Talking Blood Cancer

Barry Du Bois on Resilience, Connection, and Overcoming Blood Cancer

Thu, 12 Mar 2026 03:30:00 +1100

*This episode includes discussion of suicide and may be distressing for some listeners. Please take care while listening and consider seeking support if needed.

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis sits down with Barry Du Bois, well-known TV presenter, builder, and ambassador for the Leukaemia Foundation, to discuss his lived experience with blood cancer. Barry speaks openly about his multiple diagnosis, including his first cancer diagnosis in 2011 and his later experience with multiple myeloma, providing insight into both the patient and carer perspectives.

Barry shares the challenges he faced starting from his mother’s cancer journey in a country town, the trauma of losing a pregnancy with his wife Leonie, and then caring for Leonie during her own cancer diagnosis. He highlights the emotional toll of supporting loved ones through cancer, describing what he calls “borrowed trauma,” and reflects on the feelings of grief, isolation, and depression that followed. Sharing the importance of human connection and communication in helping him rebuild resilience during these difficult times.

They talked about the significance of honest and empathetic conversation. Barry explains the different types of conversations people need during cancer, whether it’s solution-based, social, or empathy-focused, and encourages listeners to ask questions rather than offer solutions. Barry illustrates how small acts of empathy, such as a supportive phone call or a simple presence, were key in helping him take “micro steps” toward regaining his wellbeing.

People will benefit from Barry’s honesty about vulnerability, the realities of living with an incurable blood disease, and the gentle encouragement to seek connection and small moments of joy while managing the ups and downs of a cancer diagnosis.

From Barry:

Breath work has been a quiet but powerful part of my life for many years.

When I was told I had just three months to live due to blood cancer — a diagnosis I now live with — I needed simple ways to steady myself when everything felt uncertain.

Breath work became one of those anchors.

Slow, intentional breathing supports oxygen delivery to the blood, encourages circulation, and helps calm the nervous system. That state of calm can support immune health, recovery, and the body’s ability to cope with treatment and fatigue.

It’s not about fixing anything or forcing positivity.

It’s simply about giving your body a moment of ease.

I’ve created a free, guided breath work video for anyone who feels it may help — patients, carers, or loved ones.

You can access it here:

👉 https://barrydubois.com/breathworktyp

There’s nothing to get right.

Just follow along and breathe.

—--

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialisation. Learn more at www.talkinghealthtech.com/podcast/network

Candice Forward’s Story of Hope and Healing After Her Child’s Leukaemia

Thu, 26 Feb 2026 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis welcomes guest Candice Forward, a mother of three, who shares her family’s experience with her youngest son River who was diagnosed with T-cell acute lymphoblastic leukaemia at the age of two and a half.

Candice describes the early signs of River’s illness and the response that led to his diagnosis. Detailing the intensive nine-month treatment period, during which River spent most of his time as an inpatient, and the impact it had on their family’s daily routine. Exploring how Candice and her partner balanced caring for River and their two other children.

The emotional and psychological challenges that come from caring for a child with blood cancer, including the importance of accessing professional support. Candice explains how engaging with a psychologist helped her process trauma and manage communication with her children. She also discusses the aftermath of treatment, including River’s bone marrow transplant with his older brother Reid as the donor.

Candice speaks honestly about managing survivor’s guilt, the emotional toll of post-treatment adjustment, and how simple daily practices like gratitude and self-care have helped her and her children move forward. They reflect on the value of peer support, the importance of open communication, and the need for ongoing advocacy to address the broader support needs of families affected by blood cancer.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

From New Mum to Cancer Warrior: Alysia North’s Blood Cancer Story

Thu, 12 Feb 2026 03:30:00 +1100

Welcome to a new season of the Talking Blood Cancer podcast!

In this episode, host Kate Arkadieff sits down with guest Alysia North who shares her personal journey after being diagnosed in 2022 with Hodgkin's lymphoma at age 28. Living in Central Queensland and navigating life as a new mother at the time, Alysia describes the sudden onset of symptoms and the psychological impact of moving from healthcare professional to patient.

Looking through the challenges Alysia faced as she underwent chemotherapy, the loss of independence, and the emotional toll of hair loss and physical changes. She openly discusses the impact on her family. The reliance on her support network, especially her husband and mother, and the adjustments required when caring for her infant son, Theo, during treatment.

A significant part of Alysia’s story is her experience with fertility preservation. She made the difficult decision to focus on recovery for the sake of her family. Despite a high likelihood of infertility following chemotherapy, nearly two years after finishing treatment, Alysia naturally conceived her second child, Charlie, whom she describes as a "miracle baby." This brought hope and joy during her survivorship and helped her heal emotionally from her cancer journey.

Throughout the episode, Alysia provides practical advice for other young people and parents facing blood cancer, emphasising the resilience of children and the importance of accepting help. Exploring how recovery is a gradual process and the ongoing need for psychosocial support.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Reflecting on a Year of Stories and Strength in the Blood Cancer Community

Thu, 18 Dec 2025 03:30:00 +1100

In this wrap-up episode of the Talking Blood Cancer podcast, hosts Kate Arkadieff and Maryanne Skarparis reflect on the year’s conversations and the impact of sharing lived experiences with blood cancer. Together, they look back at stories shared by people at different stages of their journeys, from those newly diagnosed, to long-term survivors, young parents balancing treatment and family, and healthcare professionals offering their perspectives from within the system.

Highlighting how each individual’s story is unique, yet many common threads connect people affected by blood cancer. They discuss the honesty with which guests have spoken, not only about the challenges of fear, uncertainty, and grief, but also about moments of connection, unexpected joy, and personal strength.

Offering reassurance and appreciation, reinforcing the value of community and shared support for those navigating blood cancer.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Love, Loss, and Support: Ian Brandon Discusses Cheryl's Decade-Long Battle with Blood Cancer

Thu, 13 Nov 2025 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis is joined by Ian Brandon to discuss his experiences caring for his wife Cheryl, who battled non-Hodgkin's lymphoma. They delve into the journey that began in 2012 when Cheryl was first diagnosed, reflecting on the years of treatment and care they underwent together.

Ian recounts Cheryl's initial reluctance to seek medical help and the rapid developments that followed her eventual collapse and hospitalisation. Outlining the difficult but crucial steps taken in seeking treatment, including the critical role played by the Wesley Hospital in Brisbane.

Exploring the immense support provided by the Leukaemia Foundation, including their accommodations and resources, which helped Ian and Cheryl through ten years of challenging times. Ian highlights having confidence in the medical team and the significance of the support network provided by the Leukaemia Foundation to both patients and carers.

They also touched on the emotional and logistical aspects at the end of Cheryl's journey, emphasising the critical support from various healthcare teams, including the palliative care unit and the ongoing significance of blood donations.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Coping with Uncertainty: Andy Fithall Talks Life After a Blood Cancer Diagnosis

Thu, 23 Oct 2025 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Andy Fithall, who shares his personal experience of being diagnosed with Chronic Lymphocytic Leukaemia (CLL) at the age of 40. Highlighting the challenges of receiving a blood cancer diagnosis during the COVID-19 pandemic and navigating the “watch and wait” approach, which can be an unfamiliar and sometimes isolating experience.

Andy discusses how his diagnosis occurred unexpectedly when he was being screened for haemochromatosis. Describing the shock of hearing the diagnosis, and the anxiety that followed during the days leading up to his first specialist appointment. He reflects on the impact this news had on him, and the process of telling his diagnosis to his wife and two children in an age-appropriate way.

They explore the psychosocial aspects of living with blood cancer, particularly in a “watch and wait” situation. Andy talks about managing anxiety, the periodic worries triggered by upcoming blood tests, and the challenge of balancing normal life with the uncertainty that comes from not knowing if or when treatment will be needed.

They also touched on the feelings of loneliness and isolation that can come with a diagnosis where immediate treatment is not required. Andy notes that although he looks healthy from the outside, the emotional impact of living with blood cancer is real. Emphasising the value of being honest with loved ones about what he is experiencing and encourages others in similar situations to reach out for support.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

A Mother and Son's Battle with Blood Cancer: Prue and Chase Meier's Story

Wed, 08 Oct 2025 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis sits down with Prue Meier and her son Chase to discuss their journey navigating blood cancer. Chase, who is now ten years old, was diagnosed with Acute Myeloid Leukemia (AML) when he was just four.

Chase shared some light-hearted reflections on his memories of the special room where he received cookies during his treatments, and his life at school today. Which showed a glimpse into Chase’s resilience and serves as a reminder of the unique experiences of young cancer patients.

Prue opens up about the early signs that led to Chase’s diagnosis and the things that followed. She discusses the challenging period of their lives, the initial symptoms, the anxieties as a parent, and the crucial role played by the healthcare team and the Leukemia Foundation. Prue also shares the touching story of being Chase’s bone marrow donor and all the emotions tied to that experience.

They further delve into life post-treatment and the adjustments as Chase returned to a semblance of normalcy, emphasising the support network they had, including family, friends, and the community at the Leukemia Foundation. Prue highlights practical tips for families going through similar experiences, such as accepting help and capturing memories through photographs.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Pushing Past Limits: Yani Zhao on Recovery, Powerlifting, and Life After Leukemia

Thu, 18 Sep 2025 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Yani Zhao, who shares her experience of being diagnosed with acute myeloid leukaemia (AML) at the age of 21. Yani reflects on how her diagnosis came at a time when she was studying at university and competing at a high level in powerlifting. She describes the early symptoms she noticed, such as fatigue, night sweats, breathlessness, and swollen lymph nodes, which she initially attributed to her busy university and training schedule.

Yani talks about her journey from diagnosis through treatment, including an urgent hospital admission, multiple rounds of intensive chemotherapy, and navigating conversations around fertility preservation. She explains that doctors began the process of searching for a bone marrow donor but were unable to find a suitable match, leading her to undergo further chemotherapy instead of a transplant. Yani shares the physical and emotional toll of her treatment to slowly rebuild her health afterward.

They covered how Yani's background in sports and strength training influenced her recovery, providing her with a strong base to regain mobility. Over time, she was able to not only reclaim her health but also break her previous Australian powerlifting records, demonstrating her resilience and determination.

They end with Yani encouraging listeners to take a gradual and individualised approach to recovery, to accept support, and to recognise that it is possible to regain strength and purpose after a blood cancer diagnosis.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Unseen Strength: Melissa Rodger Shares Her Daughter’s Blood Cancer Battle

Thu, 14 Aug 2025 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis speaks with guest Melissa Rodger, who shares her family's experience following her daughter Chloe’s diagnosis with acute myeloid leukaemia at just nine years old.

Melissa gives an honest recount of Chloe’s initial symptoms, the shock of diagnosis, and the rapid transition into hospital treatment, which included chemotherapy beginning in ICU. Melissa provides insights into the emotional toll the situation took on the entire family, discussing how they navigated the early days in a state of uncertainty and relied on the treating team’s guidance.

Exploring the complexities around treatment decisions, including the process of finding a donor for Chloe’s bone marrow transplant. Melissa explains that despite a thorough search, no suitable unrelated donor was found, and a haploidentical (half-matched) transplant using a parent’s cells became necessary—first from Melissa herself, and after a relapse, from Chloe’s father. She openly discusses both the practicalities and emotions involved in being a donor, as well as the family’s coping strategies during these challenging times.

They also talked about Chloe’s adjustment to life after treatment, her gradual return to school, and the ongoing efforts by Melissa and her family to support Chloe’s physical, mental, and emotional wellbeing. Melissa also offers advice on maintaining mental health as a parent or carer during a child’s cancer diagnosis, stressing the importance of hope, connection, and open communication within families.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Power of Positivity: Sharyn Polce on Relationships, Mindset, and Blood Cancer Journey

Thu, 17 Jul 2025 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis sits down with guest Sharyn Polce to discuss Sharyn's lived experience with chronic myeloid leukaemia (CML). Sharyn recounts her diagnosis almost 15 years ago and openly talks about the challenges she faced both before and after learning she had blood cancer.

Sharyn describes the symptoms that initially went unnoticed, such as unusual tiredness and persistent bruising, and shares the shock and uncertainty she felt upon diagnosis. Outlining her journey through multiple clinical trials, medication changes due to mutations, and eventually a stem cell transplant from an anonymous donor in Germany. Throughout, Sharyn reflects on the crucial role her support network played—including her adult children, her partner Troy, friends, and the Leukaemia Foundation—in helping her to manage the impact of her diagnosis and treatment.

Highlighting the importance of emotional wellbeing, positive mindset, and practical support for both patients and carers. Sharyn discusses the emotional stresses of living with blood cancer, including the strain on her relationships and self-confidence, as well as the support she received from professional counsellors and peer mentors.

Sharyn and Maryanne emphasise that everyone’s journey is different, but encourages listeners to not hesitate to seek support and to listen to their own bodies. Sharyn’s story is one of resilience, openness, and hope, offering comfort to those living with blood cancer and to the people who care for them.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Leading With Compassion Chris Tanti’s Vision for the Leukaemia Foundation’s Support

Wed, 18 Jun 2025 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff is joined by Chris Tanti, CEO of the Leukaemia Foundation, for a discussion on supporting people living with blood cancer. Unlike many episodes that focus on patient stories, this conversation offers a unique perspective from the organisational and leadership side of blood cancer support in Australia.

Chris reflects on his personal and professional journey, shaping his approach to leadership through his background in social work, family experiences, and roles across various areas of health and community services. He shares the importance of the patient’s lived experience in guiding the Leukaemia Foundation’s work, and the need to address both medical and psychosocial needs of people affected by blood cancer.

They delve into the essential role of family, community, and purpose in the recovery and adjustment journey after a cancer diagnosis. Chris explains how the Leukaemia Foundation aims to support patients not only during treatment, but returning to their communities as well.

Chris discusses future plans and directions for the Leukaemia Foundation, with a focus on increasing reach in regional Australia which ensures that no one faces blood cancer alone. This is a valuable resource for patients, families, carers, and health professionals seeking to understand the broader context of blood cancer support in Australia.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Navigating Transplants in Blood Cancer: Dr James Morton’s Guide for Patients and Families

Thu, 29 May 2025 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis sits down with Associate Professor Dr James Morton to provide an in-depth look at blood and bone marrow transplantation in the treatment of leukaemia and related blood cancers.

Dr Morton shares what led him to specialise in transplant medicine, reflecting on early experiences that sparked his interest in how donor immune systems can contribute to curing blood cancers like leukaemia. He explains, the key considerations involved in assessing whether a patient is suitable for transplant, including age, overall fitness, and the risk of the cancer returning.

They explore topics such as graft versus host disease (GVHD), donor matching (including the process and significance of HLA typing), and advances in post-transplant care aimed at reducing complications. Dr Morton provides advice for patients and families about fertility preservation for both men and women, including the timing and processes involved before undergoing intensive therapies.

They discuss the emerging field of cellular therapies, such as CAR T-cell therapy, and how these treatments are being used to further harness the immune system to fight blood cancers. Dr Morton shares his perspective on patient decision-making, especially when weighing the risks and benefits of transplantation, and the importance of clear, informed consent for all involved.

Dr Morton and Maryanne emphasise the value of communication, support, and understanding not only for patients but also for families and carers navigating the complexities of blood cancer treatment and transplant recovery.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Overcoming Needle Phobia and Acute Myeloid Leukaemia: Cathy Koning’s Candid Reflections

Thu, 08 May 2025 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Cathy Koning about her experience living with acute myeloid leukaemia (AML). Cathy, now 72, was diagnosed 14 years ago and shares insights into her diagnosis, treatment journey, and the ongoing impact of life after stem cell transplant.

Cathy reflects on the early symptoms that led to her diagnosis, such as unexplained bruising and extreme tiredness. She describes the challenges around being heard by her healthcare providers and highlights the importance of persistence when seeking answers about unusual health changes.

They talked about the realities of treatment, including chemotherapy, intensive care, and the impact of sepsis. Cathy also discusses her experiences managing needle phobia, the support she found in online communities, and the transition from being a patient to providing care for her husband through his own cancer diagnoses. She speaks openly about life with chronic graft versus host disease, and the value of building resilience rather than framing herself as “brave”. Throughout, Cathy emphasises the importance of listening to your body, advocating for yourself, and making the most of each day.

Cathy’s perspective offers reassurance to others facing similar diagnoses, highlighting the importance of community, adaptability, and finding joy and purpose after blood cancer. For patients and carers alike, her story provides practical suggestions and emotional support for managing the many facets of living with and beyond blood cancer.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Facing Young Loss: Lauren and Jakeb Smith’s Blood Cancer Journey

Thu, 24 Apr 2025 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff engages in a heartfelt conversation with Lauren Smith about her experiences surrounding blood cancer. Unlike the usual patient stories shared on the podcast, Lauren recounts her journey accompanying her late husband, Jakeb Smith, through his battle with stage four non-Hodgkin's lymphoma when both were just 21 years old.

Kate and Lauren delve into the challenges faced by young couples dealing with such life-altering circumstances. Lauren shares the emotional rollercoaster of Jakeb's initial symptoms, the struggle to get an accurate diagnosis, and the subsequent whirlwind of treatments.

They highlight the importance of a strong support network and how Lauren's experience inspired her to collaborate on a life-changing tool, called Gather My Crew, an app designed to streamline support for those in need during challenging times.

Lauren reflects on the importance of asking for and accepting help, emphasising how societal expectations can often inhibit individuals from reaching out. She speaks candidly about the grieving process following Jakeb's passing, how she navigated life without him, while finding purpose in both honoring his memory and supporting others facing similar struggles.

Links & Resources:

Gather My Crew website: https://www.gathermycrew.org.au/

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

From child cancer survivor to advocate: Ash Bell's journey of healing and growth

Thu, 10 Apr 2025 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff sits down with Ash Bell, who shares her journey with acute lymphoblastic leukaemia (ALL) at the age of 11 and the challenges she faced throughout her treatment and recovery.

Ash recounts her active lifestyle before her diagnosis and the symptoms that led to her eventual hospitalisation, including severe back pain caused by crushed vertebrae. She discusses the difficulty of navigating treatment as a young person, including the loss of normalcy and the emotional impact of overhearing her cancer diagnosis instead of being directly informed.

They touched on the transition from illness to survivorship and the struggle to reintegrate a “normal” life while dealing with the lasting effects of treatment, both physically and emotionally. Ash also shares how her journey led her to a career in social work, focusing on providing support for people with blood cancer and advocating for mental health care during and after treatment.

Ash highlights the importance of acknowledging and working through the emotional and psychological impact of cancer, emphasising the need for nurturing one's mental wellbeing, alongside physical health. Her story illustrates resilience and the ongoing process of healing, providing valuable insights for both patients and caregivers.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Empowering Patients: Bridging healthcare and social work in blood cancer care

Thu, 27 Mar 2025 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis welcomes Angela Daly, a Senior Social Worker at the Sunshine Coast University Hospital, and they discuss the challenges faced by patients diagnosed with blood cancer. Giving insights into her role in helping patients and their families navigate the complex healthcare system.

Angela shares the top priorities she addresses when meeting newly diagnosed blood cancer patients, emphasising the importance of understanding patients' support systems, their geographical location, and access to treatment facilities. Angela tells the difficulties faced by patients residing in remote areas who must travel extensively for treatment, and dealing with additional stresses such as financial costs and the complexities of coordinating care with existing family responsibilities.

Exploring the social worker's role in aiding patients to manage the emotional and logistical aspects of their diagnosis. Social workers help interpret medical information, connect patients with support services, and advocate on their behalf. Angela speaks on the value of fostering strong relationships with local and regional organisations like the Leukaemia Foundation, which play a pivotal role in providing support to blood cancer patients and their families.

Angela's personal experiences growing up in a remote area and her professional tenure at the Leukaemia Foundation grew her understanding of the healthcare needs of rural and regional patients. Her dedication to oncology social work is evident as she strives to make the cancer journey as manageable as possible for those affected.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Journey through two diagnoses: Alex Wilson's inspiring story of strength

Thu, 13 Mar 2025 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis invites Alex Wilson to share his journey navigating the healthcare system following a diagnosis of blood cancer. Alex candidly discusses his experiences, offering insights into the practical challenges and emotional responses at the time of his diagnosis, especially as a young adult.

They delve into the importance of understanding the healthcare process and how familiarising oneself with basic medical terms, navigating appointments, and managing finances can significantly aid patients in their journey. Alex reflects on the need to be proactive in healthcare discussions, maintaining a sense of control in a situation that can often feel overwhelming.

Highlighting Alex’s resilience and practical approaches to dealing with cancer diagnoses, emphasising the importance of a strong support network of family and friends. He shares valuable tips on preparing for medical appointments, maintaining a sense of normalcy, and setting personal goals during treatment.

His transition from a 21-year-old man feeling invincible, to a mature adult facing a second cancer diagnosis with clarity and assertiveness. Alex’s story underscores how previous experiences can shape an empowered approach to subsequent healthcare challenges, promoting confidence in communication with healthcare professionals.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Overcoming leukaemia during COVID: Eve Cossette’s triumph over adversity

Tue, 25 Feb 2025 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Eve Cossette about her experience with a diagnosis of acute lymphoblastic leukaemia (ALL). Diagnosed during the height of COVID-19 while living far from her family in Canada, Eve's journey offers insights into both the physical and emotional challenges of facing blood cancer.

Eve shares the unexpected nature of her diagnosis, which occurred at a time when she felt healthy and was renovating her new home in Melbourne with her partner. The initial shock, the communication hurdles during a pandemic, and the support she sought from close friends and her partner throughout this difficult time.

Eve reflects on the nuances of her treatment, which included managing intense side effects such as fatigue and mobility issues related to avascular necrosis (AVN), a condition she developed as a complication of her therapy. She discusses the importance of adapting to a changing physical condition and the critical role of a strong support network.

They then emphasised the significance of open communication with medical professionals, particularly in managing expectations around treatment and potential side effects like fertility. They also highlighted Eve’s mental health journey and the importance of psychological support and openness with loved ones.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Festive Season Wrap-up: Celebrating a Year of Inspirational Blood Cancer Journeys and Community

Mon, 16 Dec 2024 03:30:00 +1100

In this special episode of the Talking Blood Cancer podcast, hosts Kate Arkadieff and Maryanne Skarparis wrap up the season and reflect on an incredible year filled with impactful stories. They discuss the various conversations they've had throughout the year.

Kate and Maryanne share their appreciation for the healthcare professionals who have provided insights and support to the community. Emphasising the powerful and touching moments that have stood out in their discussions.

Addressing the impact of these stories on their audiences. Highlighting the messages they’ve received from listeners about feeling less alone, more understood, and better equipped to support loved ones.

Kate and Maryanne extend their best wishes for the festive season, expressing hopes for moments of joy, connection, and resilience. Thanking their listeners and the community for being part of this journey, acknowledging the strength and support that has been shared throughout the year.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

A Family’s Battle with Leukaemia: Bhaskar and Urvi Majumdar Share Their Inspiring Journey

Fri, 15 Nov 2024 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff speaks with Bhaskar Majumdar and his daughter, Urvi Majumdar, about their experience with blood cancer and the profound impact it had on their lives.

Discussing the complexities of Bhaskar’s journey, beginning with his initial diagnosis of acute lymphoblastic leukaemia (ALL) and the subsequent need for an allogeneic haemopoietic stem cell (HPC) transplant. Bhaskar shares his initial reaction to the diagnosis, the sudden and unexpected changes to his health. They also talked about the various complications Bhaskar faced post-transplant, including fluid in the lungs, infections, and the challenges of prolonged treatments, highlighting the unpredictable nature of recovery.

Urvi shares her perspective as the donor, recounting the emotional weight and concerns associated with the process. Emphasising the importance of a reliable support system and the unique emotional challenges that come with being a donor, such as the fear of potential COVID-19 exposure that could jeopardise the procedure. Both Bhaskar and Urvi mention the critical role of family support and the valuable assistance provided by the Leukaemia Foundation.

They reflect on the broader healthcare landscape, contrasting accessibility and systemic differences between countries. Bhaskar praises the collaboration of healthcare professionals in Australia and the practical support they received. Urvi's role as a National Ambassador for the Leukaemia Foundation was also highlighted and the importance of sharing their story to support others.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Regional Resilience: Michael Burridge on Blood Cancer, Rural Life, and the Importance of Support

Fri, 04 Oct 2024 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis is joined by Michael Burridge, who candidly shares his experience living with blood cancer.

Michael, a resident of Emerald, Queensland, recounts his life before diagnosis, working in the mining industry and living on a farm. He delves into the four years leading up to his diagnosis when he was misdiagnosed with various conditions such as Ross River fever. Michael then describes the severe pain that led him to the ICU, where advanced scanning technology helped identify his condition, leading to an immediate flight facilitated by the Royal Flying Doctor Service to Brisbane.

Michael shares the emotional and physical journey following his diagnosis with myeloma. From his initial treatment at Royal Brisbane Hospital to his ongoing outpatient chemotherapy, Michael details the significant role of healthcare professionals and support services. He acknowledges the support he received from the Leukaemia Foundation's accommodation and social workers, which played a pivotal role in his ongoing journey.

Michael's story shows the importance of remaining positive, staying engaged in physical activities, and maintaining strong social connections to aid in his treatment and recovery. Offering valuable insights and advice for others undergoing treatment for myeloma, and highlighting the benefits of a supportive network and maintaining a positive outlook.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

From Leukaemia Diagnosis to Finding Hope and Humor: Siobhan Hoy's Inspiring Journey

Fri, 13 Sep 2024 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff is joined by Siobhan Hoy to discuss her experiences living with blood cancer and the aftermath of her treatment.

Siobhan's journey with leukaemia, starts from her initial diagnosis at 14 to her experience with a relapse at 18. She opens up about the physical and emotional hurdles she encountered, the impact on her family, and the logistical difficulties of receiving treatment far from home. Sharing candid insights into how she navigated these challenges, including her role in her close-knit family and her decision to focus on being an aunt rather than having children of her own.

Siobhan shares her unique perspective on life after a bone marrow transplant. She talks about the challenges she faced, such as the development of graft versus host disease that initially attacked her skin and eventually led to lupus-like symptoms. Highlighting the difficulties in diagnosing post-transplant complications and the importance of effective medical support.

Kate and Siobhan talk about the emotional toll of long-term illness, with Siobhan describing how she managed judgement and misconceptions about her appearance due to her autoimmune disease and cancer scars. Emphasising the importance of communication, education, and humour in addressing such challenges. It shows Siobhan's resilience and adaptability, alongside her belief in the power of laughter and support from loved ones.

They conclude with a shared hope that their conversation will resonate with others facing similar struggles. Siobhan's story is one of strength and optimism, providing a source of comfort and inspiration for listeners.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

From Patient to Nurse: Rosie Proctor’s Story of Overcoming Leukaemia

Mon, 26 Aug 2024 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis is joined by Rosie Proctor to recount her journey with acute myeloid leukaemia. Diagnosed in 1993 at the age of 32, Rosie shares the initial symptoms she experienced, including pain in her hip and a high fever, leading to her diagnosis.

Rosie elaborates on the challenges and emotions she encountered following her diagnosis, particularly during her bone marrow transplant, where she received her sibling's marrow. Despite developing graft versus host disease, she persevered through chronic fatigue and other health hurdles. Also delving into her coping strategies, such as journaling, music, and the unwavering support from her family and partner, which helped her manage anxiety and unease before and after her transplant.

Rosie's post-transplant journey, returning to work less than a year after her transplant. Rosie found purpose and fulfilment in helping others, particularly in operating theatres. Her story emphasises the importance of maintaining trust in medical professionals, the value of communication with the treating team, and the significance of emotional and practical support for patients and their loved ones.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Compassion, Humour, and Care: Dr. Ralph McConaghy's Approach to Palliative Medicine

Wed, 21 Aug 2024 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis is joined by Dr Ralph McConaghy to discuss the important topic of having early conversations about serious illness and end-of-life decisions.

Dr McConaghy, who is the Medical Director of the Palliative Care Service at Wesley Hospital in Brisbane, emphasises the necessity of open communication with loved ones about potential outcomes and the end-of-life process. He believes that such discussions do not alter the outcome but can help individuals cope better with what lies ahead.

He shares his personal experiences and insights from his career in palliative care. He candidly talks about the emotional toll his work can take and the methods he employs to manage this stress, such as exercise, photography, and maintaining a sense of humour. He also reflects on the rewarding aspects of his profession, including the deep connections he forms with patients and the satisfaction of helping them find dignity and humanity during their final days.

They also centred around the misconceptions about palliative care. Dr McConaghy stresses that palliative care is not just for the final days or weeks of life but is crucial throughout the course of an illness for symptom control and emotional support. He discusses how supporting patients and their families with advance directives and resuscitation plans can provide much-needed clarity and comfort.

Dr McConaghy also touches on the transformative moments in his career, learning from failures, and the profound impact of discussing love and relationships with his patients. Highlighting how the dying can sometimes become a source of comfort for their loved ones, demonstrating remarkable strength and peace.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Role of Positivity and Fitness: Inspirational Blood Cancer Recovery with Sage Wilder

Wed, 31 Jul 2024 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis is joined by Sage Wilder to discuss his personal journey with acute lymphoblastic leukaemia (ALL). Diagnosed in 2016, Sage details his experiences from the initial symptoms, including extreme fatigue and night sweats, through to his intense chemotherapy treatment and eventual bone marrow transplant.

Sage discusses the physical and emotional challenges he faced during his treatment, such as commuting long distances to the Prince of Wales Hospital for a clinical trial. He shares insights on how he managed these difficulties with the strong support of his family and friends, particularly highlighting his father's role as his bone marrow donor. Sage’s background as a rugby league player played a significant role in his determination to regain physical fitness post-treatment.

Exploring how Sage found therapeutic value in physical activities, like walking his dog on the beach, and gradually rebuilding his strength with the help of a coach. He talks about the importance of listening to his body and setting realistic goals during recovery. Sage’s story emphasises the critical role of maintaining a positive mindset and the therapeutic effect of staying physically active.

Moreover, Sage opens up about his concerns regarding relationships post-treatment and how he met his supportive partner at the gym. Together, they navigated challenges such as infertility caused by cancer treatment but found joy in the birth of their naturally conceived son, Ziggy. Sage concludes by expressing gratitude for being part of the conversation and offering support to those facing similar battles, reinforcing the message that there is light at the end of the tunnel.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Protect Your Wishes: Estate Planning and Medical Directives with Eleanor Davis

Fri, 19 Jul 2024 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff is joined by Eleanor Davis to explore the vital topic of estate planning, particularly in the context of those affected by blood cancer.

Eleanor Davis, a Senior Associate and Practice Manager with David Davis & Associates, shares her professional insights on the importance of appointing Financial and Personal Attorneys as well as a Medical Treatment Decision Maker. Appointing people you trust to the role of a Financial and Personal Attorney as well as Medical Treatment Decision Maker Attorney ensures that a patient's financial, personal, and medical wishes are respected, even if they lose capacity, and that their decisions are not overridden by family members. Eleanor explains that seeking professional help for estate planning is essential, especially if there is no trusted family member or friend available to take on this responsibility.

Highlighting the necessity of timely estate planning, including making a will, appointing powers of attorney, and setting up advance health directives. Eleanor discusses the different types of property ownership and their implications for estate planning, stressing the importance of understanding the rules around jointly owned properties and bank accounts. They also delve into the critical aspect of appointing trustworthy executors and the legal implications of intestacy laws in Australia.

Kate and Eleanor underscore that while these discussions can be uncomfortable, they are crucial for ensuring a smoother process and providing a sense of control in the face of uncertainty. Emphasising the moral obligations to dependents and partners, the need for backup executors, and the benefits of joint will-making for couples with differing family dynamics. The episode provides practical guidance on capacity considerations and the importance of early planning to avoid complications later on.

The Leukaemia Foundation strongly recommend that everyone seek their own legal advice when considering their options. We also would like to highlight that advance care directives are available in every state and territory, and if you wish to seek more information, please connect with Advance Care Planning Australia

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Love, Life, and Recovery: Joshua Gourlay’s Blood Cancer Journey

Wed, 26 Jun 2024 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Maryanne Skarparis is joined by guest Joshua Gourlay, who shares his personal journey of living with blood cancer. Joshua candidly reflects on his experience of processing the diagnosis and the subsequent impact on his life, asserting the mindset that "life is too short" to waste. This led him to make a significant and impulsive decision to relocate to Canberra, which ultimately brought him unexpected happiness and a fresh start.

He provides insights into his hospital stay, describing it as a "forced holiday" where he brought personal items like a gaming console and TV to keep himself occupied. Despite the surreal experience and initial difficulty processing his diagnosis, Joshua found solace in writing, which he had stopped for several years. This led to the creation of his blog, "But What If It's Cancer," which engaged and supported many of his friends and family.

Touching up on Joshua’s professional life as a consultant in the public service, noting his successful reintegration into work post-remission. His reflective blog post from November 2022, "The Phantom," is also discussed, underscoring the misconception that life immediately returns to normal post-cancer and the journey of rebuilding oneself.

In the face of financial insecurities and the emotional strains of a failed marriage, Joshua recounts how the unwavering love and support from his parents helped him through the most challenging post-treatment years.

Joshua opens up about his challenges and triumphs, including his move to Canberra which allowed him to rekindle self-love and meet his new partner. He appreciates the immense support from his family, friends, and the Leukaemia Foundation, highlighting the pivotal role of a supportive community in overcoming cancer. He advises listeners to seek support, accept the changes brought by cancer recovery, and find joy and fulfilment in life despite the challenges.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialization. Learn more at www.talkinghealthtech.com/podcast/network

The Strength Within: Vince O'Donnell's Inspiring Battle with Hereditary Amyloidosis

Wed, 12 Jun 2024 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, Maryanne Skarparis is joined by guest Vince O'Donnell to talk about his experiences living with hereditary amyloidosis. Vince shares that he was diagnosed at 59 and has surpassed his prognosis by about seven years, thanks to advancements in treatment options. They discuss the impact of genetic testing in identifying hereditary conditions, the symptoms and diagnosis process, as well as treatment options over the years.

Vince highlights the financial burden and stresses of living with a chronic condition, including the cost of medical appointments and medications. He and his wife made life decisions, such as giving up work and accessing financial support, to sustain themselves during illness, further emphasising the importance of planning to tackle health issues and making decisions to live the best life possible.

Touching up on the significance of peer-to-peer social support in facing challenges related to health, as Vince reflects on his improved outlook and quality of life over the years. Sharing his mantra of "tomorrow will be a better day," Vince offers valuable insights into living life with hope, making proactive treatment decisions, and the importance of acceptance and courage in approaching difficult situations.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Courage Through Cancer: Nerys Welch on Overcoming Grief and Building a New Normal

Thu, 09 May 2024 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, host Kate Arkadieff is joined by Nerys Welch, who shares her deeply personal experience as the caregiver and widow of her husband, Richard, who battled T-cell acute lymphoblastic leukaemia.

Kate sets the tone by acknowledging the sensitive nature of grief and loss, encouraging listeners to approach the episode with compassion towards themselves and to step away if the content becomes too overwhelming. This precaution sets a respectful and understanding atmosphere right from the beginning.

During the conversation, Nerys recounts the tumultuous journey from Richard's diagnosis through his bone marrow transplant to ultimately managing life and parenting solo after his passing. She describes the emotional weight of caregiving, the challenges of watching a loved one suffer, and dealing with the resultant grief that continues to play a role in her daily life. Nerys’ story provides invaluable insights into the struggles faced by families dealing with blood cancer from a caregiver's perspective, highlighting issues such as adjusting to a new normal, the impacts on children, and the importance of seeking support.

Furthermore, Nerys touches on the significance of community and shared experiences, emphasising how connecting with others through online support groups helped her navigate her grief. This episode not only shares one woman's story but also offers comfort and understanding to others who are living through similar hardships.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

The Talking Blood Cancer Podcast is brought to you by the Leukaemia Foundation and is a proud member of the Talking HealthTech Podcast Network - the premier audio destination for cutting-edge insights and thought leadership in healthcare delivery, innovation, digital health, healthcare ICT, and commercialization. Learn more at www.talkinghealthtech.com/podcast/network.

Mother-Daughter Cancer Warriors: Theresa Webb and Summer’s Inspiring Battle with Lymphoma and Leukaemia

Thu, 18 Apr 2024 03:30:00 +1100

In this episode of the Talking Blood Cancer podcast, Kate Arkadieff invites Theresa Webb to share her deeply personal journey with non-Hodgkin's lymphoma and her daughter's battle with acute lymphoblastic leukaemia. Kate begins the conversation by acknowledging the tough reality faced by patients and their families.

Theresa opens up about the complexities of managing her own health alongside her role as a mother and business owner after being diagnosed with blood cancer. The discussion sheds light on the immense pressure she faced advocating for her daughter's health, how she had to streamline her life to cope with the demands of treatment, and the financial and emotional strain it placed on her. Despite these challenges, Theresa speaks to the resilience and strength displayed by both her and her daughter Summer, transitioning from paediatric to adult medical care and overcoming significant obstacles.

Highlighting the often-overlooked aspects of life after cancer treatment, Theresa discusses her post-treatment physical and emotional struggles, including her physical shutdown and the subsequent formation of her mental management business. She also reflects on the changes in her own identity post-diagnosis and the importance of self-care. Through her story, Theresa provides invaluable insights into the importance of appreciating the small things in life and the supportive role played by her father and daughters during the most challenging times.

Kate and Theresa converse about the intricate details of their treatment experiences, the impact on family dynamics, and the necessity of support networks. They also delve into the lessons learned and the wisdom gained through their cancer journeys.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Perry Judd's Fight Against Leukaemia and Rise to Athletic Glory

Thu, 04 Apr 2024 03:30:00 +1100

In this enlightening episode of the Talking Blood Cancer podcast, host Maryanne Skarparis welcomes Perry Judd, a remarkable blood cancer survivor with a tale of resilience and triumph.

Throughout the episode, Perry provides an in-depth look at his personal ordeal with blood cancer, recalling a harrowing infection that led to a transformative health journey. His narrative details a demanding transplant, aggressive chemotherapy, and the formidable side effects that followed, offering listeners an insider’s perspective on the challenges faced during treatment.

They explore Perry's out-of-body experiences and his battle with communication barriers and pain management. They shine a light on the significant role alternative medicine and his employer's support played in his recovery. Perry's story is one of connection and endurance, highlighting the power of goal-setting while grappling with serious illness.

Listeners will be inspired by Perry's remarkable return to competitive sports, winning multiple medals in cycling and triathlon events, and his ambition to participate in future competitions. His message is one of hope and encouragement, aiming to motivate others with similar diagnoses to believe in their strength and potential.

His insights extend beyond his sports achievements, delving into the gratitude he feels for his family, friends, and access to quality healthcare that steered him through the delicate post-transplant phase. Perry's gradual return to his job at Queensland Health and his ascent to a leadership role demonstrate his commitment to using his experience to benefit others in his professional capacity.

Finally, Perry shares heartfelt advice for those newly diagnosed with blood cancer: to treat oneself with kindness, trust in the circle of support, and remember that this challenging phase does not define who you are. His story leaves a lasting impression on the importance of attitude, love, and trust in overcoming leukaemia.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Motherhood and Resilience: Tahli Batkilin's Triumph Over Blood Cancer

Thu, 21 Mar 2024 03:30:00 +1100

In this episode of Talking Blood Cancer, host Kate Arkadieff welcomes Tahli Batkilin, who bravely shares her personal battle and subsequent victory over blood cancer.

Tahli takes us through the moment she first received her lymphoma diagnosis amidst the chaos of lockdown and running her home baking business. The confusion of initial misdiagnoses escalating to the eventual life-changing news is recounted with raw honesty. Tahli's determination and resilience shine through as she explains how she continued to push for answers when treatments didn't seem to be working, embodying the critical message of being your own health advocate.

Tahli speaks to the heart-wrenching challenges she faced, not just in dealing with her illness but also in adapting her role as a mother during this turbulent time. From the intimacy of family dinners disrupted by grave news to the everyday act of walking her children to school, the juxtaposition of normalcy and the fight for life is poignant.

Tahli also discusses the physical and emotional impact of traditional chemotherapy, the process and her experience with innovative CAR T cell therapy, and the significance of minimal side effects in comparison to her previous treatments. Her remission is celebrated, and the conversation shifts to the transformative perspective on life that arises from enduring such a profound personal journey.

The discussion concludes with a reflection on the unpredictable nature of life and an emphasis on recognizing the value in every moment. Tahli's story is a powerful testament to the strength of the human spirit, the importance of supportive care, and the advances in blood cancer treatment.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Life Beyond the Diagnosis: Peter Geary on Overcoming Myeloma with Positivity and Advocacy

Thu, 07 Mar 2024 03:30:00 +1100

In this inaugural episode of the Talking Blood Cancer podcast, our distinguished host Kate Arkadieff welcomes Peter Geary, a resolute myeloma patient and advocate, to share his profound journey since being diagnosed with asymptomatic myeloma in 2018. The episode begins with Peter recounting the moment of diagnosis and the subsequent "watch and wait" approach that marked the early days of his experience with blood cancer.

Peter's story provides a candid exploration of the evolution of his disease 18 months post-diagnosis, the treatments he underwent—including chemotherapy and an autologous stem cell transplant—and the life adjustments he has had to make. Kate and Peter engage in a thoughtful dialogue, covering the physical and psychological repercussions of his treatments, strategies for side effect management, the significance of fitness, and the preparations necessary for a stem cell transplant.

Also tapping into Peter's laudable involvement with advocacy groups, his deep-seated commitment to the cause of equitable healthcare access, and the necessity of standardised care protocols, particularly in regional Australia. This episode testimony from Peter underscores the vital role of a resilient mindset, the support of loved ones, and a proactive approach to one's healthcare journey in navigating the complexities of living with blood cancer.

Listeners also gain insights into the practical aspects of recovery, from maintaining a healthy weight to navigating daily activities while managing side effects from ongoing treatments. Moreover, the episode features enriching discussions on the support services essential in crafting a harmonious recovery environment and the transformative power of exercise in maintaining a semblance of normalcy in life.

Kate concludes the session by expressing appreciation for Peter's wisdom and contributions, affirming the episode's provision of valuable guidance for anyone navigating a blood cancer diagnosis or supporting someone in that battle.

For more information about the Leukaemia Foundation visit: https://www.leukaemia.org.au

Festive Wrap-Up: Reflecting on Season 3 of Talking Blood Cancer

Wed, 20 Dec 2023 14:00:00 +1100

In this special Christmas wrap-up episode of Talking Blood Cancer, hosts Kate and Maryanne reflect on the stories and conversations shared in Season 3 of the podcast.

We touch on various topics including feelings of happiness, managing fatigue, coping with infections, and pondering the essence of time. The festive season is a significant time, one that it can be both a time of celebration and reflection. We offer you wishes of love, health, and happiness for the upcoming year.

This is a time to focus on the love that surrounds you, and to seek support and guidance if needed. Remember the support services offered by the Leukaemia Foundation are always available, and we invite you to explore the online blood cancer support service available on our website.

We are looking forward to the upcoming season in 2024, so stay tuned for the release of a new series in March.

To access the Leukaemia Foundation’s support services or to find more information, call 1800 620 420.

Glenys Davidson's Journey: Overcoming Acute Myeloid Leukaemia and Finding Hope

Fri, 15 Dec 2023 09:00:00 +1100

In this episode of the Talking Blood Cancer podcast, host Vanessa is joined by guest Glenys Davidson to share her journey with acute myeloid leukaemia candidly.

Vanessa reflects on the observation of people navigating through treatment at the facility where she is based, setting the stage for a real, raw conversation about the impact of blood cancer on patients and their support networks.

Glenys highlights the importance of a positive attitude and familial backing during challenging times, underscoring the emotional and practical support she received from her community. The discussion delves into the specifics of Glenys' treatment, including the physical and emotional toll of chemotherapy, the search for a suitable stem cell donor, and the profound impact of hair loss. The episode also touches on the effects of the COVID-19 pandemic, which impacted treatment procedures and visitation protocols.

Further, Glenys emphasises the significance of robust support services for patients and the need for healthcare facilities to communicate the availability of such resources effectively. The conversation concludes with Glenys stressing the importance of social interaction and the realisation of the power of communication during difficult times.

A positive mindset and returning to the work helped Harry!

Tue, 19 Sep 2023 16:00:00 +1100

Harry shares in conversation how he valued working and how it was essential to his recovery to remain committed to challenging his mind. He also shares the importance of good relationships and how he relied on these in his recovery.

Lisa Smith, CEO - Australian Bone Marrow Donor Registry (ABMDR)

Tue, 08 Aug 2023 15:00:00 +1100

Lisa Smith is the CEO of the Australian Bone Marrow Donor Registry (ABMDR). ABMDR is the only organisation in Australia responsible for arranging bone marrow/blood stem cell donations for patients needing a transplant. ABMDR also administers government funding of public cord blood banks in Australia.

Lisa shares in this podcast the purpose of ABMDR and her passion for this area.

LIVE NOW: Strength to Give: Swab your cheek. Send it back. Save a life.

If you're 18-35, head to Strengthtogive.org.au to order your cheek swab kit and register as a potential Stem cell donor.

Every person on the Strength to Give registry has the potential to save a critically ill patient from blood cancer #strengthinnumbers #strength2give #bloodcancer

https://strengthtogive.org.au/

The Leukaemia Foundation offers a range of services. Click below to read more.

15 minutes with haematology nurse Carmel Woodrow

Thu, 20 Apr 2023 14:00:00 +1100

Carmel Woodrow has been in nursing for over 40 years, with 30 of those years spent in haematology.

Now working as a Clinical Nurse Consultant, Carmel focuses mainly on myeloma and amyloidosis patients.

The Leukaemia Foundation offers a range of services. Click below to read more.

Jennifer was diagnosed with myeloma at 27 years old

Thu, 06 Apr 2023 09:00:00 +1100

Jennifer Marx shares insight into being diagnosed with myeloma at almost 27 years old - a condition far more prevalent in older people.

Jennifer shares how she navigated the healthcare system, managed treatment and relationships, and her experience having two autologous transplants.

The Leukaemia Foundation offer a range of services. Click below to read more.

Navigating a rare blood disease as a mother of five: Fiona's story

Thu, 23 Mar 2023 08:00:00 +1100

In May 2020, Fiona was diagnosed with Myelodysplastic Syndrome.

Also known as MDS, it is a type of blood cancer that affects the production of normal blood cells in the bone marrow.

Fiona shares what it was like to be diagnosed with a rare blood disease as a mother of five, wife and nurse, in the midst of the COVID-19 pandemic.

Fiona has since participated in the World's Greatest Shave and raised over $8,000.

Listen to her story.

The Leukaemia Foundation offer a range of services. Click below to read more.

Talking Blood Cancer: 2022 wrap up

Thu, 22 Dec 2022 15:00:00 +1100

As 2022 draws to a close, our hosts Kate, Maryanne and Vanessa reflect on the past year and all the wonderful guests who have shared their stories for Season Two of Talking Blood Cancer.

Stay tuned for Season Three in the coming months.

Did you enjoy listening? We're always looking to improve our podcast so we'd love your feedback. Follow this link to answer our short survey.

The Leukaemia Foundation offer a range of services. Click below to read more.

From a cattle farmer and mother of three to an AML diagnosis: Regina's story

Tue, 20 Dec 2022 14:00:00 +1100

Living in regional NSW as a cattle farmer, Regina Batten noticed she was becoming increasingly fatigued. It was a week before her wedding however, so a blood cancer diagnosis was the last thing on her mind. After a visit to the doctor and some blood tests, it wasn't long before Regina was told the news - she had acute myeloid leukaemia.

Regina was rushed to hospital in Sydney where she had chemotherapy, radiation, a relapse and a double-chord stem cell transplant.

An honest and raw discussion, Regina talks openly about how blood cancer impacted her relationships.

The Leukaemia Foundation offer a range of services. Click below to read more.

Ping's daughter Zoe was diagnosed at 5 weeks old

Wed, 09 Nov 2022 13:00:00 +1100

In this episode, Kate speaks with Ping, whose daughter Zoe was diagnosed with infant pre B-acute lymphoblastic leukaemia at just 5 weeks old.

Zoe is now nearly 5 years old and is in remission and at school. Zoe's mother, Ping, shares what it was like to walk the blood cancer journey with a child so young, and how the family travelled around the world to save Zoe's life.

The Leukaemia Foundation offer a range of services. Click below to read more.

"It was a journey through no man's land": Michael's story

Thu, 27 Oct 2022 12:00:00 +1100

Michael Bowen was 33 years old and living in Sydney when one morning, as he was driving to work, he received a phone call that would stop his fast paced life in its tracks. Michael received a diagnosis of chronic myeloid leukaemia (CML).

In this conversation, Michael talks about the bouts of depression he came up against and how he was able to overcome these hard times.

The Leukaemia Foundation offer a range of services. Click below to read more.

Vicky's two miracle babies post-treatment

Wed, 28 Sep 2022 11:00:00 +1100

Vicky Pellowe was just 29 years old when she was diagnosed with Stage 4 Non-Hodgkin lymphoma. Vicky and her husband had only been married six months, both working long hours as FIFO workers in Western Australia.

Vicky speaks about the shock of mental recovery post treatment - how to try and remain positive while experiencing fear of relapse, side effects, potential infertility, body changes and loss of employment or finances. She also speaks about the journey into motherhood and how she was blessed with two miracle babies post treatment, without IVF.

The Leukaemia Foundation offer a range of services. Click below to read more.

Diagnosed during the pandemic: Renae's story

Tue, 13 Sep 2022 13:00:00 +1100

Picture this - it was the year 2021 and Melbourne had just come out of its 5th lockdown. Renae and her partner, Sam escaped the 5km radius and went to the beach. Renae remembers feeling a lump in her throat which she thought could have been tonsillitis. One doctor's visit changed Renae's life - she was diagnosed with anaplastic large T-cell lymphoma.

Renae talks about what it was like to be diagnosed during the Covid-19 pandemic in Melbourne, and how hospital restrictions impacted her support network during some of the toughest times of her treatment.

The Leukaemia Foundation offer a range of services. Click below to read more.

How Damien Thompson pushed himself to the limit

Thu, 01 Sep 2022 16:00:00 +1100

Damien Thompson was diagnosed with ALL in 2010 at the age of just 23. He underwent a donor related allogeneic transplant and suffered sever GVHD. A number of years later post his bone marrow transplant, he had to undergo a double lung transplant.

Damien shares pearls of wisdom about how he got through the challenging transplant. He speaks about remembering to celebrate the small wins, as those small wins turn into big gains. Damien made it his challenge to not let leukaemia win.

The Leukaemia Foundation offer a range of services. Click below to read more.

Robin travelled 1,100km to receive a diagnosis

Thu, 18 Aug 2022 15:00:00 +1100

This episode tells the story of Robin Matthews. Robin is a dump truck diver from the APY Lands in far north South Australia, building roads for Indigenous communities.

Robin was diagnosed with Stage 4 lymphoma in 2021, and talks about what it was like to face a diagnosis in a rural area of Australia, just months after losing his wife to cancer.

Robin shares how his family gave him strength in his darkest days and how finding a community within the Leukaemia Foundation helped him manage his diagnosis.

The Leukaemia Foundation offer a range of services. Click below to read more.

What drove Nathalie Cook to help list Pegasys on the PBS

Wed, 03 Aug 2022 15:00:00 +1100

Nathalie Cook OAM is an Accredited Practising Dietitian (APD), Accredited Nutritionist (AN) and qualified Registered Dietitian (RD). She was awarded the Medal of the Order of Australia (OAM) in January 2022 for service to dietetics.

Nathalie Cook, who was diagnosed with MPN in 2008, tells the story of the delay in her diagnosis and how after attending a conference in the USA, on the flight home, she made the decision to try to get Pegasys on the Pharmaceutical Benefits Scheme for people with MPN in Australia. It took 7 years to achieve this goal and the hearing her share the story of how she made it happen is truly astounding.

Not only has Nathalie so graciously shared her story with us here on the podcast but she has helped review our new booklet for nutrition and that we thank her.

I also would like to apologise for the audio on this episode – please bare with it and keep listening as Nathalie story is definitely one to hear.

The Leukaemia Foundation offer a range of services. Click below to read more.

'Family is the best investment': Jo's role as a carer

Wed, 20 Jul 2022 14:00:00 +1100

In our first episode of Season Two, we spoke to Tim Keen who was diagnosed with acute promyelocytic leukaemia (a rare subtype of acute myeloid leukaemia) in 1999. In this episode we speak with Tim's wife and carer, Jo Keen.

Jo shares her insights about her role as a carer. She talks about how her relationship with Tim strengthened throughout this tough journey and ways that they remained positive together. She discusses how making time for your family is the best investment you can make for own happiness.

The Leukaemia Foundation offer a range of services. Click below to read more.

'It's about life around the disease': Tim's story

Tue, 05 Jul 2022 12:00:00 +1100

To kick off Season Two, we chat to Tim Keen who was 34 years old when he was diagnosed with a rare subtype of acute myeloid leukaemia (AML), acute promyelocytic leukaemia (APML).

Tim shares his story through diagnosis, relapse, and treatment, where he underwent two autologous transplants and arsnic treatment.

Maryanne Skarparis speaks to Tim about how integral his wife and carer, Jo, was throughout his journey, and how focusing on life after cancer helped strengthen and pull them through.

The Leukaemia Foundation offer a range of services. Click below to read more.

From dialysis to blood cancer: Robert's story

Tue, 03 May 2022 11:00:00 +1100

Northern Territory local Robert Smith had been living on dialysis for 12 years when he was diagnosed with myeloma.

Robert discusses the importance that the support of his wife, Jo was in his journey.

He takes us through his story — from diagnosis, to what it was like to travel to Adelaide for life-saving treatment and his recovery.

The Leukaemia Foundation offer a range of services. Click below to read more.

Diagnosed the night before her wedding: Katherine's story

Thu, 14 Apr 2022 12:00:00 +1100

At the age of 24 and on the eve of her wedding, Katherine Marshall was diagnosed with Hodkgin's Lymphoma.

You'll hear how treatment and also survivorship truly tested her, and how processing her diagnosis was so important for her recovery.

The Leukaemia Foundation offer a range of services. Click below to read more.

Lauren faced two bone marrow transplants by age 23

Thu, 31 Mar 2022 14:00:00 +1100

Perth-based Lauren Menegola was diagnosed with acute myeloid leukaemia at age 21. After a number of gruelling rounds of chemotherapy, Lauren underwent an unrelated bone marrow transplant.

Just as life was getting back on track for Lauren, she was told that she had relapsed - just 11 months after her bone marrow transplant.

Lauren was angry and was scared for the challenge that lay ahead of her. The challenge was to search across the world for a bone marrow match, and they had to search high and low.

Lauren's story is a remarkable one which really shows the power of the human spirit - and having a supportive network rallying behind you.

The Leukaemia Foundation offer a range of services. Click below to read more.

A diagnosis and new-born baby

Tue, 08 Mar 2022 14:00:00 +1100

It was 2014, and Tom and his girlfriend had just discovered they were expecting their first child. Just weeks later, Tom found himself experiencing some concerning symptoms. After much investigation, he was diagnosed with Hodgkin lymphoma.

Tom's interview sheds light on what it was like to be diagnosed with a blood cancer as a young adult. He shares his experience of diagnosis, and autologous transplant, all while bringing a new baby into the world.

The Leukaemia Foundation offer a range of services. Click below to read more.

Clinton and the power of the mind

Wed, 02 Mar 2022 14:00:00 +1100

Clinton Parmenter was living life in the fast lane — socialising with friends, spending time with his family and working hard in his job. He "barely ever came up for a breath of air". When one day, his life was turned on its head when he was diagnosed with acute myeloid leukaemia.

In this interview, Clinton discusses his experience in choosing to go ahead with an allogeneic stem cell transplant. He also shares how he harnessed a positive mindset throughout his journey.

The Leukaemia Foundation offer a range of services. Click below to read more.

Diagnosed at 29 years old

Tue, 15 Feb 2022 08:00:00 +1100

29-year-old Sophie Patnicroft-Gray had recently moved from the UK to Adelaide, where she was working and planning to travel, when a routine blood test showed that there was something "a bit off". Then, out of left-field, Sophie was diagnosed with acute myeloid leukaemia.

Sophie shares the emotional struggles she faced as a young adult diagnosed with a blood cancer. Sophie also discusses her challenges with fatigue, and how she embraced exercise to improve her health and wellbeing.

The Leukaemia Foundation offer a range of services. Click below to read more.

How Sandra kept her family together through childhood leukaemia

Mon, 07 Feb 2022 14:00:00 +1100

Mother and psychologist, Sandra Evans shares the story of when her eldest daughter, Tahlia was diagnosed with acute lymphoblastic leukaemia at age four.

Sandra discusses how she and her husband, Randall, managed their broader family and finances. She recounts the time of diagnosis and treatment, and her experiences with doctors.

Sandra also reflects on how this experience motivated her to write her book, "Eight Seasons: Our Family’s Journey With Childhood Leukaemia".

Further information

Order a copy of Sandra Evans' book "Eight Seasons: Our Family's Journey With Childhood Leukaemia".

The Leukaemia Foundation offer a range of services. Click below to read more.

Christina's journey as a carer

Wed, 19 Jan 2022 13:00:00 +1100

In December 2015, Christina was living in Byron Bay and studying at medical school, when her boyfriend at the time, singer-songwriter Timothy James Bowen was diagnosed with diffuse large B-cell lymphoma.

In this episode, Christina reflects on how her knowledge as a doctor influenced how she managed her role as a carer, and how her life was impacted by Timothy's diagnosis. She discusses how important family was during this time and how they all rallied together to help Timothy.

Christina shares the most important lessons they learnt along the way; including creating a safe space to share honest emotions within their relationship.

The Leukaemia Foundation offer a range of services. Click below to read more.

Coping through creativity: Timothy James Bowen's story

Tue, 18 Jan 2022 12:00:00 +1100

You may have heard of Timothy James Bowen – in 2020, he was a contestant on Australia's TV show, The Voice. In this episode, we ask with the singer/songwriter to take us back to the time of his diagnosis; a time when Timothy was building his music career – writing and recording music and playing shows on tour.

Timothy was tired and sore, but he put that down to his busy lifestyle, his poor posture, and spending hours in the recording studio. After an innocent sneeze caused him to fall over in pain, Timothy realised that something more serious could be going on. Eventually, on 17 December 2015, Timothy was diagnosed with stage four lymphoma.

In this episode, Timothy discusses what it was like to endure six months of chemotherapy. He shares the value in having an interest or creative outlet (or many – in Timothy's case), and the importance of connection and support.

The Leukaemia Foundation offer a range of services. Click below to read more.

How blood cancer helped Esther find her authentic self

Fri, 10 Dec 2021 15:00:00 +1100

In 2016, Esther Xu’s life changed forever when she was diagnosed with Non-Hodgkin’s Lymphoma.

Up to that point, Esther had led quite a smooth, high-achieving life, ticking off most of her parents’ wish list.

Esther was living in Australia, but is originally from Shanghai in China. Not only did Esther have to deal with the physical effects of a blood cancer diagnosis, she also had to deal with the emotional and cultural complexities.

Esther discusses the mental challenges she faced, how she navigated familial expectations, and how she has channelled her diagnosis into her "mission".

Further information

The Leukaemia Foundation offer a range of services. Click below to read more.

From wife to carer

Fri, 26 Nov 2021 16:00:00 +1100

When Roxanne's husband Brendan was diagnosed with, acute myeloid leukaemia (AML), Roxanne had no idea that when she packed an overnight bag for Brendan that he would be in hospital for months having treatment.

Our host, and one of the Leukaemia Foundation's Blood Cancer Support Coordinators Kate Arkadieff speaks with Roxanne about what it was like to live in regional Queensland and care for someone with a blood cancer, and how she supported her family through the journey and beyond.

Further information

The Leukaemia Foundation offer a range of services. Click below to read more.

How a motorbike accident led to a blood cancer diagnosis

Fri, 12 Nov 2021 10:00:00 +1100

Brendan Hodda had just embarked on the trip of a lifetime for his 40th birthday. He was to ride his motorbike from Rockhampton to Cape York, when he fell off his bike on the first day of the trip.

It wasn't until after three surgeries on a broken arm and further tests that Brendan received the news – he had acute myeloid leukaemia (AML).

Our host, and one of the Leukaemia Foundation's Blood Cancer Support Coordinators Kate Arkadieff speaks with Brendan about his journey and what it was like to receive a blood cancer diagnosis while living in regional Queensland, have a bone marrow transplant, and go on to be a survivor of AML.

Further information

The Leukaemia Foundation offer a range of services. Click below to read more.

Kirsty Everett defied the odds and survived blood cancer – twice

Fri, 05 Nov 2021 09:00:00 +1100

Kirsty Everett was just nine years old when she was diagnosed with childhood acute myeloid leukaemia. Then, seven years later, at just 16 years old, Kirsty relapsed again.

Kirsty discusses what it was like to be diagnosed with childhood leukaemia, how she got through chemotherapy, and how she has harnessed this experience to inspire her purpose.

Further information

Read Kirsty Everett's book - "Honeyblood"

The Leukaemia Foundation offer a range of services. Click below to read more.

Coping with lymphoma and motherhood

Fri, 22 Oct 2021 11:00:00 +1100

Julie Allen lived with vague symptoms for quite some time – back pain, flu-like symptoms – but she explained these away with her busy life as a physiotherapist and mother of three young kids.

But, after a few rounds of antibiotics, things didn't get better. Julie was diagnosed with Non-Hodgkin lymphoma.

Julie discusses how she coped with a blood cancer diagnosis as a young mum, and shares some insight and expertise on the importance of exercise as a treatment for cancer.

Further information

The Pentimento Project

The Leukaemia Foundation offer a range of services. Click below to read more.