summary Ty Gipson shares his extraordinary journey through health challenges, including multiple organ transplants and living with type 1 diabetes. His story highlights the power of mindset, small positive steps, and the 'no options' philosophy to overcome adversity and inspire others.

keywords resilience, mindset, health challenges, organ transplants, diabetes, positivity, motivation, no options philosophy

key topics

• Resilience through health challenges
• The 'no options' philosophy in adversity
• The importance of mindset and small steps
• The role of gratitude and humor in overcoming difficulties

takeaways

• Small daily growth can lead to profound life changes
• Sharing your story can inspire and help others
• The mind is a muscle that can be trained for positivity
• Celebrating small wins encourages continued progress

guest nameTy Gipson

key frameworksNo Options Philosophy

action items

• Identify one small positive step to take today
• Practice daily visualization of your goals
• Celebrate small wins to build momentum
• Share your story to inspire others

titles

• From Diabetes to Donor: Ty Gipson’s Journey of Resilience
• The No Options Mindset: Turning Adversity into Opportunity

Sound Bites

• "Life is short and precious"
• "Grow a little each day"
• "It's worth the climb"

Chapters

00:00Introduction and Technical Difficulties

00:00The Importance of Sharing Stories

00:45Ty's Journey and Adversity

01:04Transforming Adversity into Positivity

02:43Mindset Shifts Through Challenges

04:25Addressing Different Abilities and Growth

06:59Tools for Self-Discovery and Mindful Parenting

08:43Three-Step Process for Overcoming Adversity

11:48The Power of Positive Thinking

14:14Finding Humor in Difficult Times

15:25Ty's Health Journey and Organ Transplants

20:52Facing the Unknown: A Life-Changing Decision

23:30The Journey of Recovery: From Darkness to Light

24:44Gratitude and New Beginnings: The Impact of Organ Donation

26:12Resilience Through Adversity: The No Options Mindset

31:45Finding Balance: The Importance of Rest and Self-Care

37:05Teaching Resilience: Celebrating Small Wins

39:44Sharing Your Story: The Power of Connection

Resources

• tygipson.com
• No Options with Ty Gipson
• Texas Children's Hospital
• Shakti Gawain's Visualization Book

Guest links

• Website: https://tygipson.com/
• Podcast: No Options w/ Ty Gipson: https://podcasts.apple.com/us/podcast/no-options-with-ty-gipson/id1827303025

Host link: specialedrising.com

Go Fund Me - Ray's Respite Care: https://www.gofundme.com/f/join-rays-respite-care-mission

Reflecting on the complexities of growing up with a father whose moods and expectations left a lasting impact, Mark shares an honest message: your child is not a finished product. They are learning, developing, and looking to you as their model.

This episode challenges dads to rethink how they interpret behavior and respond in the moment. What if your child isn’t being defiant—but struggling? What if the issue isn’t the behavior itself, but the story you’re telling about it?

Mark breaks down how shifting from reaction to intentional response can transform your relationship with your child—and prevent the kind of lasting emotional scars many carry into adulthood.

You’ll also hear practical strategies for making this shift, even if it doesn’t come naturally:

1. How to reframe your child’s behavior as communication
2. The power of the pause in high-stress moments
3. Why separating behavior from identity matters
4. How curiosity can replace correction
5. The importance of pre-deciding your responses
6. Why doing your own internal work is essential

For fathers of children with special needs, this message becomes even more critical. Behavior is often communication, and your ability to stay regulated can help your child find their way back from overwhelm.

Mark also addresses a topic that often goes unspoken—the imbalance in parenting load. In many households, especially those raising children with additional needs, one parent (often the mother) carries the majority of the mental and emotional weight. This episode challenges dads to step out of the role of “helper” and into true co-ownership—sharing responsibility, learning their child deeply, and being present not just physically, but emotionally.

Because this isn’t just about parenting—it’s about partnership, leadership, and legacy.

Key Takeaways:

1. Your child is a learner, not a learned person
2. Behavior is often communication, not defiance
3. Your reaction is shaped by your own experiences and triggers
4. A pause can change everything
5. Connection fuels cooperation
6. You don’t have to do this alone—but you do have to take ownership
7. Supporting your partner is part of supporting your child

At the heart of it all is one message:

Your child may not remember every mistake they made—but they will remember how you responded to them when it mattered most.

Connect with Mark:

1. Website: specialedrising.com
2. Podcast: Special Ed Rising: No Parent Left Behind!
3. Email: specialedrising@gmail.com
4. Social: @specialedrising

If this episode resonated with you, share it with another dad who needs to hear it.

Keywordsspecial education, advocacy, learning disabilities, IEP, legal battles, parental empowerment, twice exceptional, education reform, mental health, Raja Marhaba

Key Topics

1. Navigating the special education system
2. Legal battles for children's rights
3. The importance of parental advocacy

Guest Name Raja Marhaba

Website https://www.thejonathanfoundation.org

titles

1. The Fight for Education Rights: Raja Marhaba's Journey
2. How One Mother Changed the System for Twice-Exceptional Kids

Sound Bites

1. "What message are you sending to a 10-year-old?"
2. "He tore a two-inch hardcover book apart"
3. "Knowledge is power in advocacy"

Chapters

00:00Navigating the Special Education System

18:15The Impact of Advocacy on Families

25:41Empowering Parents and Children in Education

27:19Understanding Standardized Testing and Its Implications

29:39Building Trust Between Parents and Schools

31:32Empowering Parents in IEP Meetings

33:00Navigating the Challenges of Special Education

35:34The Impact of Legislation on Special Education

37:59Mental Health and Its Role in Education

41:38The Need for Comprehensive Support in Schools

45:42The Jonathan Foundation: Advocacy and Support for Families

Specialedrising.com

Ray's Respite Care: https://www.gofundme.com/f/join-rays-respite-care-mission

This brief but powerful episode takes a direct look at recent public comments about learning disabilities—and why they matter far beyond politics. Mark speaks from decades of experience in special education to challenge harmful narratives and reframe what dyslexia really means for individuals, families, and society.

At its core, this episode is about one thing:

the message we send to kids when we misunderstand how they learn.

🎯 Key Takeaways

1. Dyslexia is not a measure of intelligence
2. It impacts language processing—not cognitive ability, leadership, or potential.
3. What looks like struggle is often strategy in progress
4. Many individuals with dyslexia rely on tools like audiobooks, verbal processing, and summaries—and go on to thrive.
5. Words from leaders carry real consequences
6. Public statements about disability don’t stay in politics—they shape how children see themselves.
7. The real issue is not disability—it’s ignorance
8. Misunderstanding learning differences leads to stigma, lowered expectations, and lost opportunities.
9. Kids internalize what the world tells them
10. When they hear limits, they believe limits. When they’re supported, they rise.

🧩 What Dyslexia Actually Impacts

1. Decoding (sounding out words)
2. Reading fluency
3. Spelling and written expression
4. Processing speed with language

👉 And at the same time, many individuals demonstrate:

1. Strong verbal reasoning
2. Creativity and innovation
3. Big-picture thinking
4. Leadership and interpersonal strengths

🔥 Core Message

This episode challenges the idea that learning differences define capability—and calls on parents, educators, and advocates to push back against narratives that diminish individuals with disabilities.

Your brain works differently.

Your challenges are real.

And your potential is not up for debate.

🧭 Notable Context Discussed

1. Public comments made by Donald Trump regarding Gavin Newsom and dyslexia (March 2026)
2. Newsom’s lived experience with dyslexia and his adaptive strategies
3. Responses from Newsom and Jennifer Siebel Newsom
4. The broader impact of stigmatizing language on individuals with learning disabilities

📚 References & Resources

1. Young Man in a Hurry: A Memoir of Discovery
2. Ben and Emma’s Big Hit
3. International Dyslexia Association – Research and resources on dyslexia
4. Yale Center for Dyslexia & Creativity – Science and strengths-based perspective on dyslexia

🎧 Final Thought

Ignorance may be loud…

but it doesn’t have to be what leads.

specialedrising.com

https://www.gofundme.com/f/join-rays-respite-care-mission

In Part 2 of this powerful conversation, Mark speaks with educator, researcher, and author Dr. Joey Weisler about trauma, resilience, and what it really means to show up for students.

Joey shares his deeply personal journey—from witnessing the aftermath of the Parkland school tragedy to navigating a difficult first year of teaching that ultimately led to his dismissal. What initially felt like failure became the turning point that shaped his mission: to build classrooms centered on connection, presence, and emotional engagement.

Today, Joey teaches literature and composition at the college level while developing his HEART Framework, a model focused on creating learning environments where students feel seen, heard, and empowered.

This episode explores how trauma, compassion, and purposeful teaching can reshape education—and why learning should never be the result of compliance.

In This Episode

Mark and Joey discuss:

1. Joey’s experience teaching near the Parkland tragedy and how it shaped his understanding of student trauma
2. Why many schools struggle to address emotional realities in the classroom
3. The moment Joey was unexpectedly dismissed from his first teaching job—and why it became the best and worst day of his career
4. How storytelling and literature can help students process emotions and life decisions
5. Why Joey arranges his classrooms in a circle to create presence and community
6. The concept of “cognitive presence” vs. cognitive overload
7. Why showing up and caring may be the most important thing a teacher can do
8. How educators can balance academic expectations with emotional development
9. Joey’s upcoming book on the HEART Framework

Key Takeaways

1. Students remember how teachers make them feel more than what they teach.
2. Trauma affects learning—even when it’s not visible.
3. Presence and care often matter more than instructional techniques.
4. Classrooms that allow students to explore meaning and identity create deeper engagement.
5. Education systems focused solely on data risk losing the humanity of learning.

Memorable Quotes

“Learning should not be a result of compliance.”

“When you teach to the heart instead of just the brain, everything changes.”

“Students don’t remember every lesson—but they remember the teachers who cared.”

“Instead of cognitive overload, we need cognitive presence.”

About Dr. Joey Weisler

Dr. Joey Weisler is an educator, researcher, and writer focused on trauma-informed teaching and emotionally engaged learning environments. He teaches literature and composition at the college level and hosts the podcast Classroom Narratives: Healing & Education.

He is currently developing the HEART Framework, a model designed to help educators create classrooms centered on connection, presence, and meaningful learning.

Resources & Links

Listen to Part 1 here: https://podcasts.apple.com/us/podcast/rising-through-the-unknown-advocacy-trust-and/id1775740636?i=1000748265220

Listen to my interview on Joey's podcast, Classroom Narratives: https://podcasts.apple.com/us/podcast/rising-through-the-unknown-advocacy-trust-and/id1775740636?i=1000748265220

🌐 Website

josephweisler.com

🎬 The Throne in the Classroom (Short Film & Trailer)

🎧 Joey’s Podcast

Classroom Narratives: Healing & Education

📘 Resources Available on Joey’s Website

1. 10 Steps to Trauma-Informed Teaching
2. 
   
3. Emotionally Equipped Educator Conflict Styles Quiz
4. 
   
5. HEART Framework (forthcoming book)

Connect with Mark

🎙️ Podcast: SER: No Parent Left Behind!

Website: specialedrising.com

If you enjoyed this episode, please subscribe, share it with a fellow educator or parent, and leave a review to help more people discover the show.

Before Joey ever had his own classroom, he found himself at the center of a community tragedy. While substitute teaching at a middle school next to Marjory Stoneman Douglas High School during the Parkland school shooting, he and his students were forced into lockdown as the devastating events unfolded nearby.

Joey shares what that moment was like inside the classroom, the emotional weight educators carry during crisis, and how witnessing trauma within a school community changed the way he understood teaching, safety, and the emotional lives of students.

The conversation also explores the difficult reality many teachers face when students reveal deep struggles—and how systems sometimes fail to respond with the urgency and compassion those moments require.

This episode is an honest and moving discussion about trauma, responsibility, and the human side of teaching.

It’s also the beginning of a larger story—one that continues in Part 2, where Joey shares how these experiences ultimately reshaped his career and inspired a new vision for education.

In This Episode

1. Joey’s connection to the Parkland tragedy and what it was like teaching during that moment
2. How trauma can shape a teacher’s mindset before their career even begins
3. The emotional responsibility teachers feel when students confide in them
4. The gap that sometimes exists between student needs and school systems
5. Why being present for students can matter more than any lesson plan
6. The early experiences that would eventually influence Joey’s philosophy of teaching

🎙️ Listen to Part 1 now, and don’t miss Part 2 of this powerful conversation.

Chapters

00:00Introduction and Connection

01:40Perseverance in Education

05:01The Impact of Trauma on Teaching

11:56Navigating the Aftermath of Tragedy

16:28Experiencing the Shooting

21:38The Aftermath and Support Systems

28:32Navigating Trauma in Education

31:26The Impact of Personal Experience on Teaching

1. Joey Weisler's Website
2. The Throne in the Classroom (Book & Trailer)
3. Classroom Narratives Podcast
4. 10 Steps to Trauma-Informed Teaching (Guide)
5. Emotionally Equipped Educator (Book)
6. Heart Framework (Upcoming Book)

Dr Weisler links

1. Website

Listen to my interview on Joey's podcast, Classroom Narratives: https://podcasts.apple.com/us/podcast/rising-through-the-unknown-advocacy-trust-and/id1775740636?i=1000748265220

specialedrising.com

https://www.gofundme.com/f/join-rays-respite-care-mission

keywordsspecial education law, IEP, advocacy, legal rights, education attorney, parent rights, IEP process, independent educational evaluation, legal compliance, special ed advocacy

key topics

1. Legal rights of parents in special education
2. The evaluation and IEP process
3. Predetermination and legal compliance
4. When to seek legal help in special education
5. How to effectively advocate for your child's needs

titles

1. Unlocking Your Child's Rights: A Guide to Special Ed Law
2. Navigating IEPs and Legal Rights with Frances Shefter

Sound Bites

1. "Trust your gut and ask questions."
2. "Know what the issues are and be prepared."
3. "Legal help can often save time and money."

Chapters

00:00Introduction to Special Education Law

00:01Frances Shefter's Journey into Special Education Law

05:04Understanding the Role of Parents and Schools

09:28Navigating IEP Meetings and Legal Representation

15:02Collaboration Between Attorneys and Parents

17:23The Role of Educators in Child Advocacy

19:34State Variations in Educational Compliance

21:23Challenges in Meeting Educational Needs

25:25Navigating the IEP Process and Parental Rights

31:10Requesting Evaluations and the Role of Attorneys

Resources

1. Frances Shefter Law
2. specialedrising.com
3. https://www.gofundme.com/f/join-rays-respite-care-mission

Schedules. Morning charts. Time blocks.

They may sound basic—even boring—but research and decades of classroom and family experience show they are foundational to lowering stress, reducing conflict, and building independence.

This episode explores how routines don’t just organize your day—they regulate your household.

🔎 What You’ll Learn in This Episode

✅ Why schedules are not about control—but about safety

Predictability lowers anxiety. When children (and parents) know what comes next, their nervous systems relax. Consistent routines reduce uncertainty, which research shows is a key driver of stress responses in both children and adults.

✅ How routines lower stress for parents

Parents raising children with anxiety, ADHD, autism, or executive functioning challenges make hundreds of micro-decisions daily. That leads to decision fatigue.

When routines are consistent:

1. You stop negotiating every step.
2. You reduce arguments.
3. You prevent last-minute chaos.
4. You move from reacting to coaching.

Less decision fatigue = lower stress.

✅ How routines lower stress for children

Children don’t yet have fully developed executive functioning skills. When the day feels unpredictable, their brains stay on alert.

Consistent routines:

1. Reduce transition stress
2. Create clear beginnings and endings to tasks
3. Help perfectionistic children know when “enough” is enough
4. Build a sense of competence and control
5. Turn external structure into internal regulation over time

Predictability allows the brain to prepare instead of panic.

✅ The Power of “Predictable Bookends”

Morning = launch pad

Evening = landing strip

When the beginning and end of the day are steady, the middle becomes manageable.

✅ Why transitions are the real challenge

Most meltdowns don’t happen during tasks—they happen between them.

Clear time blocks like:

1. 4:00 Snack
2. 4:15 Homework (20 minutes)
3. 4:35 Break

…help the brain prepare for what’s next. Preparation lowers resistance. Lower resistance lowers stress.

🧠 The Research Behind It

This episode draws from research in behavioral science, developmental psychology, and executive functioning:

1. Habit formation research (BJ Fogg, Tiny Habits) shows that small, repeatable behaviors build long-term change more effectively than large overhauls.
2. Studies on bedtime routines show consistent nightly structure improves sleep quality, emotional regulation, and behavior.
3. Research on family routines and resilience links predictable daily rhythms to lower parental stress and fewer child behavior problems.
4. Executive functioning research shows children benefit from visual schedules and timed task blocks, especially those with ADHD.
5. Psychological research on uncertainty and stress demonstrates that unpredictability increases cortisol, while structure reduces anxiety.

(See full references below.)

🛠 Practical Takeaways

If you’re wondering where to begin:

1. Start small. Pick one part of the day.
2. Use simple time blocks instead of vague instructions.
3. Anchor the new routine to an existing habit.
4. Stay consistent for several weeks before adjusting.

It doesn’t have to be perfect.

It just has to be repeatable.

💬 Key Message

You don’t have to be a perfect parent.

But being predictable can change your home.

You’re not just organizing a schedule.

You’re building safety.

You’re building confidence.

You’re building a calmer nervous system—for your child and for yourself.

And that changes everything.

📚 References & Research Mentioned

Fogg, B. J. (2019). Tiny Habits: The Small Changes That Change Everything. Houghton Mifflin Harcourt.

Mindell, J. A., et al. (2015). “Bedtime routines for young children: A dose-dependent association with sleep outcomes.” Sleep.

Spagnola, M., & Fiese, B. H. (2007). “Family routines and rituals: A context for development in the lives of young children.” Infants & Young Children.

Evans, G. W., & Wachs, T. D. (2010). Chaos and Its Influence on Children’s Development. American Psychological Association.

Barkley, R. A. (2012). Executive Functions: What They Are, How They Work, and Why They Evolved.

American Academy of Pediatrics (AAP) policy statements on routines, sleep, and family structure.

🎧 Listen to more episodes at: specialedrising.com

Special Ed Rising: No Parent Left Behind

Hosted by Mark Ingrassia

Because no parent should walk this road alone.

https://www.gofundme.com/f/join-rays-respite-care-mission

In this episode, Mark sits down with Julie M. Green, author of Motherness, a memoir exploring generational autism, parenthood, and radical acceptance. A 2024 finalist for the CBC Nonfiction Prize, Julie’s writing has appeared in The Washington Post, The Globe and Mail, HuffPost, Parents, Chatelaine, CBC, and Today’s Parent, among others.

Julie shares her journey as the mother of an autistic son and her own later-in-life autism diagnosis. She reflects on navigating the early 2010s autism landscape, when resources were limited and the pressure on parents to “correct” their children was intense. Together, Mark and Julie explore how the rhetoric around autism has shifted from awareness to acceptance — and why that shift is critical.

They discuss the challenges families face within educational systems that often prioritize conformity over inclusion. Julie emphasizes that behavioral struggles are often signs of unmet needs, not defiance, and that meaningful support should focus on improving quality of life rather than enforcing normalization.

The conversation also explores masking and its impact on mental health, the complexity of identity within the autistic community, and the importance of representation — including a discussion about the release of the Autistic Barbie and what true inclusion requires beyond symbolic gestures.

At its core, this episode is about self-understanding, self-compassion, and rethinking what support should look like for autistic individuals and their families. As Julie shares, she wrote the book she wished she’d had — offering an insider perspective that helps others feel seen and understood.

About Julie M. Green

Julie is the author of Motherness, a memoir of generational autism, parenthood, and radical acceptance. In 2024, she was a finalist for the CBC Nonfiction Prize. Her work has been widely published across major media outlets, and she writes The Autistic Mom on Substack.

Connect with Julie:

1. Website: https://juliemgreen.ca
2. Book: https://juliemgreen.ca/books-1
3. Substack: https://theautisticmom.substack.com/

Key Takeaways

1. The rhetoric around autism is shifting from fixing to accepting.
2. Parents have historically carried immense pressure to conform their children to societal norms.
3. Quality of life — not compliance — should guide autism support.
4. Educational systems often prioritize conformity over inclusion.
5. Behavioral challenges are frequently signs of unmet needs.
6. A mindset shift is necessary to interpret autistic behaviors as communication.
7. Radical acceptance embraces the full complexity of neurodiversity.
8. Masking can have serious mental health impacts.
9. Representation matters, but it must be meaningful and nuanced.
10. Personal narratives foster empathy and help others feel understood.

Sound Bites

1. “The onus was very much on parents.”
2. “It’s about improving quality of life.”
3. “I wrote the book I wish I’d had.”

Suggested Titles

1. Redefining Autism: From Fixing to Accepting
2. Navigating Autism: A Journey of Radical Acceptance
3. The Parent’s Journey: Rethinking Autism Support

Chapters

00:00 – Introduction and Background

06:15 – Acceptance vs. Fixing

10:06 – Inclusion, Support, and Educational Systems

27:57 – Masking and Mental Health

specialedrising.com

https://www.gofundme.com/f/join-rays-respite-care-mission

Episode: Stronger Starts at Home: When Parents Grow, Kids Grow

🎧 Episode Summary

Parents are constantly asked to measure how their children are doing—academically, behaviorally, socially. But how often are they invited to pause and reflect on themselves?

In this episode, host and educator Mark Ingrassia shifts the focus inward. Drawing from years of experience working alongside families, Mark explores how parental self-awareness directly impacts children’s regulation, behavior, and resilience.

Because children don’t experience life in isolation—they experience it through the adults who care for them.

Through tone.

Through stress.

Through energy.

Through calm.

This episode offers practical tools to help parents recognize their strengths, identify growth areas without shame, and build simple mindful habits that reduce burnout and increase connection at home.

🧠 What You’ll Learn in This Episode

1. Why parental self-awareness shapes child behavior
2. How stress responses influence family dynamics
3. The difference between reacting and responding
4. How mindful practices improve emotional regulation
5. Why strengths-based parenting creates more confidence
6. How systems—not guilt—create real change
7. A simple weekly reflection habit to prevent burnout
8. 5 calm-down tools parents can start using immediately

🌿 The 5 Calm-Down Tools Shared in This Episode

1. The 3-Breath Reset – Pause and take three slow breaths before responding.
2. Grounding (5-4-3-2-1 Method) – Use your senses to return to the present moment.
3. The Pause Phrase – Repeat: “Pause. Breathe. Respond.”
4. The 2-Minute Reset – Build short breaks into transitions.
5. Body Release – Relax jaw, shoulders, hands, and tension points.

Small habits. Big impact.

💡 Key Takeaways

1. Children mirror adult regulation.
2. “Behavior” often starts with adult stress levels.
3. Strengths matter more than perfection.
4. Growth happens through systems—not self-criticism.
5. Self-care is not selfish—it’s strategic.
6. When parents grow, children grow.

✍️ Reflection Questions for Parents

1. When do I feel most calm and connected with my child?
2. What do I naturally do well as a parent?
3. What situations trigger stress for me?
4. What is one small regulation tool I can practice this week?
5. What worked well this week? What needs adjusting?

🛠 Try This This Week

✔ Write down 3 parenting strengths

✔ Identify 1 growth area

✔ Choose 1 calm-down tool

✔ Schedule a 10-minute weekly reset

Progress over perfection.

💙 Closing Reminder

You don’t need to be perfect.

You need support.

You need awareness.

You need space to grow at your own pace.

You matter in this journey.

When you grow, your child grows.

That’s what No Parent Left Behind is all about.

specialedrising.com

https://www.gofundme.com/f/join-rays-respite-care-mission

📚 Research References Used in This Episode

Parental Influence on Child Development & Parent-Child Transactional Processes

Describes how children’s development is shaped by dynamic exchanges with parents.

Source: A review on parent-child transactional processes in child development outcomes.

Quoted idea: “parents affect children and children affect parents.”

Link: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7781063/

Parenting with Self-Awareness

Explains how being aware of inner states influences parenting behavior and relationships.

Quoted idea: “In our interactions with our children, each of us has the choice to respond in ways that either strengthen or weaken our relationships with them.”

Source: Alabama Cooperative Extension System resource on self-awareness in parenting.

Link: https://www.aces.edu/blog/topics/home-family/parenting-with-self-awareness-he-0952/

Positive Aspects of Parenting Children with Intellectual Disabilities

Reports on increased personal strength, confidence, and meaning-focused coping among parents.

Quoted idea: “an increased sense of personal strength and confidence” described by parents.

Source: PMC article on parental experiences and positive impacts.

Link: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5703033/

Parental Reflective Functioning, Self-Efficacy, Psychological Flexibility & Coping

Examines how parental reflective functioning links to self-efficacy and proactive coping strategies.

Quoted idea: “parental self-efficacy mediated the association between reflective functioning and proactive coping strategies.”

Source: ResearchGate article on parents of children with autism.

Link: https://www.researchgate.net/publication/389248236_Psychological_Flexibility_Parental_Reflective_Functioning_Parental_Efficacy_and_Coping_in_Parents_of_Children_With_Autism

Parental Reflective Functioning and Sensitive Parenting

Shows higher parental reflective capacity is associated with better parenting and regulation outcomes in children.

Source: Article on reflective functioning in parenting from Mindfulness journal.

Link: https://link.springer.com/article/10.1007/s12671-024-02379-6

Parental Self-Efficacy and Children’s Outcomes

Discusses the relationship between parental belief in their capabilities and positive child/family outcomes.

Source: Frontiers in Psychology article on parental self-efficacy.

Link: https://www.frontiersin.org/articles/10.3389/fpsyg.2022.928629/full

summary In this conversation, Lisa A Riegel discusses the challenges parents face in supporting their children, the importance of understanding the biology of stress and perception, and effective communication strategies. She emphasizes the need for self-awareness in both parents and children, the significance of creating a supportive home environment, and the value of allowing children to explore and learn from their experiences. The discussion also touches on the importance of finding joy and self-control in parenting, and the necessity of gratitude in fostering positive relationships.

takeaways

1. Parents often feel unprepared and overwhelmed in their roles.
2. Understanding the biology of stress can help parents manage their reactions.
3. Effective communication involves recognizing and naming emotions.
4. Self-awareness is crucial for both parents and children.
5. Creating a supportive home environment fosters children's growth.
6. Allowing children to explore helps them develop resilience.
7. Mindfulness practices can enhance emotional regulation.
8. Gratitude can improve family dynamics and relationships.
9. Parents should model self-care and emotional awareness.
10. Building a strong parent-child connection is essential for development.

titles

1. Navigating Parenting Challenges
2. The Neuroscience of Parenting

Sound Bites

1. "Parents are left behind."
2. "Name my face now."
3. "Gratitude can never go wrong."

Chapters

00:00Introduction and Background of Lisa A Riegel

01:08Understanding Parental Engagement and Neuroscience

02:58The Impact of Stress on Learning and Behavior

04:42Navigating Teenage Emotions and Communication

08:45Self-Awareness and Emotional Regulation

14:16Practical Strategies for Parents and Children

16:10The Role of Self-Awareness in Parenting

20:38Building Family Connections Through Communication

21:41The Importance of Family Dinners

22:55Cultivating Positive Mindsets in Children

23:43Navigating Parenting Challenges

25:21The Pressure of Modern Childhood

26:06Finding Personal Fulfillment

27:39Understanding Happiness and Self-Awareness

29:07Developing Self-Care Routines

31:15Managing Anxiety and Control

32:34Influence of Peers and Social Media

35:11Choosing Happiness and Life Changes

37:04Final Thoughts for Parents and Educators

specialedrising.com

epinstitute.net

lisarego.com.

https://www.gofundme.com/f/join-rays-respite-care-mission

Mark examines the aggressive federal immigration enforcement surge led by DHS, ICE, and Border Patrol, including mass arrests, militarized operations in residential neighborhoods, and multiple fatal encounters involving U.S. citizens. He addresses the killings of Renée Nicole Good and Alex Pretti, the mounting allegations of illegal and inhumane ICE practices, and the constitutional crisis triggered by unchecked executive power.

This episode also draws historically grounded parallels to past authoritarian regimes—not as sensationalism, but as a warning. Through legal analysis, scholarly research, and firsthand accounts, Mark explores how democratic erosion happens: through normalization, propaganda, the weakening of oversight, and the weaponization of fear against marginalized communities.

This is not a partisan episode. It is a civic one.

If you believe in due process, equal protection, and the rule of law, this conversation is not optional.

🧭 What We Cover in This Episode

1. Why Mark is stepping beyond disability policy for this urgent episode
2. The federal immigration enforcement surge in Minnesota
3. Militarized ICE operations and mass detentions
4. The killings of Renée Nicole Good and Alex Pretti
5. Allegations of warrantless stops, racial profiling, and suppression of civilian recording
6. Federal court intervention and constitutional challenges
7. The concept of the “prerogative state” and authoritarian drift
8. How language and propaganda are used to dehumanize targeted groups
9. Historical warning signs of democratic erosion
10. Why silence and normalization are the real danger

🧠 Key Themes

1. Federal overreach and lack of accountability
2. Due process and Fourth Amendment erosion
3. State vs. federal power conflicts
4. Militarization of civilian law enforcement
5. The human cost of unchecked authority
6. Historical parallels to authoritarian systems
7. Civic responsibility in moments of democratic crisis

📌 Sources Referenced

1. CBS News — Minneapolis becomes ground zero in immigration crackdown
2. PBS NewsHour — Federal court hearings on Minnesota enforcement surge
3. Business Insider — Labor unions call for ICE to leave Minnesota
4. ACLU — Statements on ICE and CBP deployment
5. The Guardian — Constitutional challenges to ICE operations
6. Center for American Progress — How democracies erode
7. Berkeley News — Historians on modern fascism parallels
8. Wikipedia — Dual State (Model)
9. Minneapolis.gov — Legal filings on Operation Metro Surge
10. Wikipedia — Killing of Alex Pretti
11. Wikipedia — 2026 Anti-ICE Protests in the United States

(Full source list available on specialedrising.com)

📣 Call to Action

If you’re listening to this and thinking, “Someone should do something,” that someone is you.

Share this episode. Call your representatives. Demand accountability. Show up in your community.

Silence is complicity—and democracy doesn’t defend itself.

🔗 Links

🌐 Website: https://specialedrising.com

📬 Contact Mark: specialedrising@gmail.com

https://www.gofundme.com/f/join-rays-respite-care-mission

But representation is not the same as support.

In this episode, we look beyond the celebration to ask harder questions:

Can a single doll represent the full autism spectrum? Who gets included—and who gets left out—when disability is made marketable? And does visibility sometimes make the world more comfortable without changing the systems families depend on?

We explore the autistic Barbie’s design, the mixed reactions from autistic adults and parents, and the growing gap between symbolic inclusion and real-world support. From IEP battles and underfunded schools to weakened enforcement of IDEA, parents are often left holding two truths at once: pride in being seen and exhaustion from fighting systems that still don’t work.

This episode isn’t about rejecting representation—it’s about demanding more.

Because symbols can open the door, but policy, funding, and accountability decide whether our kids get through it.

🧠 Resources & Research from the Episode

1. Creating Inclusive Schools for Autistic Students (Scoping Review) – Frontiers in Education
2. https://www.frontiersin.org/journals/education/articles/10.3389/feduc.2025.1630710/full?utm_source=chatgpt.com
3. Teachers’ Perceptions & Strategies for Inclusion – Springer
4. https://link.springer.com/article/10.1007/s10803-021-05266-4?utm_source=chatgpt.com
5. School-Based Interventions for Social Inclusion – Springer
6. https://link.springer.com/article/10.1007/s40489-024-00429-2?utm_source=chatgpt.com
7. Improving Student Attitudes Toward Autistic Peers – PubMed
8. https://pubmed.ncbi.nlm.nih.gov/37615921/?utm_source=chatgpt.com
9. Strategies Supporting Inclusive Education for Autistic Students – PubMed
10. https://pubmed.ncbi.nlm.nih.gov/36382073/?utm_source=chatgpt.com
11. Mattel Launches First Autistic Barbie – The Guardian
12. https://www.theguardian.com/society/2026/jan/12/mattel-launches-its-first-autistic-barbie?utm_source=chatgpt.com
13. Mattel Teams with Autistic Self Advocacy Network – AP News
14. https://apnews.com/article/9c33f493a04c4f52bb8d08026b6f5f53?utm_source=chatgpt.com
15. Teacher Knowledge & Self-Efficacy Toward Inclusion – PubMed
16. https://pubmed.ncbi.nlm.nih.gov/38155371/?utm_source=chatgpt.com
17. Challenges in Mainstream Schools for Inclusion – PubMed
18. https://pubmed.ncbi.nlm.nih.gov/38481460/?utm_source=chatgpt.com

Parents, educators, and advocates: This episode is for anyone who wants to see representation and real support for autistic kids. Let’s celebrate the wins without losing sight of the work still ahead.

specialedrising.com

https://www.gofundme.com/f/join-rays-respite-care-mission

https://iparent101.com/

We also explore an unexpected lesson from Marcel the Shell with Shoes On—a tiny, one-eyed shell whose story teaches us about uniqueness, dignity, interdependence, and the importance of seeing potential over difference.

Whether you’re navigating IEP meetings, advocating for accommodations, or just trying to make sense of a system that wasn’t built for your child, this episode is a reminder that access, advocacy, and informed action are the keys to inclusion.

Key Takeaways:

1. IDEA rights remain intact, but implementation depends on proactive, informed parents.
2. Transparency is increasing in some states, but families must still monitor progress and ask questions.
3. Difference is not deficit—uniqueness opens doors, Marcel-style.
4. Advocacy isn’t optional; it’s essential.

Resources Mentioned:

1. Individuals with Disabilities Education Act (IDEA) – U.S. Department of Education
2. Empowering Families in Special Education Act (proposed) – U.S. Congress
3. New Jersey Department of Education – IEP transparency
4. Connecticut State Department of Education – Parent guides
5. Wrightslaw – Special education law & advocacy
6. COPAA – Family-centered advocacy
7. Marcel the Shell with Shoes On (2021), dir. Dean Fleischer Camp

specialedrising.com

https://www.gofundme.com/f/join-rays-respite-care-mission

https://iparent101.com/

What You’ll Learn in This Episode:

1. Rising Demand & Identification: How IDEA eligibility continues to grow, and what that means for assessments and services.
2. Inclusion & Instruction: Why true inclusion goes beyond placement and how social integration and belonging impact outcomes.
3. Technology & Personalized Learning: How AI, adaptive tech, and assistive technology are transforming learning—and what parents need to watch for in IEPs.
4. Early Intervention & Life Skills: Evidence showing early supports improve long-term outcomes, plus the growing focus on independence, job readiness, and daily living skills.
5. Policy, Funding & System Challenges: How ending ESSER funds, Medicaid changes, and the One Big Beautiful Bill impact school services, staffing, and delivery.
6. Well-Being & Teaching Strategies: Trauma-informed instruction, social-emotional learning (SEL), and Universal Design for Learning (UDL) as key strategies for student success.

Why This Matters:

Parents need to advocate early, clearly, and consistently, stay informed about policy changes, and ensure their child’s services are delivered as written in the IEP. Advocacy doesn’t mean knowing everything—it means showing up, asking questions, documenting, and never letting decisions about your child happen without you.

Resources & Links Mentioned in the Episode:

1. Special Ed Rising: specialedrising.com — tips, tools, and parent coaching
2. YouTube Channel: Special Ed Rising YouTube
3. Ray’s Respite Care GoFundMe: [link in show notes] — help bring relief and joy to families
4. Safer Starter iPhone: iparent101.com — advocate for safer technology for kids
5. 52 Love Letters to You by Jyoti Jo Manuel: lovefromjyoti.com — daily reflections for self-compassion

Takeaway:

Your voice matters. Your presence matters. And your child’s future is worth the discomfort of pushing back. Systems don’t protect children—people do.

References for 2026 Trends Episode

1. K–12 Dive – Reporting on rising special education enrollment and IDEA eligibility trends.
2. Read more
3. The Guardian – UK parental requests for special education assessments and system challenges.
4. Read more
5. The Edvocate – Insights on inclusive classrooms and benefits for students academically and socially.
6. Read more
7. National Library of Medicine / PubMed – Research on meaningful inclusion, early intervention, and long-term outcomes.
8. Inclusion & belonging: PMC article
9. Early intervention & outcomes: PubMed study
10. Springer Nature – Systematic reviews on AI and adaptive technologies in special education for personalized learning.
11. Read more
12. GovTech.com – Guidance on ethical, equitable implementation of AI in schools.
13. Read more
14. Education Week – Parent perspectives on AI enhancing inclusivity in education.
15. Read more
16. Project Understanding – Evidence supporting early childhood programs improving long-term academic and social outcomes.
17. Read more
18. Illuminated Minds – Trends emphasizing life skills, independence, and job readiness in special education.
19. Read more
20. Oregon Public Broadcasting (OPB) – Analysis of the One Big Beautiful Bill (2025) and its impacts on Medicaid and school funding.
21. Read more
22. Skillman Foundation – Insights into how federal funding changes affect state budgets and education services.
23. Read more
24. Edmentum – Trends in trauma-informed teaching, social-emotional learning (SEL), and instructional strategies.
25. Read more
26. Teachers Institute – Universal Design for Learning (UDL) research and classroom applications.
27. Read more

specialedrising.com

www.lovefromjyoti.com www.specialyoga.co.uk

https://www.gofundme.com/f/join-rays-respite-care-mission

https://iparent101.com/

As 2025 comes to a close, this episode of Special Ed Rising; No Parent Left Behind takes a hard look at the policies that continue to marginalize disabled children, adults, and their families. From reduced Medicaid funding and overwhelming waitlists for home- and community-based services, to inaccessible housing and restricted employment opportunities, we explore how these choices play out in real lives across the country.

We dig into how exclusion is not just a policy issue—it’s a reflection of our values. What happens when disabled people are seen as “costs” or “burdens,” when immigrant families fear accessing services, or when Black and Brown disabled students face disproportionate discipline?

This episode challenges listeners to ask: where does our fear and prejudice end, and where does our humanity begin? Learn practical ways to take action, advocate for inclusive policies, and support disability-led initiatives.

Special Ed Rising is your guide to turning frustration into advocacy, isolation into community, and silence into action. No parent should navigate this system alone, and no story should be dismissed.

Takeaways: Special Ed Rising – Rising Against Exclusion

Exclusion is real and measurable.

Policy choices—like cuts to Medicaid, long HCBS waitlists, inaccessible housing, and restricted employment—directly affect whether disabled people can live independently and with dignity.

Discrimination intersects with other identities.

Race, language, class, and immigration status intensify the impact of disability exclusion. Black and Brown students, immigrant families, and low-income households often face compounded barriers.

Inclusion is a value, not a luxury.

When disabled people are framed as “burdens” or “exceptions,” society tolerates inequity. Advocates must challenge these narratives to center dignity, equity, and humanity.

Action starts locally.

Attend IEP meetings, school board sessions, and legislative hearings. Advocate for accessible housing, inclusive education, and equitable employment opportunities. Share your lived experiences—statistics alone aren’t enough.

Change begins with community and persistence.

Exclusion isn’t inevitable. By showing up, speaking out, and supporting disability-led organizations, families, educators, and advocates can transform frustration into collective power.

You are not alone.

Special Ed Rising exists to amplify parent and caregiver voices, break down complex policies, and foster a supportive community where no parent is left behind.

Call to Action:

Show up at IEP meetings, school boards, and legislative hearings. Share your story. Support disability-led organizations. And when inclusion is dismissed as “too expensive,” speak up—because change begins with people who refuse to accept less for their children, their families, and their futures.

specialedrising.com

www.lovefromjyoti.com  www.specialyoga.co.uk

https://www.gofundme.com/f/join-rays-respite-care-mission

https://iparent101.com/

Resources & References for This Episode

• Medicaid & Disability Services: Learn more about how Medicaid supports people with disabilities and recent policy changes. Kaiser Family Foundation
• Accessible Housing: Data on how few housing units are truly accessible for adults with disabilities and the barriers families face. Urban Institute, Northeast Arc
• Education & Discipline Disparities: Research on how Black and Brown students with disabilities are disproportionately disciplined or denied supports. Skiba et al., 2011, U.S. Department of Education, Office for Civil Rights
• Employment & Work Programs: Information about employment programs for disabled adults and barriers to competitive employment. Social Security Administration – Ticket to Work, Kaye, 2010
• Early Intervention for Immigrant Families: Challenges immigrant families face accessing services for their disabled children. National Center for Family Professional Partnerships
• General Disability Advocacy & Resources: Practical guides for inclusion, accessibility, and advocacy. Disability Rights Education & Defense Fund
• Special Education Policy & Practice: How schools and states manage services, inclusion, and supports for students with disabilities. National Center for Special Education in Charter Schools

Before policies, programs, or solutions, we have to acknowledge the lived experience of families navigating special education every day. Families aren’t just managing paperwork—they’re carrying fear, exhaustion, and the pressure to get it right in a system that often asks too much without offering enough support.

I explore the emotional toll on families, the concept of parent role strain, why burnout is not failure, and how broken follow-through erodes trust. Drawing on research and real-world experience, this episode highlights what actually helps families thrive: clear communication, consistent implementation, meaningful partnership, and access to training, coaching, and community.

In this episode:

• Why parental stress and burnout are predictable—not personal failures
• How jargon and broken follow-through block collaboration
• Why parent voice and partnership improve outcomes
• Practical ways schools and systems can support families

Special Ed Rising supports individuals with disabilities across education, access, and health.

⭐ If you enjoy the show, please rate, review, subscribe, and share.

Resources & Advocacy

• Parent coaching & tools: specialedrising.com
• Support Ray’s Respite Care https://www.gofundme.com/f/join-rays-respite-care-mission
• Join the call for a Safer Starter iPhone: iparent101.com
• Featured book: 52 Love Letters to You by Jyoti Jo Manuel — lovefromjyoti.com

When families are informed, respected, and supported, students thrive. When families rise, systems must follow.

REFERENCES (APA)

Cheng, A. W. Y., & Lai, C. Y. Y. (2023). Parental stress in families of children with special educational needs: A systematic review. Frontiers in Psychiatry, 14, Article 1223456. https://doi.org/10.3389/fpsyt.2023.1223456

Mooren, M. A. (2025). How parents experience language during IEP meetings: Perceptions of language and collaboration (Doctoral dissertation, Marquette University).

Pennington, S. E., Tang, J. H., Divoll, K., & Correll, P. (2024). A scoping review of parent interactions with teachers and school environments. Education Sciences, 14(3), 294. https://doi.org/10.3390/educsci14030294

The Impact of parental involvement on the educational development of students with autism spectrum disorder. (2025). Children, 12(1), Article 1062. https://doi.org/10.3390/children12011062

The effect of family–educator relationships on special educator well-being. (2025). Education Sciences, 15(9), 1120. https://doi.org/10.3390/educsci15091120

In this enlightening conversation, Mark and Jyoti explore the profound themes of self-love, mindfulness, and the healing power of nature. Jyoti, known as the 'Love Whisperer', shares her journey of embracing imperfection and the importance of pausing to reconnect with oneself. They discuss the significance of listening to our bodies, the impact of love letters, and the transformative power of forgiveness. Throughout the dialogue, they emphasize the necessity of self-care and the role of nature as a healer, encouraging listeners to cultivate a deeper connection with themselves and the world around them.

takeaways

• Self-love is essential for personal growth.
• Nature has a healing power that we often overlook.
• Forgiveness is a choice that leads to love.
• Listening to our bodies can guide us to better health.
• The pause in our busy lives is crucial for mindfulness.
• Embracing imperfection allows for true self-acceptance.
• Practicing self-care is not selfish; it enhances our ability to care for others.
• Love letters can serve as powerful reminders of self-compassion.
• We are all messy human beings, and that's okay.
• Connecting with nature can ground us and bring peace.

titles

• The Love Whisperer's Journey to Self-Discovery
• Embracing Imperfection: A Path to Self-Love

Sound Bites

• "The pause is powerful."
• "Self-care is not selfish."
• "Forgiveness brings love."

Chapters

00:00

Reconnecting with Nature and Self

04:30

The Journey of the Love Whisperer

12:51

Embracing Imperfection and Self-Love

16:26

The Power of Pause and Presence

23:21

Listening to the Body and Energy

30:21

The Importance of Self-Care

34:33

Nature as a Healer

39:53

The Impact of Love Letters

44:41

Forgiveness and Self-Compassion

47:24

Grounding Practices for Everyday Life

specialedrising.com

www.lovefromjyoti.com  www.specialyoga.co.uk

https://www.gofundme.com/f/join-rays-respite-care-mission

Transition out of high school isn’t just a formality — it’s one of the biggest turning points in your child’s life. Whether your child is only a few years away from graduation or still early in middle school, this episode will be a game-changer for your planning.

In this episode, I dig into what transition planning actually is, why it matters, when it should start, and how to make sure your child doesn’t fall into the dreaded service gap that so many families experience after graduation. We’ll also look at late-start scenarios — because yes, even if your child is a senior, you still have options.

Transition planning is a coordinated, legally required process that helps students with disabilities move from school into adult life — college, employment, vocational training, independent or supported living, and community participation. It starts as early as 14 in many states and must reflect the student’s strengths, needs, interests, and goals. Student voice is essential, and schools should support them in identifying what they want for their future. Strong transition planning includes academic alignment, continued related services, community experiences, employment preparation, independent living skills, and early connections to adult-service agencies like OPWDD or VR. Families should watch for red flags such as late planning, no action behind goals, or missing adult-service involvement — these gaps can cause major delays later.

Parents can take meaningful steps whether their child is 14 or already a senior. For younger students, review IEP transition goals, explore community opportunities, and connect early with state agencies. For seniors starting late, request an urgent IEP meeting, add measurable goals, complete transition assessments, apply immediately to adult services, and consider delaying graduation if needed — accepting a diploma ends IEP rights. Transition isn’t extra — it is the future — and with informed planning and strong school partnerships, young adults can move confidently into the next chapter.

these are the authoritative documents and organizations that the content is based on:

Key Federal Laws & Guidance

• Individuals with Disabilities Education Act (IDEA 2004)
• Section 614(d)(1)(A)(i)(VIII): Transition services requirements
• Section 602(34): Definition of transition services
• U.S. Department of Education – Office of Special Education Programs (OSEP)
• Transition Guide to Postsecondary Education and Employment for Students and Youth With Disabilities (2017)
• Rehabilitation Act of 1973 (as amended by WIOA)
• Requirements for Pre-Employment Transition Services (Pre-ETS)
• State Vocational Rehabilitation (VR) coordination with schools

National Organizations / Best-Practice Sources

• National Technical Assistance Center on Transition (NTACT & NTACT:C)
• Evidence-based practices in transition planning
• Transition assessment guidelines
• Center for Parent Information and Resources (CPIR)
• Parent-friendly resources on transition and IEP requirements
• National Parent Center on Transition and Employment (PACER Center)
• Guidance on student involvement, family roles, and planning steps
• Council for Exceptional Children (CEC)
• CEC Standards for Transition Specialists
• Best practices in secondary transition
• state vocational rehabilitation agencies
• VR eligibility, Pre-ETS, and transition timelines

Research-Based References

• Test, D. W., et al. (2009). Evidence-Based Secondary Transition Practices for Improving Postschool Outcomes for Students with Disabilities.
• Kohler, P. (1996/2003). Taxonomy for Transition Programming.
• Landmark, L. J., et al. (2010). Transition planning for students with disabilities: Best practices.

Specialedrising.com

https://www.gofundme.com/f/join-rays-respite-care-mission

In this engaging conversation, Lynn Greenberg discusses her journey, along with her son Jonathan, as co-authors of children's books that focus on neurodiversity, particularly ADHD. She shares insights about her son Jonathan's experiences, the importance of advocacy, and the challenges faced by parents and educators in supporting neurodiverse children. The discussion highlights the need for understanding, inclusion, and the celebration of differences in children, as well as the role of literature in fostering these values.

titles

• Navigating Neurodiversity: A Conversation with Lynn Greenberg
• Empowering Children Through Literature

Sound Bites

• "It's his superpower."
• "Why be an ostrich?"
• "Parents are the heroes."

keywords

ADHD, neurodiversity, children's books, education, advocacy, parenting, self-advocacy, inclusion, accessibility, creative cab company

takeaways

• John is pursuing his MFA and hopes to teach.
• The new book addresses ADHD and its challenges.
• Neurodiversity should be celebrated as a strength.
• Understanding differences in children is crucial.
• Teachers need more training to support diverse learners.
• Parents play a vital role in advocating for their children.
• Children should learn to self-advocate as they grow.
• Language used in education can impact perceptions of neurodiversity.
• Inclusion in literature helps all children feel seen.
• Community support is essential for families with neurodiverse children.

https://creativecabcompany.com/

https://specialedrising.com/

https://www.gofundme.com/f/join-rays-respite-care-mission

Chapters

00:00

Technical Difficulties and Personal Updates

02:54

Celebrating Achievements in Children's Literature

05:26

Understanding Neurodiversity: ADHD and Dyslexia

08:10

Capturing Strengths and Challenges in Storytelling

10:50

The Importance of Acceptance and Understanding

13:29

Navigating Education: The Role of Parents and Teachers

16:16

Advocating for Change in Education

19:17

Empowering Children to Self-Advocate

21:53

Empowering Children Through Decision-Making

22:58

Navigating the Challenges of Modern Parenting

24:25

Understanding ADHD in Girls

26:39

The Language of Special Needs

28:33

Accessibility in Children's Literature

31:53

Fostering Conversations Around Learning Differences

34:45

Finding Community and Support

37:26

The Role of Parents as Heroes

38:26

Resources for Parents and Educators

40:57

Creative Expression Through Art

42:06

Exploring New Themes in Children's Books

technology, parenting, child development, mental health, iOS Grow, neurodiversity, anxiety, impulsivity, behavior modification, digital stimulation

summary

In this conversation, Mark and Dr. Adam Pletter discuss the significant impact of technology on parenting and child development. They explore the challenges parents face in managing their children's technology use, the importance of scaffolding in introducing technology, and the responsibility of tech companies to create safer environments for children. Adam shares insights on the neuroscience behind impulsivity and anxiety in youth, offering strategies for parents to help their children navigate the digital world. The discussion culminates in Adam's grassroots movement called iOS Grow—a health-first iPhone experience designed with families in mind. Think of your child’s first phone like a learner’s permit: features are unlocked over time, not all switched on by default. The idea is to start with safety, not restriction—plus age-based check-ins and even a ‘co-parent mode’ to help two-household families stay consistent and reduce conflict.

 iOS Grow: A Health-First iPhone Experience for Families

What if your child’s first iPhone supported their mental health and development?

iOS Grow is a guided iPhone experience that helps kids grow into technology—not just grow up on it. Grounded in developmental science, it evolves as children mature and as families build trust.

• Developmental Defaults: App access, notifications, and time settings calibrated to a child’s age and stage.
• Digital Milestones: Built-in check-ins at key ages (8, 11, 13) prompt families to review and adjust settings together.
• Healthy Rhythms: Screen time synced with sleep, school, and Apple Health data.
• Co-Parent Mode: Shared limit-setting and visibility across two households—reducing conflict and promoting consistency.
• Flexible Access: Offered as either a dedicated Starter iPhone or a downloadable Grow Mode for hand-me-downs.

Why it matters:

Today, 88 % of U.S. teens own or have access to a smartphone (Pew Research Center, 2023), and most own iPhones. Families are forced to work backward—full access first, restrictions later. iOS Grow flips that script: parents unlock autonomy as kids demonstrate readiness.is resonates with you, please add your voice. It takes 60 seconds to give Apple direct feedback through his campaign at iParent101.com/applefeedback. Now, let’s get started.”

takeaways

• Technology is a significant parenting challenge today.
• Scaffolding technology use is essential for child development.
• Tech companies have a responsibility to create safer environments for children.
• Anxiety is a natural part of human survival and development.
• Children's brains are still developing, impacting their decision-making.
• Parents need to understand the reference points of their children regarding technology.
• Impulse control can be taught and practiced.
• Balance in technology use is a constant adjustment.
• The iOS Grow initiative aims to help parents manage technology use.
• Collaboration between parents and tech companies is crucial for child safety.

titles

• Navigating Parenting in the Digital Age
• The Role of Technology in Child Development

Sound Bites

• "Pressure's on to just be you."
• "Every teenager grew up with YouTube."
• "I'm eager to work with Apple."

Chapters

00:00

Introduction and Setting the Scene

02:51

Understanding Technology's Impact on Parenting

05:29

The Convergence of Personal Experience and Professional Insight

08:04

Scaffolding Technology Use for Children

10:39

The Speed of Technology and Its Implications

13:17

Neuroscience of Child Development and Technology

16:06

Addressing Parental Concerns About Technology Use

18:47

Building Capacity Instead of Restricting Access

21:43

The Future of Human Development in a Digital Age

30:36

Understanding Anxiety and Emotional Responses

33:36

Strategies for Coping and Resetting

35:53

Empathy in Therapy and Understanding Neurodiversity

39:49

The Need for a New Approach to Technology

44:59

iOS Grow: A New Paradigm for Child Technology Use

50:10

The Future of Technology and Mental Health

https://iparent101.com/

https://iparent101.com/smarter-first-iphone-lets-give-apple-our-feedback/

• @iparent101 Youtube-1 minute truths with Dr. Pletter

specialedrising.com

https://www.gofundme.com/f/join-rays-respite-care-mission

I’ll cover:

• Who will be most impacted by SNAP disruptions and why children with special needs are particularly vulnerable.
• How school meal programs may be affected if SNAP benefits stop.
• Immediate, practical steps families can take to ensure their children have access to food.
• Advocacy tips to protect families and hold policymakers accountable.

This is more than a funding issue—it’s about the stability, health, and focus of children who rely on these programs. Learn how to prepare, plan, and stay informed during this crisis.

Resources & Links Mentioned in This Episode:

• Visit specialedrising.com for parent coaching, tools, and resources.
• Support Ray’s Respite Care for individuals with severe medical disabilities: GoFundMe link in the show notes.
• Check your local school district for updates on meal programs.
• Find local food banks and community support programs to help families during SNAP delays.

Takeaway Message:

SNAP isn’t welfare—it’s a lifeline for working families who still struggle to afford groceries. When federal funding is delayed, children’s health, learning, and therapy routines are directly impacted. This episode gives you practical steps to safeguard your child’s nutrition, maintain stability, and advocate for families in need.

Action Steps:

1. Check your EBT balance and plan for remaining funds.
2. Prioritize essential food purchases and special diet needs.
3. Stay up-to-date on recertification and eligibility requirements.
4. Connect with local food banks and disability service organizations.
5. Coordinate with your school’s nutrition services for backup plans.
6. Share this information with other parents, caregivers, and IEP teams.

Stay Informed & Connected:

No parent should have to wonder if their child will eat tonight. Subscribe to Special Ed Rising: No Parent Left Behind to stay updated on policies and strategies that affect families of exceptional learners.

https://specialedrising.com/

https://www.gofundme.com/f/join-rays-respite-care-mission

Episode Summary

In this powerful and deeply personal episode, host Mark Ingrassia goes off-script to confront an uncomfortable reality — the misuse of his own family name in the halls of power. When Paul Ingrassia, a Trump nominee for the Office of Special Counsel, was exposed for sharing racist and extremist remarks, Mark knew he couldn’t stay silent.

This episode examines the intersection of ethics, public service, and disability advocacy, revealing what happens when integrity takes a backseat to ideology. Mark draws a sharp contrast between two Ingrassias: one who abused trust, and another fighting to restore it — using his platform to promote inclusion, decency, and accountability in the systems meant to protect the most vulnerable.

Through this lens, Mark redefines what the Ingrassia name stands for — compassion, service, and justice — and calls on all of us to keep watching, questioning, and demanding better from our leaders.

Key Topics

• 🚨 The failed nomination of Paul Ingrassia to the Office of Special Counsel
• 💬 His documented extremist remarks and their implications for federal ethics
• 🧩 Why integrity in government oversight matters for the disability community
• ⚖️ The contrast between ideology and accountability in public service
• 🔦 Reclaiming the Ingrassia legacy through advocacy, inclusion, and truth
• 🧠 Historic and modern-day Ingrassias whose work elevated science, art, and justice
• 🌍 Why vigilance — “sunlight” — still works when we refuse to look away

Featured Legacy Highlights

• Giovanni Filippo Ingrassia (1510–1580): Father of Sicilian medicine; discovered the stapes bone.
• Ciccio Ingrassia (1922–2003): Beloved Italian actor and comedian.
• Anthony Ingrassia (1944–1995): American playwright and director.
• Julien Ingrassia (b. 1979): Champion rally co-driver.
• Angelo Ingrassia (1923–2013): New York Supreme Court Justice.

Each name reflects creativity, intellect, and service — the true spirit of the Ingrassia legacy.

Quote of the Episode

“You can’t have justice when the gatekeeper doesn’t believe in equality.” — Mark Ingrassia

Resources & Links

• 🌐 Website: specialedrising.com — Explore resources, parent coaching, and advocacy tools.
• 🎥 YouTube Channel: Special Ed Rising — Watch interviews, episodes, and insights.
• 💗 Support Ray’s Respite Care: [GoFundMe Link in Show Notes] — Help build vital support for families caring for loved ones with disabilities.
• 🎶 Sponsor: Music Workshop — Learn more at musicworkshop.org.

Closing Message

This episode is more than a response to controversy — it’s a reclamation. The Ingrassia name doesn’t belong to hate; it belongs to hope. Through awareness, empathy, and unwavering accountability, we can all redefine what integrity looks like in action.

Let’s start prioritizing integrity and accountability — on our way to another win!



specialedrising.com

https://www.gofundme.com/f/join-rays-respite-care-mission

finances, unhappiness, avoidance, contentment, relationships, financial health, mental health, parenting, emotional well-being, happiness

summary

In this conversation, Lori Atwood speaks to the Exceptional Needs parents as well as all parents. She discusses the profound impact of emotional well-being on financial health. She emphasizes that unhappiness, whether stemming from personal relationships or life circumstances, can lead to poor financial decisions and increased spending as a coping mechanism. The discussion highlights the importance of addressing emotional issues to improve both personal happiness and financial stability.

takeaways

• Avoidance is very, very bad.
• The worst thing for your finances is unhappiness.
• Throwing money at problems is a temporary fix.
• Life's challenges can lead to financial strain.
• Contentment is key to better financial decisions.
• Addressing personal issues can improve finances.
• Unhappiness in relationships affects financial health.
• Seeking help is crucial for emotional and financial well-being.
• Financial decisions are often influenced by emotional states.
• Happiness leads to better parenting and financial management.

titles

• The Hidden Costs of Unhappiness
• Financial Health and Emotional Well-Being

Sound Bites

• "Avoidance is very, very bad."
• "Life is just such a up cluster."
• "There's no promise of tomorrow."

Chapters

00:00

Introduction and Early Riser Discussion

00:52

The Ripple Effect of Family Dynamics

01:05

Navigating Divorce and Financial Planning

specialedrisng.com

https://fearlessfinance.com/

$50 off promo code: INGRASSIA

https://www.gofundme.com/f/join-rays-respite-care-mission

children's literature, overcoming shyness, teaching, inclusivity, parenting, socialization, kindness, acceptance, education, writing process

summary

In this conversation, Christine Devane shares her journey from a shy child to a teacher and author, emphasizing the importance of kindness, acceptance, and inclusivity in education. She discusses her book 'Elephant Beach', which addresses the experiences of shy children and encourages them to step outside their comfort zones. The conversation also highlights the significance of socialization in homeschooling, the spontaneity of parenting, and Christine's future projects that tackle themes of grief and emotional connection. The discussion underscores the vital role of teachers and parents in nurturing children's individuality and emotional well-being.

takeaways

• Christine's journey from shyness to teaching shaped her understanding of children's needs.
• Inclusivity in classrooms is crucial for fostering a supportive environment.
• 'Elephant Beach' conveys messages of courage and acceptance for shy children.
• Homeschooling can provide socialization opportunities if approached thoughtfully.
• Spontaneity in parenting leads to memorable experiences for children.
• Classroom visits allow for engaging activities that enhance learning.
• Future projects include addressing grief and emotional connections in children's literature.
• Libraries are valuable resources for encouraging children's reading habits.
• Every child has a unique personality that should be respected and nurtured.
• Teaching kindness and acceptance is essential in today's world.

titles

• Embracing Shyness: A Teacher's Journey
• The Power of Kindness in Children's Literature

Sound Bites

• "It's okay to be shy."
• "Every day is different with kids."
• "Teaching kindness is essential."

https://www.christine-devane.com/

https://specialedrising.com/

https://www.gofundme.com/f/join-rays-respite-care-mission

takeaways

• Maria's daughter was diagnosed with autism at a young age, highlighting the importance of early intervention.
• Many Black children are diagnosed later than their peers, impacting their access to services.
• Implicit bias in healthcare leads to Black parents being taken less seriously when advocating for their children.
• Community support is crucial for Black families navigating autism.
• Parents need to advocate for their children and trust their instincts.
• The transition from school to adulthood is challenging for autistic individuals.
• Self-care is essential for parents dealing with the stress of advocacy.
• Education systems often fail to accommodate the needs of neurodivergent students.
• There is a need for more representation and awareness in the Black community regarding autism.
• Policies affecting autism services must include the voices of those impacted.

titles

• Navigating Autism and Race: A Personal Journey
• The Impact of Delayed Diagnosis on Black Families

Sound Bites

• "Your biases are at play here."
• "It's difficult for me as a parent."
• "You can't let anyone gaslight you."

Chapters

00:00

Navigating Autism and Race

06:16

The Impact of Delayed Diagnosis

11:51

Implicit Bias in Healthcare

16:34

Community Support and Advocacy

19:47

The Future of Autism Services

23:19

Self-Care and Resilience

23:52

Building a Supportive Network

32:46

Challenges in Education

42:48

Transitioning to Adulthood

47:44

Empowering Parents to Advocate

48:36

The Need for Inclusive Policy Making

https://specialedrising.com/

https://www.autisminblack.org/

https://www.gofundme.com/f/join-rays-respite-care-mission

takeaways

• The importance of having backup plans for technology in education.
• Communication is essential for effective learning and teaching.
• Inclusion and equity are critical in today's educational landscape.
• Universal Design for Learning allows for diverse learning methods.
• AI can serve as a valuable tool for educators and students.
• Parental involvement is crucial for student success.
• Collaboration among educators enhances learning outcomes.
• Executive functioning skills are vital for student success.
• Emotional regulation plays a significant role in learning.
• Teachers need to create safe spaces for students to learn and grow.

titles

• Navigating the Challenges of Education
• The Role of Speech-Language Pathology in Schools

Sound Bites

• "Collaboration is so important."
• "We are all learners."
• "Communication is behavior."

Chapters

00:00

Introduction and Technical Challenges

03:54

The Journey to a Rewarding Career

10:14

Inclusion and Equity in Education

16:38

Universal Design for Learning

23:38

The Role of AI in Speech Pathology

29:22

Innovative Communication Tools for Nonverbal Children

32:36

The Story Behind Glint: A Game Changer

33:50

AI in Education: Enhancing Lesson Planning

36:42

Modeling Resourcefulness: AI as a Support Partner

38:16

Funding Challenges in Education

43:03

The Importance of Collaboration in Education

46:31

Creating Safe Spaces for Teachers

50:05

Executive Functioning and Emotional Regulation

takeaways

• Building relationships is crucial for effective communication.
• Emotional intelligence plays a significant role in interpreting.
• Trust is essential for teaching and learning.
• Interpreters must navigate their own emotions while working.
• Cultural dynamics influence communication styles.
• Technology impacts the deaf community in various ways.
• Self-care is vital for interpreters to avoid burnout.
• Understanding triggers can enhance emotional intelligence.
• The deaf community is evolving with more representation.
• Education systems need to incorporate emotional intelligence training.

titles

• Bridging Worlds: The Role of Interpreters in Deaf Culture
• Emotional Intelligence: The Heart of Effective Communication

Sound Bites

• "Everyone leaves a mark."
• "You live it twice when you journal."
• "The language is central to the culture."

Chapters

00:00

Introduction and Connection

02:52

Understanding the Role of Interpreters

05:42

The Importance of Emotional Intelligence in Interpreting

08:21

Cultural Insights and Personal Experiences

11:17

Navigating the Deaf Community and Family Dynamics

14:02

The Evolution of Deaf Education and Sign Language

16:46

The Art of Interpretation and Performance

19:32

Emotional Intelligence in Practice

22:13

Reflective Practices for Interpreters

24:59

Managing Triggers and Emotional Responses

27:57

Burnout and Emotional Labor in Interpreting

32:29

The Importance of Self-Care for Interpreters

37:11

Navigating Emotional Intelligence in Interpretation

42:06

The Role of Teamwork in Interpretation

44:56

Cultural Norms in the Deaf Community

51:25

The Impact of Technology on Deaf Culture

specialedrising.com

https://www.buildingbridges.global/

https://www.linkedin.com/in/sarah-wheeler-interpreteredu/

https://www.gofundme.com/f/join-rays-respite-care-mission

takeaways

• Rachel has been working with people with disabilities since she was 12.
• She transitioned from teaching to coaching social skills and dating.
• Building trust with clients is essential for effective coaching.
• Rachel uses role-playing and games to teach social skills.
• Confidence is key when meeting new people.
• She encourages clients to try new experiences and adventures.
• Addressing bullying is a significant part of her work.
• Employment challenges for individuals with disabilities are prevalent.
• Rachel combines social skills training with employment support.
• Her passion for helping others is evident in her work.

titles

• Empowering Lives: Coaching for Social Skills and Dating
• Navigating Relationships: Insights from a Social Skills Coach

Sound Bites

• "I want to see my clients succeed."
• "I do not let go of it."
• "It's about knowing ourselves."

Chapters

00:00

Introduction and Background

02:45

Transition to Coaching and Social Skills

05:31

Focus on Social Skills and Dating for Neurodiverse Individuals

08:25

Building Trust and Relating to Clients

11:17

Strategies for Social Interaction

14:04

Encouraging New Experiences and Adventures

16:40

Building Confidence and Self-Worth

19:38

The Importance of Communication in Relationships

22:15

Addressing Bullying and Its Impact

24:58

Employment Challenges for Individuals with Disabilities

27:36

Combining Social Skills with Employment Support

30:18

Success Stories and Client Progress

33:04

Marketing and Growing the Business

35:49

Final Thoughts and Contact Information

specialedrising.com

Rachel Greenberg: 301-641-6293.

rachelgreenberg728@gmail.com

https://www.lifeunlimitedllc.com/

https://www.gofundme.com/f/join-rays-respite-care-mission

takeaways

• Classroom management is a multifaceted challenge that requires understanding individual student needs.
• Music can be a powerful tool for engagement and emotional regulation in the classroom.
• Teachers often face unrealistic expectations that do not align with the realities of their classrooms.
• Building relationships with students is crucial for effective classroom management.
• Punitive measures are often ineffective and can exacerbate behavioral issues.
• Teachers need support and resources to address the diverse needs of their students.
• Creating a supportive and inclusive classroom environment is essential for student success.
• Teachers should be encouraged to innovate and adapt their teaching methods to meet student needs.
• Access to basic needs, such as food and emotional support, is critical for student learning.
• Teacher well-being is directly linked to student outcomes and classroom dynamics.

titles

• Navigating Classroom Management Challenges
• The Power of Music in Education

Sound Bites

• ""Punitive consequences do not work.""
• ""We need to rebuild the system.""
• ""Trust is everything.""

Chapters

00:00

Introduction and Personal Reflections

01:51

Classroom Management and Its Importance

05:09

Giuliana's Background and Expertise

08:55

Classroom Management Strategies

13:25

The Impact of Divisive Concepts Law

18:38

The Role of Music in Education

26:50

Teacher Well-being and Resilience

29:39

Engaging Students Through Music

34:23

Creative Assessment Strategies

37:10

Understanding Classroom Management

37:32

The Role of Differentiation in Teaching

41:26

Creating a Supportive Learning Environment

45:36

Challenges in Modern Classroom Management

47:30

Expectations vs. Reality in Education

51:55

The Impact of Trauma on Learning

54:36

Building Trust and Community in Classrooms

01:02:46

Innovative Teaching Approaches for Engagement

specialedrising.com

https://musicworkshopedu.org/

https://www.gofundme.com/f/join-rays-respite-care-mission

gun violence, advocacy, Moms Demand Action, gun control, mental health, community engagement, legislation, Second Amendment, education, safety

takeaways

• Gun violence is a pressing issue that affects communities nationwide.
• Advocacy efforts are crucial in addressing gun violence and promoting responsible gun ownership.
• Community engagement and education are key to changing perceptions about gun laws.
• Mental health is a significant factor in gun violence, but access to firearms is a critical issue.
• The Second Amendment is often misinterpreted in the context of gun rights and ownership.
• Comparative analysis of gun laws in other countries can provide insights for reform.
• Building relationships within communities is essential for effective advocacy.
• Moms Demand Action operates as a grassroots organization with volunteer support.
• There are various ways for individuals to get involved in advocacy efforts.
• Trauma-informed approaches are necessary for addressing the impact of gun violence on youth.

summary

This conversation delves into the pressing issue of gun violence in America, exploring the role of advocacy, community engagement, and legislation in addressing this crisis. Janet Goldstein, a leader in Moms Demand Action, shares her personal journey and the organization's mission to promote responsible gun ownership and common-sense legislation. The discussion highlights the importance of mental health, the misinterpretation of the Second Amendment, and the need for trauma-informed approaches in schools. Listeners are encouraged to get involved in advocacy efforts and understand the impact of gun violence on communities, particularly among youth.

titles

• Confronting Gun Violence: A Call to Action
• Understanding the Role of Advocacy in Gun Control

Sound Bites

• "Gun violence is a pressing issue."
• "The Second Amendment is often misinterpreted."
• "Education is vital in promoting gun safety."

NOTE: CCM means Concealed Carry Mandate; https://www.congress.gov/bill/119th-congress/house-bill/38

Chapters

00:00

Introduction and Event Reflection

01:28

Janet's Journey with Moms Demand Action

04:19

Understanding Gun Ownership and Safety

06:46

The Assault Weapons Ban and Its Impact

08:58

Motivations Behind Gun Legislation Advocacy

11:42

The Role of Community in Gun Violence Prevention

14:15

Misinterpretation of the Second Amendment

16:51

America's Fascination with Guns

19:44

Engaging Communities Affected by Gun Violence

25:03

Supporting Communities Through Basic Needs

26:37

Listening to the Voices of the Affected

31:08

The Role of Moms Demand Action

33:57

Initiatives for Gun Safety Education

37:55

Addressing Trauma in Schools

43:51

How to Get Involved with Moms Demand Action

https://specialedrising.com/

Ray's Respite Care GoFundMe link: https://www.gofundme.com/f/join-rays-respite-care-mission

In this episode of Special Ed Rising, we explore why small victories matter, how to recognize progress that standardized tests miss, and tools to track your child’s real growth. From tying shoes to making a first friend, these everyday wins are building independence, confidence, and lifelong skills.

What You’ll Learn in This Episode:

• Why milestones and test scores don’t tell the full story of your child’s growth.
• Research-backed ways to capture progress that traditional assessments miss (Curriculum-Based Measurement, Goal Attainment Scaling, and more).
• How to celebrate small wins that often fly under the radar, like social courage, problem-solving, and self-expression.
• Strategies for shifting your mindset—and your child’s—from “behind” to “growing on their own timeline.”
• Practical tools you can start today: one-line journals, photo notes, creating individualized ladders, and sharing victories with your community.
• An introduction to alternative assessments and how they empower children to show what they really know and can do.

Resources & Links:

• Explore tips, tools, and parent coaching: specialedrising.com
• Watch interviews and extra content: Special Ed Rising YouTube Channel
• Support Ray’s Respite Care: [GoFundMe Link in Show Notes]

Reflection Prompt:

Before you go, take a moment to jot down one small victory your child achieved this week. Celebrate it, claim it, and remember—every step counts.

Join the Movement:

Special Ed Rising is a space for inclusion, supporting individuals with disabilities across education, access, and health. If this episode resonated, please rate, review, subscribe, and share—it helps more families find this support and join the mission.

Quote to Remember:

“Progress isn’t always a straight line, and sometimes it doesn’t look anything like what the school charts say. But that doesn’t mean it’s not real.”

💻 Resources & Support: specialedrising.com

🎥 Watch more: Special Ed Rising YouTube

❤️ Support families: Ray’s Respite Care GoFundMe: https://www.gofundme.com/f/join-rays-respite-care-mission

Ray's Respite Care: https://www.raysrespitecare.org/

In this PURGE 47 Edition, host Mark Ingrassia examines how states are handling (or mishandling) the rollback of parent caregiver pay, the devastating effects on families, and why this is about more than just money—it’s about equity, justice, and respect.

📌 What You’ll Learn in This Episode:

• Which states are continuing caregiver pay and which are not
• The policy arguments on both sides—including federal pushback
• How families are scrambling to fill care gaps
• Real-world stories from Idaho, Indiana, New York, and beyond
• What options remain for families after caregiver pay is cut
• How you can advocate for change at the state and federal levels

📝 Resources & References:

• “Medicaid cutbacks will affect unpaid family caregivers” – Wisconsin Examiner, Erik Gunn
• Disability Scoop and Idaho Statesman reporting on Idaho caregiver program cuts
• Board for People with Developmental Disabilities (BPDD) caregiver survey (Wisconsin)
• New York CDPAP and Medicaid Waiver info – NY Post, Times Union, NYS DOH
• Complex Care Act advocacy updates
• Legislative tracking via SpecialEdRising.com

🧾 Full bibliography available

New York State Department of Health. (n.d.). Care at Home waiver program for developmentally disabled children. Retrieved from https://www.health.ny.gov/publications/0548/care_at_home_dev_disabled.htm

New York State Department of Health. (2014, July 7). 1115 Waiver special terms and conditions. Retrieved from https://www.health.ny.gov/health_care/medicaid/redesign/2016/2014-07-07_waiver_authority_stcs.htm

Campbell, C. (2024, May 7). Parents push N.Y. to support care of medically fragile children. Times Union. Retrieved from https://www.timesunion.com/news/article/parents-push-n-y-support-care-medically-fragile-19986153.php

Colón, J. (2024, July 4). Commentary: PPL is failing caregivers and the people they care for. Times Union. Retrieved from https://www.timesunion.com/opinion/article/commentary-ppl-failing-caregivers-people-care-20323023.php

Times Union Editorial Board. (2024, May 23). Another problem with New York’s CDPAP overhaul. Times Union. Retrieved from https://www.timesunion.com/opinion/article/another-problem-new-york-s-cdpap-overhaul-20053619.php

New York Post Editorial Board. (2024, October 8). Opinion: Hochul bows to nursing unions in $12B senior care power play. New York Post. Retrieved from https://nypost.com/2024/10/08/opinion/hochul-bows-to-nursing-unions-12b-senior-care-power-play/

Campanile, C. (2024, December 1). Home care agency exec accuses Hochul team of bid-rigging. New York Post. Retrieved from https://nypost.com/2024/12/01/us-news/home-care-agency-exec-accuses-gov-hochul-team-of-rigging-bid-process-for-9m-program/

Campanile, C. (2024, December 2). Rep. Ritchie Torres calls for bid-rigging probe of Hochul’s $9B home care contract. New York Post. Retrieved from https://nypost.com/2024/12/02/us-news/ritchie-torres-calls-for-bid-rigging-probe-of-hochuls-9b-home-care-contract/

Wikipedia contributors. (n.d.). New York State Office for People With Developmental Disabilities. Wikipedia. Retrieved from https://en.wikipedia.org/wiki/New_York_State_Office_for_People_With_Developmental_Disabilities

Reddit users. (2023–2024). Various discussions on CDPAP and home care in New York. Retrieved from:

• https://www.reddit.com/r/Albany/comments/1i1p6f5/
• 
  
• https://www.reddit.com/r/CaregiverSupport/comments/17rnlqu/
• 
  
• https://www.reddit.com/r/tax/comments/1jcacef/
• 
  
• https://www.reddit.com/r/healthcare/comments/1037it1/
• 
  

Centers for Medicare & Medicaid Services. (n.d.). Appendix K: Emergency preparedness and response and COVID-19. U.S. Department of Health and Human Services. Retrieved from https://www.medicaid.gov

Disability Scoop. (n.d.). National disability news for self-advocates, professionals & families. Retrieved from https://www.disabilityscoop.com

Family Voices. (n.d.). Family-led organization supporting children and youth with special health care needs. Retrieved from https://familyvoices.org

Fixler, K. (2024, June). Idaho ends program that paid parents to care for children with disabilities. Idaho Statesman. Retrieved from https://www.idahostatesman.com

Idaho Department of Health and Welfare. (2024). Budget and Medicaid program data on family caregiver reimbursement. Boise, ID.

KFF Health News. (n.d.). Independent source for health policy news and analysis. Retrieved from https://kffhealthnews.org

National Core Indicators. (2023). Staff Stability Survey Report – 2022. Retrieved from https://www.nationalcoreindicators.org

Paraprofessional Healthcare Institute (PHI). (2022). Direct care workforce data center: Turnover, wages, and policy reports. Retrieved from https://www.phinational.org

The Arc of the United States. (n.d.). Public policy agenda: Supporting paid family caregivers and community living. Retrieved from https://thearc.org

🫶 Support the Mission

Help Sarah Ingledue open Ray’s Respite Care—a dream for medically fragile youth.

💗 GoFundMe Link: https://www.gofundme.com/f/join-rays-respite-care-mission

📣 Call to Action: let your legislators know you want to be compensated for caring for you child

➡️ Subscribe, rate & review this podcast so others can find it

➡️ Share this episode with fellow parents, educators, advocates, and policymakers

➡️ Visit specialedrising.com to learn about parent coaching, advocacy resources, and more

📍 Hashtags for Social Sharing:

#SpecialEdRising #PayFamilyCaregivers #DisabilityJustice #MedicaidMatters #CaregiverRights #Purge47 #SupportNotSilence #NoParentLeftBehind #InclusionNotExclusion

🎧 Closing Message: “If you’re a parent caught in the middle of these policy shifts—please know you’re not alone. This is just the beginning of the fight, and together, we’ll keep rising.”

You’ll hear about:

• The cultural conditioning that teaches us to value conformity over authenticity
• How inclusive education is a justice-driven response to outdated, medicalized views of disability
• The hidden cost of labels in schools and society
• Real-world examples of how systemic ableism sidelines incredible people
• Why our shared humanity is strengthened—not threatened—by neurodiversity and physical difference

From childhood classrooms to adult workplaces, Mark reveals how rethinking ability, identity, and inclusion can create richer, more equitable communities.

💡 Key Takeaways:

• Difference is typical. Every human being is different—that’s the one thing we all have in common.
• Labels have utility—but also weight. They can open doors to services, but they can also box people in.
• Ableism is real, and often invisible. It thrives on unspoken assumptions and systemic design flaws.
• Inclusive education shifts the burden. It moves from “fixing the child” to “adapting the system.”
• Personhood over diagnosis. We must stop seeing people as their labels and start seeing them beyond them.

🧠 Referenced Ideas & Quotes:

• “Labels are for jars.” — Dr. Danielle Farrel
• “I’m not your inspiration, thank you very much.” — Stella Young
• “Different is not broken.” — Mark Ingrassia
• From the National Library of Medicine: The need to shift from disability-as-deficit to disability-as-difference
• From ScienceDirect: Inclusive education as a response to the medical model of disability
• From Access Living: The definition and impact of ableism in society

🙌 Ways to Support the Show:

🌐 Visit: specialedrising.com

🛠️ Explore coaching, tools, and family resources

📺 Watch Interviews: Special Ed Rising YouTube Channel

💛 Contribute to Change:

Help bring Ray’s Respite Care to life—a vital new service for families of exceptional children.

🎁 Support the GoFundMe (Insert Link)

📣 Stay Connected:

• Rate & Review: It helps others find the podcast
• Subscribe: Never miss an episode
• Share: Spread the word to friends, families, and allies
• Follow on Social: (Insert relevant platforms or handles)

🔚 Closing Thought:

When we stop dividing the world into “normal” and “different,” we can finally see people as they are—valuable, worthy, whole. Because difference is not a deficit. It’s a reflection of what makes us human.

Peace, and Keep Rising.

— Mark Ingrassia

specialedrising.com

Ray's Respite Care GoFundMe: https://www.gofundme.com/f/join-rays-respite-care-mission

takeaways

• Frank Lobb has a diverse background, including being a Navy pilot and a consultant on the Clean Air Act.
• Personal experiences with healthcare shaped Frank's understanding of the system's flaws.
• Insurance companies often have the power to deny necessary care, impacting patients' health.
• State laws govern healthcare, and patients have rights that can be asserted.
• Patients can challenge medical bills and demand proof of accuracy from providers.
• Doctors often feel powerless within the current healthcare system due to insurance constraints.
• Frank's book, 'The Big Lie of My Healthcare Bill,' aims to educate patients on their rights.
• Empowering patients involves understanding contracts and advocating for necessary care.
• The recent cuts to Medicaid threaten access to healthcare for vulnerable populations.
• Frank encourages individuals to take an active role in their healthcare decisions.

titles

• Navigating the Healthcare Maze with Frank Lobb
• Understanding Your Rights in the Healthcare System

Sound Bites

• "I have a right in a free market to go get it."
• "The healthcare system is broken."
• "You need to understand the system we have."

Chapters

00:00

Navigating Complexity in Modern Life

01:48

Frank Lobb's Background and Career

03:42

The Impact of Insurance on Healthcare

06:21

Understanding Healthcare Contracts

09:01

The Role of Doctors in the Insurance System

11:34

The Ethics of Healthcare

14:20

The Limitations of the Current Healthcare System

17:01

The Importance of Patient Advocacy

19:26

The Big Lie of Healthcare Insurance

21:51

Strategies for Navigating Healthcare Costs

24:54

Understanding Medical Billing Accuracy

27:38

Navigating Insurance and Legal Rights

30:31

Practical Steps for Patients

34:08

Challenging Medical Bills Effectively

38:04

Empowering Patients in Healthcare Decisions

42:58

The Future of Healthcare Coverage

47:38

Taking Control of Your Healthcare Journey

Reach Frank at https://thebiglieinmyhealthcarebill.com/

specialedrising.com

On July 4th, 2025, Donald Trump signed what he calls the “One Big Beautiful Bill” (OBBBA) into law. While it’s being touted as a historic win, the truth beneath the headlines reveals a devastating reality—especially for disabled individuals, caregivers, and working-class families. This episode breaks down what’s actually in the bill, who gets hurt, and who profits.

From over $900 billion in Medicaid cuts to $285 billion in food assistance reductions, we expose how the bill’s “reforms” are designed to strip away the very programs that help people live independently, with dignity. We cover expanded work requirements, punishing paperwork traps, the illusion of “no tax on tips,” and the permanent tax cuts for the ultra-wealthy—all while disabled people are pushed toward poverty, hunger, and institutionalization.

🔍 Key Topics Covered:

• 💔 Medicaid Cuts: Over $900B in cuts that will devastate access to healthcare, HCBS, and force many into institutions.
• 📄 Punishing Paperwork: Monthly documentation traps for people with cognitive or mental health disabilities.
• 💼 Work Requirements: Disabled people not officially classified as “permanently disabled” now forced to meet impossible standards.
• 🍽️ SNAP Cuts: $285B slashed from food assistance, with new work rules threatening the food security of disabled individuals and caregivers.
• 👨‍👩‍👧‍👦 Caregivers Penalized: Parents of disabled children and family caregivers risk losing benefits if they can't meet work requirements.
• 🏥 Rural Hospital Closures: Medicaid cuts mean less coverage, more uncompensated care, and a death spiral for rural healthcare access.
• 🏡 Housing Crisis Deepens: Medicaid waivers help fund accessible housing—cutting them pushes people toward homelessness or institutions.
• to remove taxation on tips.
• 💸 Who Wins?: Permanent tax cuts for the top 1%, corporations, and billionaire heirs.
• 📉 Who Loses?: Disabled people, rural communities, low-income families, and working-class Americans.
• 🧠 Mental Health Impact: Disrupted access to medication, therapy, and community care leads to higher costs, crisis, and suffering.
• 🌍 Environmental Justice & Accessibility Grants: Eliminated in OBBBA—programs supporting inclusive employment and green jobs are gone.

🗣️ Expert Voices Featured:

• Zoe Gross (ASAN): “These cuts could kill people.”
• Michelle Robbins-Garcia (Access Living): “If Medicaid or home healthcare services are cut, [disabled people] won’t be able to go to work.”
• Kelly PeLong (Disability Network Mid-Michigan): “A responsible budget shouldn’t come at the expense of people with disabilities.”
• Nancy Gardiner (CT Insider): “Almost 279,000 CT residents could lose health insurance. This isn’t reform—it’s a betrayal.”

📢 Call to Action:

This is not just another policy shift—it’s a moral line in the sand.

✅ Call your representatives.

✅ Share this episode.

✅ Sign petitions from groups like The Arc, ADAPT, NDRN, and DREDF.

✅ Speak out—online and in your community.

🧠 Because silence is complicity. And we rise together—or not at all.

🔗 Resources & Links:

• The Arc – Take Action
• ADAPT
• NDRN
• Disability Rights Education & Defense Fund
• Center on Budget and Policy Priorities – Tax Policy
• Connecticut Insider Article – Nancy Gardiner

📌 Hashtags to Share:

#OneBigBetrayal

#SaveMedicaid

#DisabilityRightsAreHumanRights

#CuttingCareKills

#TaxBreaksVsLifelines

🎧 Listen, Share, Act

This isn’t about politics—it’s about survival. Let’s make sure the truth gets louder than the spin.

Sources:

Axios

NYTimes

Office of the State Comptroller NYState

Center on Budget and Policy Priorities (CBPP)

Kaiser Family Foundation

Social Security Works

Committee for a Responsible Federal Budget

National Disability Rights Network

Dept. of Energy

Justice40 Initiative

EP Environmental Justice Programs

Consortium for Citizens with Disabilities

The Arc

ADAPT

Website:

specialedrising.com

In this conversation, Mark and Lauren Henry Brehm delve into the complexities of mental illness, particularly how it affects families across generations. Lauren shares her personal experiences with her grandmother's OCD and the impact it had on her family dynamics. They discuss the importance of breaking the stigma surrounding mental illness, the need for open conversations, and the role of therapy in healing. The discussion also touches on the legacy of mental illness and the compassion needed to understand those who suffer from it.

takeaways

• Lauren's background as a special ed teacher informs her perspective on mental illness.
• Generational trauma can perpetuate untreated mental illness.
• The importance of recognizing mental illness as a family issue.
• Coping mechanisms often include humor and shared experiences.
• Self-identification of mental health issues can lead to seeking help.
• Compassion for those with mental illness is crucial for understanding.
• Open conversations about mental health should be normalized.
• The impact of childhood experiences shapes adult mental health.
• Therapy can provide tools for managing mental illness.
• Storytelling can help others relate and find hope.

titles

• Breaking the Silence on Mental Illness
• Generational Echoes of Mental Health

Sound Bites

• "She ruled with an iron hand."
• "Nobody ever treated anything in 1946."
• "The power of storytelling is so important."

Chapters

00:00

Introduction and Personal Connections

01:03

Background and Career Journey

03:40

Generational Impact of Mental Illness

06:30

Family Dynamics and Delusions

08:51

The Role of Treatment and Acceptance

11:27

Personal Experiences with OCD

13:55

Rituals and Compulsions in Family

16:24

Coping Mechanisms and Humor

19:07

Understanding Autism and Identity

21:44

Mother's Rebellion Against Cleanliness

24:13

Exploring Grandmother's Past

25:21

Conclusions and Reflections

26:14

The Symbolism of Gloves

29:28

Exploring Family History and Incest

32:16

Understanding Generational Trauma

35:06

Breaking the Stigma of Mental Illness

37:37

The Role of Family in Mental Health

42:07

The Impact of Mental Illness on Identity

43:41

Finding Peace in Senility

47:58

The Importance of Authentic Storytelling

Lauren Henry Brehm's website: https://laurenhenrybrehm.com/

specialedrising.com

takeaways

• Albert's journey from psychology to talent agent highlights the intersection of mental health and the arts.
• Self-sabotage is a common issue among actors, often stemming from fear of rejection.
• Diversity in casting is essential for authentic storytelling and representation.
• The importance of having diverse voices behind the camera to tell accurate stories.
• Actors should view auditions as opportunities to perform rather than tests of worth.
• Mindset strategies, such as reframing auditions, can help actors manage self-doubt.
• AI can assist in the creative process but should not replace the actor's voice.
• Parents should support their children's aspirations in acting while maintaining realistic expectations.
• The emotional toll of acting can be significant, requiring strategies for mental health management.
• Creating a supportive environment for neurodiverse actors is crucial for their success.

titles

• Navigating the Acting Industry: Insights from a Talent Agent
• The Psychology Behind Acting: Understanding Self-Sabotage

Sound Bites

• "It's really a head game."
• "AI can be a great assistant."
• "Don't take the nos personally."

Chapters

00:00

Introduction and Background

00:28

The Journey to Becoming an Agent

04:20

Understanding Self-Sabotage in Actors

07:09

Research on Self-Defeating Behavior

08:25

The Importance of Diversity in Acting

11:46

Facilitating Inclusion and Visibility

15:44

Scouting and Representing Diverse Talent

19:39

Mindset and Overcoming Self-Doubt in Actors

25:08

Harnessing the 30%: The Actor's Mindset

28:05

Visualization and Affirmations: Tools for Success

31:01

The Dark Side of Method Acting

35:48

AI in the Creative Process: A New Frontier

39:20

Supporting Young Actors: The Role of Parents

43:01

Diversity and Inclusion in the Acting Industry

45:45

Reframing the Artist's Identity

47:35

Final Thoughts: Embracing Self-Worth

https://bramanteartists.com/

https://www.facebook.com/albertcbramante/

https://www.linkedin.com/in/albertbramante/

specialedrising.com

gofundme: https://www.gofundme.com/f/join-rays-respite-care-mission

While families are focused on graduations, IEP meetings, and summer prep, a dangerous regulatory rollback is quietly unfolding. The Department of Energy (DOE), under the Trump administration, has issued a direct final rule—a shortcut usually reserved for noncontroversial housekeeping—to eliminate accessibility standards for buildings that receive federal funds. This move guts long-standing disability rights protections without public debate or transparency.

In this episode, host Mark Ingrassia breaks down the real-world implications of this rule change—from the elimination of the Uniform Federal Accessibility Standards (UFAS) to the erosion of communication access, employment protections, and enforcement tools. The stakes are clear: less access, fewer rights, and more exclusion. This is not red tape—this is civil rights. And they’re trying to gut them quietly.

💥 Highlights:

• What a “direct final rule” is and why it’s being used deceptively
• The specific disability protections being eliminated—UFAS, transition plans, communication access, employment protections, and public notices
• Real-world consequences for students, veterans, workers, and families
• What this means for Section 504 protections across other federal agencies
• Actions you can still take to push back—even after the public comment deadline has passed

📛 What’s Being Rescinded:

1. UFAS (10 C.F.R. § 1040.73) – No clear accessibility standard = patchwork compliance and inaccessibility
2. Transition Plans (10 C.F.R. § 1040.72) – No roadmap for making older buildings usable
3. Communication Access (10 C.F.R. § 1040.5 & § 1040.6) – LEP and disabled users lose guaranteed access to info
4. Employment Protections (§§ 1040.1, 1040.12, 1040.14) – Easier to discriminate without accountability
5. Posting of Rights (10 C.F.R. § 1040.102) – No visible notice = no awareness = no complaints

🚨 What’s at Stake:

• Physical Access: Fewer ramps, narrower doors, inaccessible restrooms, labs, or entrances
• Communication Gaps: Safety alerts and essential info may be unreadable or unavailable
• Employment Discrimination: Bias in hiring, retention, and promotion could go unchecked
• Legal Ambiguity: With no standards to follow, lawsuits may replace prevention

🛠️ What You Can Still Do (Post-June 16):

✅ 1. Contact Your Members of Congress

📢 Sample script: “I oppose the DOE’s rescission of accessibility standards. This is an attack on civil rights and public input. Please investigate and stop this rule.”

✅ 2. Partner With Advocates

Collaborate with:

• National Disability Rights Network (NDRN)
• Access Living
• Energy Justice Network
• Green New Deal Network

✅ 3. Keep It Public

Use and follow these hashtags:

#AccessNotOptional | #DisabilityRightsNow | #StopTheRollback | #HoldDOEAccountable

✅ 4. Write to the Media

Letters to the editor and op-eds help keep pressure on lawmakers and DOE

✅ 5. FOIA Requests

Request internal DOE communications—transparency is our ally

✅ 6. Track Legal Action

Stay connected to groups pursuing lawsuits or administrative complaints

✅ 7. Petition and Organize

Start petitions, host virtual town halls, or join webinars on disability advocacy

🗂️ Docket Numbers to Track:

• DOE-HQ-2025-0015 (UFAS elimination)
• DOE-HQ-2025-0024 (Other nondiscrimination rollbacks)

Visit https://www.regulations.gov and search these docket numbers to view filings.

📝 Bonus: Sample Comment Letter Available

I’ve included a downloadable sample public comment letter in the show notes, written in plain language. Feel free to adapt.

Go to: https://specialedrising.com/resources/

🧷 Mentioned Article:

Effort To Roll Back Federal Disability Rights Protections Alarms Advocates – by Michelle Diament, Disability Scoop

💬 Mark’s Final Word:

“This is not just about building codes—it’s about who belongs. About whether we see civil rights as essential or optional. It’s our duty to rise. Because silence is exactly what they’re banking on.”

🔗 Follow and Connect:

• Website: https://specialedrising.com/
• Instagram/TikTok: @SpecialEdRising
• Linkedin: https://www.linkedin.com/in/mark-ingrassia-m-s-04680a77/

Host: Mark Ingrassia

Welcome to Special Ed Rising: Purge 47 Edition, where we take off the gloves and shine a light on the policies, politics, and people shaping the future of disability rights.

In today’s episode, Mark exposes the high-stakes crisis quietly unfolding in Congress — the passage of the “One Big Beautiful Bill Act” in the U.S. House of Representatives, a dangerous piece of legislation that could gut Medicaid and leave millions of people with disabilities without the services they depend on.

Here’s what you’ll learn in this episode:

🔍 A breakdown of the bill and what it really means for the disability community

💰 The truth behind Medicaid funding and the devastating $698 billion in proposed cuts

⚠️ Why work requirements and frequent eligibility checks are harmful and discriminatory

💔 Who gets hurt most — and why this isn’t just a political issue, but a human one

📢 What you can do right now to stop this bill in its tracks

Mark makes it clear: this is not just about dollars. It’s about lives, dignity, and survival. But the bill isn't law yet — and there's still time to act.

Take Action:

📞 Call your senators

📲 Share your story

📣 Use your voice and your platforms

🎙 Have a story or want to be featured?

Reach out to Mark Ingrassia on Instagram, Facebook @special ed rising or email: specialedrising@gmail.com — let's amplify the voices that matter most.

Because when policies threaten our community, silence is complicity.

Together, we Resist the Purge.

💥 Subscribe. Share. Take action. Because this isn’t just politics — it’s personal.

#Purge47

#SpecialEdRising

#SaveMedicaid

#DisabilityRights

#NoParentLeftBehind

#ProtectMedicaid

#MedicaidMatters

#DisabilityJustice

#CareNotCuts

#SayNoToThePurge

#NothingAboutUsWithoutUs

#StopTheBeautifulBill

#HealthcareIsAHumanRight

In this special announcement episode, Mark Ingrassia shares exciting news: SER: No Parent Left Behind! and Purge 47 are officially joining forces under one powerful banner—Special Ed Rising.

Here's what to expect moving forward:

✅ Weekly episodes of Special Ed Rising: No Parent Left Behind – offering real-world support, heartfelt stories, and strategies for families of exceptional individuals.

🔥 Monthly special editions of Special Ed Rising: Purge 47 Edition – where we confront injustice, dissect policy, and amplify the voices too often left out of the conversation.

Why the shift? Because family life and disability justice aren't separate—they’re part of the same fight. And this new format lets us meet both with the urgency and care they deserve.

Tune in. Subscribe. Share. Let’s rise—together.

Links Mentioned:

• Subscribe to Special Ed Rising (Apple | Spotify | Google | RSS)
• Follow me on Instagram & Facebook: [@SpecialEdRising]
• Got feedback or a story to share? Email: [your email]



#SpecialEdRising

#NoParentLeftBehind

#Purge47Edition

#DisabilityJustice

#InclusiveParenting

#NeurodivergentVoices

#AdvocacyInAction

#ParentingWithPurpose

#DisabilityRightsAreHumanRights

#UnifiedVoices

#ExceptionalFamilies

#SpecialNeedsParenting

#PolicyAndParenting

#NothingAboutUsWithoutUs

#RiseTogether

You’ll hear stories, real-world strategies, and simple practices to help you meet daily challenges with more peace and less panic. Whether you're navigating meltdowns, struggling with routines, or simply trying to hold it together, this episode will remind you that your presence is powerful—even when things feel far from perfect.

🧠 In This Episode, You’ll Learn:

• Why it’s okay to feel unprepared—and how self-compassion is key.
• What mindful parenting really means (hint: it’s not about always being calm).
• How to respond—not react—in tough moments using a simple 5-second pause.
• The power of routines, visual tools, and emotional regulation.
• Real-life examples of mindful parenting that foster connection and trust.
• How the M.I.N.D.F.U.L. Protocol can support a calmer, more connected home.

🌿 The M.I.N.D.F.U.L. Protocol:

A practical framework Mark uses in his parent coaching sessions:

• M – Mindfulness: Stay present in tough moments with grounding techniques.
• I – Intentionality: Parent with clarity, consistency, and purpose.
• N – Nurturing: Lead with empathy and build resilient relationships.
• D – Development: Use strength-based strategies to support growth.
• F – Flexibility: Adapt to your child’s unique needs with grace.
• U – Understanding: See through your child’s lens and meet them where they are.
• L – Learning: Keep growing with support, coaching, and community.

🧩 One Small Practice for This Week

Choose one to try:

• Pause for five seconds before reacting.
• Reflect at the end of the day: “I showed up today. That matters.”
• Sit beside your child during a meltdown—without trying to fix.
• Join a mindful parenting group or support community.

💬 Quote from the Episode:

“Mindful parenting isn’t about getting it right—it’s about showing up with presence and compassion. Even one breath can change the moment.”

🤝 Work With Me

If you’re ready to bring more calm and connection into your home, I offers personalized coaching using the M.I.N.D.F.U.L. Protocol.

You’ll get:

• Customized behavior and routine strategies
• Support for school and life transitions
• Tools to navigate meltdowns and difficult moments
• Advocacy guidance and confidence-building coaching

📩 Interested? Reach out to begin building a home where your child can thrive—and so can you.

📣 Spread the Word

If this episode encouraged or empowered you, please share it with another parent who could use support. Subscribe, leave a review, and help us reach more families navigating the journey of raising exceptional children.

🎧 Until next time—stay compassionate, stay connected, and keep rising. Because no parent should ever feel left behind.

specialedrising.com

Donate to Ray's Respite Care Mission: https://www.gofundme.com/f/join-rays-respite-care-mission

takeaways

• Kijuan emphasizes the importance of energy and motivation in daily life.
• He shares insights on how pushing through challenges can lead to growth.
• Kijuan's upbringing shaped his resilience and determination.
• Music has been a lifelong passion for Kijuan, starting at a young age.
• He was a competitive bowler, showcasing his drive for excellence.
• Sports provided structure and discipline in Kijuan's life.
• His decision to join the Air Force was influenced by family and personal goals.
• Kijuan's experience in the military taught him valuable life lessons.
• He highlights the significance of finding one's passion and pursuing it.
• Kijuan's journey reflects the power of perseverance and adaptability. Respect for the motorcycle grew after the accident.
• The accident marked a new life journey for Kijuan.
• Recovery is an ongoing process, still being navigated.
• Kijuan emphasizes the importance of mindset in overcoming adversity.
• He believes in focusing on abilities rather than disabilities.
• Support from family and friends was crucial during recovery.
• Kijuan's faith played a significant role in his healing process.
• He encourages others to find their own path to recovery.
• Kijuan's story is a testament to resilience and strength.
• He aims to inspire others through his motivational speaking.

titles

• From Struggles to Strength: Kijuan Amey's Journey
• The Power of Perseverance with Kijuan Amey

Sound Bites

• "That's how most people get hurt."
• "I wanted to create my own footprint."
• "I respected it even more."

Chapters

00:00

Introduction and Technical Difficulties

00:52

Physical Fitness and Personal Challenges

03:36

Early Life and Family Dynamics

05:56

Musical Passion and Creative Outlets

08:37

Sports Journey and Competitive Spirit

09:36

Basketball Experiences and Personal Strengths

10:06

Football and Track Background

10:56

Rivalries and School Spirit

11:10

The Impact of Football on Personal Development

12:07

Transitioning to the Air Force: A Personal Journey

14:54

Navigating Military Recruitment and Choices

21:11

Experiences in Active Duty and Transitioning to Reserves

23:52

Understanding the Role of a KC-135 Stratotanker Pilot

24:28

The Flying Gas Station

25:37

Beyond Refueling: The Multifaceted Role of Airmen

26:21

A Passion for Engines: From Dirt Bikes to Motorcycles

28:34

The Journey to Motorcycle Endorsement

31:55

The Day That Changed Everything: The Accident

41:04

Recovery and Resilience: A New Life Journey

46:56

Embracing Life After Adversity

49:10

The Power of Support Systems

52:23

Transforming Pain into Purpose

54:01

The Will to Overcome

58:32

Connecting with Others Through Storytelling

01:00:28

Advocating for Ability Over Disability

01:02:29

The Importance of Mentorship

https://ameymotivation.com/

takeaways

• Sarah's nursing background has equipped her to care for Rachel effectively.
• The bond between Sarah and Rachel is deep and rooted in love.
• Caring for a special needs sibling can be both challenging and rewarding.
• Respite care is crucial for families with special needs individuals.
• Sarah's husband is supportive and is pursuing nursing to help care for Rachel.
• Daily life with Rachel involves extensive care and attention.
• Sarah's daughters are learning valuable lessons about kindness and acceptance through their relationship with Rachel.
• Healthcare funding and support for special needs individuals is a significant challenge.
• Sarah is passionate about creating a respite care service for families in need.
• The importance of advocating for proper care and understanding in healthcare settings.

titles

• A Sister's Love: Caring for Rachel
• Navigating Life with Cornelia de Lange Syndrome

Sound Bites

• "Love is medicine."
• "Rachel grows on you."
• "It's just fair."

Chapters

00:00

Childhood Experiences with Rachel

07:18

Understanding Cornelia de Lange Syndrome

09:07

The Importance of Love and Support

09:32

Finding a Partner Who Understands

11:38

Family Dynamics and Support

13:08

Daily Life and Responsibilities with Rachel

15:58

Raising Daughters with a Special Needs Sister

17:21

Communication and Education for Rachel

20:16

Navigating Healthcare and Funding Challenges

25:24

Advocacy in Healthcare: A Caregiver's Role

27:20

The Birth of Raise RespaCare: A Vision for Change

29:37

Building a Community: The Need for Respite Care

32:03

Connecting with Support: Legislative and Community Efforts

34:10

Healing Through Care: The Role of Veterans

38:51

Quality of Life: Ensuring Happiness for Ray

42:07

Creating Memorable Experiences: Travel and Adventures

43:51

Raising Awareness: Fundraising and Community Engagement

https://www.raysrespitecare.org/

https://www.instagram.com/rays.respite.care/

On May 16, 2025, a groundbreaking documentary titled "Deaf President Now!" will be released, chronicling the historic 1988 student-led protest at Gallaudet University—the world’s only liberal arts university for Deaf and hard-of-hearing students. But this episode is more than a retelling. It’s a personal reflection on what that moment meant then, how it shaped Deaf education, and the cultural revolution that followed.

In this episode, I share my own journey from a curious outsider to someone deeply embedded in the Deaf community. I revisit the DPN movement not just as a pivotal civil rights event, but as the spark that lit a fire of change in Deaf education, culture, and self-representation. We explore:

• Why the appointment of a Deaf president finally mattered
• 
  
• The rise of bilingual-bicultural (Bi-Bi) education and what it really means
• 
  
• How the cultural renaissance post-DPN transformed Deaf schools and inspired students
• 
  
• The impact of cochlear implants on Deaf identity and language access
• 
  
• The continuing relevance of DPN in today’s shifting educational and cultural landscapes
• 
  

Whether you’re familiar with Deaf culture or discovering this history for the first time, this is a powerful reminder that inclusion isn’t just about access—it’s about representation, respect, and identity.

💬 As Nyle DiMarco said, “Deaf history is American history.” Let’s make sure it's remembered, celebrated, and passed on.

📌 Key Moments:

• [00:02:00] The Gallaudet Protest: Why It Happened
• 
  
• [00:07:30] My First Encounter with Deaf Culture
• 
  
• [00:14:45] Deaf Schools and the Bi-Bi Shift
• 
  
• [00:22:10] The Cultural Renaissance of the 1990s
• 
  
• [00:28:00] Cochlear Implants and Language Deprivation
• 
  
• [00:34:00] Why DPN Still Matters Today
• 
  

🔗 Resources & References:

• Deaf President Now! Documentary – Releasing May 16, 2025
• Disability Scoop article on the film: [Link if available] https://www.disabilityscoop.com/2025/05/09/appletv-documentary-spotlights-pivotal-disability-protest/31447/
• National Association of the Deaf (NAD) – www.nad.org
• “A Journey Into the Deaf World” by Harlan Lane, Robert Hoffmeister, and Ben Bahan
• https://gallaudet.edu/museum/history/the-deaf-president-now-dpn-protest/the-impact-of-the-deaf-president-now-protest/#:~:text=The%20Americans%20with%20Disabilities%20Act%20(ADA)%20protects%20deaf%20people%20and,and%20the%20speed%20of%20introduction.

📢 Let’s Continue the Conversation:

Have you experienced Deaf education before or after DPN? Are you a teacher, student, or parent navigating Bi-Bi vs. oral approaches today? Share your story with us on social or email!

🔖 Hashtags:

#DeafPresidentNow

#DPN1988

#DeafHistory

#DeafEducation

#BiBiEducation

#SignLanguageMatters

#ASL

#DeafCulture

#CochlearImplants

#DisabilityRights

#NyleDiMarco

#Gallaudet

#RepresentationMatters

#DeafIdentity

#InclusionWithIntention

#LanguageAccess

#DeafAndProud

#DeafVoices

#CelebrateDeafCulture

That goal led me to Moms Demand Action, a grassroots movement founded by Shannon Watts in the wake of the Sandy Hook tragedy. What began as a Facebook group created by one mother has evolved into a nationwide force advocating for stronger gun laws and safer communities.

In 2024, I attended my first meeting. But it wasn’t until I got on an "action bus" to Albany, New York—a place where I earned my undergraduate education—that I truly felt the power of community activism. I joined fellow advocates to meet with lawmakers and push for three essential bills that address:

• The ban of semi-automatic handguns that can be converted into machine guns using illegal Glock switches,
• The codification and expansion of New York’s Office of Gun Violence Prevention,
• A simplified and strengthened firearm storage law.

These aren't radical ideas—they're common-sense measures to save lives.

This episode isn't just about one person's journey into advocacy—it's about what happens when we move from storytelling to action. I found inspiration, purpose, and a network of passionate people who believe we can and must do better.

If you’ve ever asked yourself, “What can I do?”—this episode is your invitation to find out.

🔗 Resources Mentioned:

• Moms Demand Action: https://momsdemandaction.org
• Everytown for Gun Safety: https://everytown.org
• Shannon Watts on Twitter: @shannonrwatts
• “In the Battle Against Gun Violence, Shannon Watts Fights Like a Mother” – Glamour Article

📢 Call to Action:

Attend a local Moms Demand Action meeting. Speak up. Vote smart. And when the “action bus” rolls into your town—get on.

https://momsdemandaction.org/

🎧 Subscribe, share, and stay tuned for my upcoming interview with a gun prevention advocate.

takeaways

• Creating a talent pool of adaptive talent is essential for inclusive casting.
• Representation matters in advertising and media.
• Building confidence in individuals with disabilities can change their lives.
• The modeling industry needs to evolve to include diverse talent.
• Education and awareness are crucial for industry professionals.
• Inclusive casting can lead to authentic representation in media.
• The journey of Humankind Casting is about empowering individuals.
• Collaboration with organizations can enhance opportunities for talent.
• The impact of advertising on the disability community is significant.
• Creating a supportive environment fosters growth and confidence.

titles

• Revolutionizing Representation in Modeling
• Building a Talent Pool for Inclusive Casting

Sound Bites

• "It's about the human connection."
• "Representation matters, right?"
• "It's okay to go for inclusive casting."

Chapters

00:00

Technical Difficulties and Introduction

02:50

The Importance of Inclusive Casting

05:56

Authenticity in Representation

09:12

Building Confidence Through Modeling

11:57

The Journey of Kristie Raymond

15:54

Founding Humankind Casting

19:04

Challenges in the Industry

21:55

Creating a Talent Pool

25:09

The Future of Inclusive Casting

31:15

Scaling Opportunities in Secondary Markets

34:40

Building a Diverse Talent Pool

37:18

The Importance of Representation

39:12

Authenticity in Advertising

42:04

Impact of DEI Policies

44:42

The Casting Process Explained

46:18

Expanding Clinics and Opportunities

51:14

Educating the Industry

55:12

Empowering Creatives

58:14

Navigating the Hiring Process

https://www.youarehumankind.com/

https://www.linkedin.com/in/kristieraymond/

takeaways

• Erica's journey began as a late diagnosed autistic ADHD female.
• Understanding her child's perspective helped Erica appreciate her own neurodivergence.
• Receiving a professional diagnosis was validating for Erica.
• Emotional wounds stemmed from societal narratives about autism.
• Erica felt alienated despite being socially active.
• The concept of 'normal' is problematic and often harmful.
• Society often overlooks the value of neurodivergent individuals.
• Asking for help is a sign of strength, not weakness.
• Elders in society are often marginalized and undervalued.
• Parenting a neurodivergent child can lead to profound self-discovery. Compassion allows individuals to navigate their experiences authentically.
• Communication and trust are essential in relationships, especially in understanding diverse perspectives.
• Erica's journey highlights the importance of finding supportive environments for personal growth.
• Advocacy for animals and social justice is interconnected and essential for collective liberation.
• Understanding autism requires recognizing the unique experiences of each individual.
• The narrative around autism and disability needs to shift towards acceptance and validation.
• Amplifying marginalized voices is crucial in the fight for social justice.
• Privilege plays a significant role in how individuals navigate their identities and experiences.
• Education should come from lived experiences to foster understanding and empathy.
• Collective care is necessary for the well-being of all living beings.

Sound Bites

• "I began to see myself through that same lens."
• "I felt like I was constantly comparing myself."
• "Our worth really comes down to productivity."
• "It's not a sign of weakness to ask for help."
• "We have to give people more credit."
• "You just need to be willing to say, I believe you."
• "It's about collective care and collective liberation."
• "We can expand that to include everybody."
• "Animals are always the bottom of the rung."
• "This message needs to get out there."
• "We need to educate from lived experiences."
• "Showing up as ourselves is a privilege."
• "It's important to recognize our privilege."

Chapters00:00

Introduction and Background

02:56

Understanding Neurodivergence

06:10

Personal Experiences with Autism and ADHD

08:56

The Impact of Diagnosis

12:01

Navigating Social Norms and Expectations

15:03

The Value of Different Perspectives

17:56

Disability and Worth in Society

20:49

Asking for Help and Support

24:05

The Role of Elders in Society

27:04

Parenting a Neurodivergent Child

30:00

Shared Experiences and Understanding

34:27

Understanding Compassion and Acceptance

39:10

The Importance of Communication and Trust

44:30

Erica's Journey and Career

49:19

Advocacy for Animals and Social Justice

56:15

Intersection of Autism and Animal Rights

01:02:17

Amplifying Voices and Collective Liberation

Instagram: erica_settino

https://www.karunaforanimals.com/

Episode Summary:

In this episode, we address the dangerous and deeply offensive comments made by Robert F. Kennedy Jr. during his April 16, 2025 press conference, where he claimed autism is “preventable” and described individuals on the spectrum as incapable of working, dating, writing poetry, or living independent lives.

We confront these statements with facts, lived experience, and community response.

From debunking outdated vaccine myths to amplifying the voices of autistic adults and their families, we’re here to set the record straight.

RFK Jr.’s rhetoric isn’t just wrong—it’s harmful. And our community deserves better.

🔍 Key Segments:

Segment 1: Breaking Down the Claims

• What RFK Jr. said and why it’s dangerous
• The truth about thimerosal and autism
• Scientific consensus from CDC, WHO, AAP, IOM, and JAMA Psychiatry

Segment 2: The Community Claps Back

• Responses from Holly Robinson Peete, Dr. Peter Hotez, and our own community
• Real-life stories of autistic individuals thriving in work, love, and creativity

Segment 3: What Families Really Need

• Support, not stigma
• Why RFK’s message misses the mark entirely

Segment 4: Moving Forward

• How to respond to misinformation
• Ways we can build inclusive, empowering spaces for all neurodivergent people

📌 Takeaways:

• Autism is not caused by vaccines or thimerosal.
• Genetics play a major role in autism.
• Autistic people can and do live meaningful, connected, and creative lives.
• The real barrier is not autism—it’s misinformation and underfunded systems.
• Words matter, and so does leadership rooted in truth and compassion.

📚 Sources Mentioned:

• CDC on Thimerosal & Autism
• Institute of Medicine 2004 Report
• JAMA Psychiatry 2019 Heritability Study
• WHO Vaccine Safety
• Holly Robinson Peete’s Response
• Dr. Peter Hotez’s Commentary

🧷 Share the Message:

Autism is not a tragedy. Stigma is.

We don't need cures. We need compassion.