Joined by community paediatrician and parent Dr Karen Russell, Carrie and Sam unpack the shock, grief cycles and uncertainty that so many families face. A compassionate, validating episode for anyone navigating those early signs and unanswered questions.

Cerebra – support, guides and resources for families of children with brain conditions (www.cerebra.org.uk)

The episode covers:

- The challenges of waiting for a diagnosis, or living without one

- System’s Generated Trauma

- Navigating autism, neurological conditions, and rare disorders

- Advocating for your child within the healthcare system

- Why protecting your own mental health is essential from day one

You’ll also hear real experiences from families, alongside practical advice on finding support. Helpful organisations mentioned include:

- Cerebra – support, guides and resources for families of children with brain conditions (www.cerebra.org.uk)

- https://cerebra.org.uk/download/after-diagnosis-what-now/

- https://cerebra.org.uk/download/information-and-support-for-parents-of-a-child-recently-diagnosed-with-a-genetic-condition/

- https://cerebra.org.uk/download/systems-generated-trauma-report/

- SWAN UK – support for families without a confirmed diagnosis (www.swanuk.org.uk)

- National Autistic Society – advice, support and local groups (www.autism.org.uk)

Contact has a comprehensive library (https://contact.org.uk/conditions/) of condition specific information and associated support groups.

Unique - support for families affected by rare chromosome and gene disorders (www.rarechrome.org)

In this first episode, hosts Carrie Grant and Dr Samantha Flynn share their own journeys both personal and professional, and the hopes behind creating a space where SEND parents can feel understood. Warm, honest and full of lived experience, it’s the perfect introduction to a community built on empathy and support.

The Calm in the Complicated: Guiding families through childhood brain conditions with expertise and heart. Brought to you by Cerebra, the UK charity dedicated to helping families find a better life together.

For more information please visit cerebra.org.uk

Follow us on Instagram at @cerebracharity

Follow us on Facebook at @CerebraCharity

Follow us on LinkedIn at @cerebra-charity

Or email us at calm@cerebra.org.uk

Shaped entirely by parent carers, the podcast explores the moments they told us matter the most - the fear of those first suspicions that something is wrong, the mountain of admin, the strain on relationships, the sleepless nights, and the quiet fight to look after your own wellbeing. Each episode includes real voice notes from parents across the UK, making this a space where families’ voices aren’t just included, they’re central.

With practitioners, researchers, and parent campaigners joining the conversation, The Calm in the Complicated offers connection, comfort, and practical support. It’s a virtual village for anyone navigating the complexities of childhood brain conditions. It’s a place to feel understood, uplifted, and reminded that you don’t have to do this alone.

The Calm in the Complicated: Guiding families through childhood brain conditions with expertise and heart. Brought to you by Cerebra, the UK charity dedicated to helping families find a better life together.

For more information please visit cerebra.org.uk

Follow us on Instagram at @cerebracharity