AdventureWhat a treat it was to have Mark on Roots Radio. This conversation is one that we will never forget - such a privilege to be able to talk to Mark about his family, his travels, and his passion for fly fishing. They ways Mark has been able to continue to pursue his passions while living with ALS, is a marvel. Thank you Mark for sharing your story with us - it has changed us for the better!

Be sure to check out Mark's website below and share with any fly fishermen or fisherwomen in your life!

https://www.winksflyfishingadventure.com/

]]>What a treat it was to have Mark on Roots Radio. This conversation is one that we will never forget - such a privilege to be able to talk to Mark about his family, his travels, and his passion for fly fishing. They ways Mark has been able to continue to pursue his passions while living with ALS, is a marvel. Thank you Mark for sharing your story with us - it has changed us for the better!

Be sure to check out Mark's website below and share with any fly fishermen or fisherwomen in your life!

https://www.winksflyfishingadventure.com/

]]>fe2789b9-94af-4bf8-aa5f-2ddb107f87cfWed, 25 Oct 2023 09:45:00 -040001:02:59nofull1131131Lenny and JessieDance Your ALS Off 2023 - The PlaylistDance Your ALS Off 2023 - The PlaylistDance Your ALS Off 2023 - The PlayList

]]>Dance Your ALS Off 2023 - The PlayList

]]>e99667a7-31d9-472a-bceb-5a901c613f3bFri, 22 Sep 2023 19:00:00 -040001:08:31nofull1131131Lenny and JessieLenny's LightLenny's LightIn episode 12 of Roots Radio we relive the amazing day that was June 23, 2023 - Lenny's Light Golf Fundraiser! Tune in to hear us recap so many incredible moments from that day and all that led up to making that day happen. 

To sign up to join Lenny's team for Team Lenny's Light - Walk to Defeat ALS on October 14th  click the link below!

https://secure.alsphiladelphia.org/site/TR/Endurance/General?team_id=1810&pg=team&fr_id=1120

 

]]>In episode 12 of Roots Radio we relive the amazing day that was June 23, 2023 - Lenny's Light Golf Fundraiser! Tune in to hear us recap so many incredible moments from that day and all that led up to making that day happen. 

To sign up to join Lenny's team for Team Lenny's Light - Walk to Defeat ALS on October 14th  click the link below!

https://secure.alsphiladelphia.org/site/TR/Endurance/General?team_id=1810&pg=team&fr_id=1120

 

]]>7d7126f4-34fe-42e2-86a5-4c2fb42dac72Fri, 30 Jun 2023 17:00:00 -040057:25nofull1121121Lenny and JessieEpisode 11: ColleenEpisode 11: ColleenOh do we have a treat for your ears and your heart in this episode. Lenny and I had the absolute privilege of sitting down with Colleen and her husband Jeff. ALS has entered Colleen's world one too many times...and today she bravely shares with us her story as both a caregiver and as a person living with ALS. Colleen shares with us her love of music and the importance she knows in her bones - that telling her people, what they mean to her - is a privilege and an honor.

]]>Oh do we have a treat for your ears and your heart in this episode. Lenny and I had the absolute privilege of sitting down with Colleen and her husband Jeff. ALS has entered Colleen's world one too many times...and today she bravely shares with us her story as both a caregiver and as a person living with ALS. Colleen shares with us her love of music and the importance she knows in her bones - that telling her people, what they mean to her - is a privilege and an honor.

]]>d6dedce1-795a-473a-9a89-e8bf97b8c854Thu, 04 May 2023 16:15:00 -040001:02:45nofull1111111Lenny and JessieToddToddEpisode 10 is a special one! Lenny and I get to interview Todd - a PAL who has been living with ALS for the last 10 years. Todd shares with us his passion for education, what drives him to keep finding ways to create purpose and meaning in his life, and the serendipitous way he and Lenny met.

Take a listen to episode 10 with Todd!

]]>Episode 10 is a special one! Lenny and I get to interview Todd - a PAL who has been living with ALS for the last 10 years. Todd shares with us his passion for education, what drives him to keep finding ways to create purpose and meaning in his life, and the serendipitous way he and Lenny met.

Take a listen to episode 10 with Todd!

]]>70963ccd-d7f7-449f-adf9-5dbd6349eda2Mon, 13 Feb 2023 09:00:00 -040001:04:31nofull1101101Lenny and JessieEpisdode 9 - MaryEpisdode 9 - MaryEpisode 9 does not disappoint! In this incredible episode - Lenny and I have the privilege of talking to Mary. Mary is a PAL who has not let her ALS diagnosis stop her from continuing to pursue her passions. She is a political powerhouse, a courageous advocate, and a friend to so many. She shares with us her passion for political organizing and how she is now using her unique skill set to try to better the landscape for those living with ALS. She shares with us her many nicknames, this things she is grateful for, and what she wishes to impart on those living with ALS.

Mary is an absolute gem - and we were so very lucky to chat with her and be inspired by her!


]]>Episode 9 does not disappoint! In this incredible episode - Lenny and I have the privilege of talking to Mary. Mary is a PAL who has not let her ALS diagnosis stop her from continuing to pursue her passions. She is a political powerhouse, a courageous advocate, and a friend to so many. She shares with us her passion for political organizing and how she is now using her unique skill set to try to better the landscape for those living with ALS. She shares with us her many nicknames, this things she is grateful for, and what she wishes to impart on those living with ALS.

Mary is an absolute gem - and we were so very lucky to chat with her and be inspired by her!


]]>9eb73a49-7c85-4386-b225-476cb4ba656eFri, 20 Jan 2023 09:00:00 -040001:12:44nofull19191Lenny and JessieEmily - Team GleasonEmily - Team GleasonThis episode of Roots Radio is a special one!

Joining us on Episode 8 is Emily Korman. Emily is speech and language pathologist who lives in New Orleans, Louisiana and works as an assistive technology specialist for Team Gleason.

This incredible conversation is one that we will never forget! Thank you Emily for sharing with us your love for Team Gleason, your passion for the ALS Community, and your determination to never let those who are underestimated feel alone and without a voice.

]]>This episode of Roots Radio is a special one!

Joining us on Episode 8 is Emily Korman. Emily is speech and language pathologist who lives in New Orleans, Louisiana and works as an assistive technology specialist for Team Gleason.

This incredible conversation is one that we will never forget! Thank you Emily for sharing with us your love for Team Gleason, your passion for the ALS Community, and your determination to never let those who are underestimated feel alone and without a voice.

]]>7af68a47-37df-4494-9ccf-cee559957226Wed, 05 Oct 2022 14:00:00 -040042:30nofullLenny and JessieEpisode 7 - Representative Kyle MullinsEpisode 7 - Representative Kyle MullinsAn incredible conversation with Pennsylvania State Representative Kyle Mullins conversation about ALS, about advocacy, about family, and about this club that we never wanted to be in, but are grateful for.

]]>An incredible conversation with Pennsylvania State Representative Kyle Mullins conversation about ALS, about advocacy, about family, and about this club that we never wanted to be in, but are grateful for.

]]>795de3e6-218c-4731-a540-6392fdac1c07Fri, 24 Jun 2022 20:48:00 -040001:07:15nofull17171Lenny and JessieLou, Ellyn, Tony, & The PhilliesLou, Ellyn, Tony, & The PhilliesLenny and Jessie discuss Lou Gehrig, the man, his legacy, and how so much of his story remains true today.

Ellyn and Tony from The ALS Association (Greater Philadelphia Chapter) share with us their personal connections to ALS and how the Phillies have changed the game of ALS for our local families.

This was such a fun episode - Let's Go Phillies!

June 3rd. 2020 the Phillies will celebrate Lou Gehrig Day at their home stadium against the LA Angels - while also supporting the ALS Association. More information will be able to be found on the link below.

http://webpa.alsa.org/site/PageServer?pagename=PA_homepage

]]>Lenny and Jessie discuss Lou Gehrig, the man, his legacy, and how so much of his story remains true today.

Ellyn and Tony from The ALS Association (Greater Philadelphia Chapter) share with us their personal connections to ALS and how the Phillies have changed the game of ALS for our local families.

This was such a fun episode - Let's Go Phillies!

June 3rd. 2020 the Phillies will celebrate Lou Gehrig Day at their home stadium against the LA Angels - while also supporting the ALS Association. More information will be able to be found on the link below.

http://webpa.alsa.org/site/PageServer?pagename=PA_homepage

]]>73c29822-3c43-44a4-910b-1dde732bfc4cSat, 02 Apr 2022 18:22:00 -040001:34:26nofull16161Lenny and Jessie discuss Lou Gehrig, the man, his legacy, and how so much of his story remains true today. Ellyn and Tony from The ALS Association (Greater Philadelphia Chapter) share with us their personal connections to ALS and how the Phillies have changed the game of ALS for our local families. This was such a fun episode - Let's Go Phillies! June 3rd. 2020 the Phillies will celebrate Lou Gehrig Day at their home stadium against the LA Angels - while also supporting the ALS Association. More information will be able to be found on the link below. http://webpa.alsa.org/site/PageServer?pagename=PA_homepageLenny and JessieWalk to Defeat ALS - Alex, Heather, Wendy, & PatWalk to Defeat ALS - Alex, Heather, Wendy, & Pat3778a88d-4016-4b49-b298-10a84bb43f11Tue, 21 Dec 2021 11:00:00 -040042:16nofull66Lenny and JessieSarahSarahOn this episode of Roots Radio - you will have the privilege of getting to know Sarah. Sarah is one incredible human being...she is an educator, a mom, an entrepreneur, a chaos coordinator, a wife, an advocate, a friend, a person who is living with ALS, and so much more.

Be prepared to be inspired by Sarah!

Sarah = Joy

]]>On this episode of Roots Radio - you will have the privilege of getting to know Sarah. Sarah is one incredible human being...she is an educator, a mom, an entrepreneur, a chaos coordinator, a wife, an advocate, a friend, a person who is living with ALS, and so much more.

Be prepared to be inspired by Sarah!

Sarah = Joy

]]>67329787-be50-4422-bcb0-1e8ac314833cTue, 12 Oct 2021 00:00:00 -040001:17:01nofull44Lenny and JessieBillBillWelcome to episode three of Roots Radio where we introduce you to Bill. A poet, a veteran, a man with the most infectious smile, who is also an individual living with ALS. We learned so much from Bill and can not wait to share his poetry with you. We also got to sit down and talk to Amanda who is a speech therapist who specializes in alternative augmentative communication devices whose passion is working with the ALS Community. Enjoy episode three!

]]>Welcome to episode three of Roots Radio where we introduce you to Bill. A poet, a veteran, a man with the most infectious smile, who is also an individual living with ALS. We learned so much from Bill and can not wait to share his poetry with you. We also got to sit down and talk to Amanda who is a speech therapist who specializes in alternative augmentative communication devices whose passion is working with the ALS Community. Enjoy episode three!

]]>6c0256a2-2359-402d-8a21-52ce0f2fdc23Wed, 16 Jun 2021 09:00:00 -040001:32:45nofull13131Lenny and JessiePatRoots Radio - PatWelcome back to Roots Radio! On this episode we had the pleasure and privilege of talking to Pat. She is an artist, friend, partner, activist, and a person living with ALS. Pat's creativity, her joy, and her spark inspired us to say the least. It was such a gift to be able to talk to Pat and learn about her. Sit back, make a cup of coffee or tea, and listen to our conversation with Pat.

]]>Welcome back to Roots Radio! On this episode we had the pleasure and privilege of talking to Pat. She is an artist, friend, partner, activist, and a person living with ALS. Pat's creativity, her joy, and her spark inspired us to say the least. It was such a gift to be able to talk to Pat and learn about her. Sit back, make a cup of coffee or tea, and listen to our conversation with Pat.

]]>ad38c4e4-2465-449c-b5a1-82bb6408f6ebTue, 02 Mar 2021 10:00:00 -040001:00:13nofull12121Lenny and JessieThereseThereseTherese wowed us with her knowledge, her heart, and her humor. She was our first interviewee on Roots Radio and we will never forget our time spent with her - Thank you Therese for being our first guest star on Roots Radio! Stay tuned for more incredible interviews and conversations to come in 2021! - Roots Radio

]]>Therese wowed us with her knowledge, her heart, and her humor. She was our first interviewee on Roots Radio and we will never forget our time spent with her - Thank you Therese for being our first guest star on Roots Radio! Stay tuned for more incredible interviews and conversations to come in 2021! - Roots Radio

]]>3c269ed2-e90b-472a-97b1-e02a086aba38Mon, 21 Dec 2020 20:55:00 -040001:03:21nofull11111Lenny Rafalko and Jessie Meier